背景:虽然确保适当的成长对所有儿童都至关重要,优化囊性纤维化(CF)患儿的营养状况对于改善健康结局至关重要.CF的营养挑战是多因素的,营养不良很常见。虽然胃造瘘管(G管)可以改善CF患者的体重状况,它们也有常见和慢性并发症,导致临床平衡。迄今为止,尚未系统地探讨影响CF儿童照顾者G管决策的因素。这篇综述旨在绘制有关护理人员与G管放置相关的决策需求的现有知识,重点关注CF儿童的看护人,以及儿科护理中G管喂养的已知医学和社会心理益处和风险。
方法:本范围审查将遵循JBI方法学框架。我们将包括MEDLINE(Ovid)在1985年1月1日至2023年11月1日之间以英语和西班牙语发表的文章,Embase,CINAHL,PsycInfo,Cochrane系统评论数据库和与G管决策相关的WebofScience。以英语和西班牙语以外的语言发表的文章将被排除在外。文章将根据标题和摘要进行最终资格和纳入筛选,其次是全文。文章将由两名审稿人独立审查,并与第三名审稿人讨论任何分歧,以达成共识。我们将映射主题和概念,提取的数据将以表格形式显示,图表和描述性摘要。
背景:作为二次分析的一种形式,范围审查不需要伦理批准。这篇综述将为未来的研究提供信息,让护理人员参与CF儿童的G管决策。最终审查将提交给同行评审的科学期刊,在相关学术会议上传播,并将与患者和临床医生分享。
背景:开放科学中心。https://osf.io/g4pdb。
While ensuring appropriate growth is essential for all children, optimising nutritional status in children with cystic fibrosis (CF) is critical for improving health outcomes. Nutritional challenges in CF are multifactorial and malnutrition is common. While
gastrostomy tubes (G-tubes) can improve weight status in individuals with CF, they also have common and chronic complications resulting in clinical equipoise. To date, factors influencing G-tube decision-making among caregivers of children with CF have not been systematically explored. This
review aims to chart existing knowledge about caregivers\' decisional needs related to G-tube placement, with a focus on caregivers of children with CF, as well as known medical and psychosocial benefits and risks of G-tube feedings in paediatric care.
This scoping
review will follow the JBI methodological framework. We will include articles published between 1 January 1985 and 1 November 2023 in English and Spanish from MEDLINE (Ovid), Embase, CINAHL, PsycInfo, Cochrane Database of Systematic Reviews and Web of Science related to G-tube decision-making. Articles published in languages besides English and Spanish will be excluded. Articles will be screened for final eligibility and inclusion according to title and abstract, followed by full texts. Articles will be independently reviewed by two reviewers and any disagreements discussed with a third reviewer for consensus. We will map themes and concepts, and data extracted will be presented in tabular, diagrams and descriptive summaries.
As a form of secondary analysis, scoping reviews do not require ethics approval. This
review will inform future research with caregivers involved in G-tube decision-making for children with CF. The final
review will be submitted to a peer-reviewed scientific journal, disseminated at relevant academic conferences and will be shared with patients and clinicians.
Center for Open Science. https://osf.io/g4pdb.