■对非正式护理人员的经济负担的兴趣一直在增长。不幸的是,目前尚不清楚量化这一负担时应使用哪种方法.
■我们进行了范围审查,旨在确定哪些方法已用于进行此类工作并量化其性能。我们也有兴趣研究在选定的研究中如何考虑性别和性别因素。
■使用标准化方法,我们确定了2012-2022年间发表的旨在记录儿童和青少年患者照顾者的经济负担的研究.我们的搜索策略被应用于MEDLINE,Embase,CINHAL,和学术搜索Premier数据库。
■手稿选择由成对的审阅者执行。
■数据提取由一个审阅者进行,第二审阅者进行质量控制。使用叙述方法报告结果。
■我们确定了9801个独特的引文,其中200人包括在我们的审查中。选定的研究涵盖了各种疾病领域(例如,感染/寄生虫病[n=31,16%]),包括定量(n=180,90%),定性(n=4,2%)和混合研究设计(n=16,8%)。大多数研究(n=182,91%)使用问卷/调查,单独或与其他方法结合使用,评估护理人员的经济负担。不到一半(n=93,47%)的研究报告了护理人员的性别,没有报告他们的性别。
■我们对已发表的研究进行了无限制的审查,这些研究检查了护理人员的经济负担,使我们能够确定本文献中观察到的一般方法学趋势。我们相信这项工作可能有助于改善未来对这一重要问题的研究。
UNASSIGNED: Interest in the financial burden of informal caregivers has been growing. Unfortunately, it remains unclear which method(s) should be used when quantifying this burden.
UNASSIGNED: We conducted a scoping
review aimed at identifying which methods have been used to conduct such work and quantified their performance. We were also interested in examining how sex and gender considerations were considered within selected studies.
UNASSIGNED: Using a standardized approach, we identified studies published between 2012 and 2022 that aimed to document the financial burden of caregivers to child and adolescent patients. Our search strategy was applied to the MEDLINE, Embase, CINHAL, and Academic Search Premier databases.
UNASSIGNED: Manuscript selection was performed by pairs of reviewers.
UNASSIGNED: Data extraction was performed by one reviewer with a second reviewer performing quality control. Results were reported using a narrative approach.
UNASSIGNED: We identified 9801 unique citations, of which 200 were included in our
review. Selected studies covered various disease area (eg, infection/parasitic diseases [n = 31, 16%]) and included quantitative (n = 180, 90%), qualitative (n = 4, 2%) and mixed study designs (n = 16, 8%). Most studies (n = 182, 91%) used questionnaires/surveys, either alone or in combination with other methods, to assess caregivers\' financial burden. Less than half (n = 93, 47%) of studies reported on caregivers\' sex and none reported on their gender.
UNASSIGNED: We conducted an unrestricted
review of published studies examining caregiver\'s financial burden which allowed us to identify general methodological trends observed in this literature. We believe this work may help improve future studies focusing on this important issue.