背景:吞咽复杂涉及感觉运动系统,整合上消化道和呼吸功能的关键。吞咽困难,具有挑战性的吞咽,经常引发焦虑和抑郁,深刻影响生活质量(QOL)。了解以患者为中心的症状对于评估吞咽困难的QOL影响至关重要。
目的:本研究旨在开发和验证泰米尔语症状特异性吞咽困难生活质量问卷(SSDQOL-T)。
方法:SSDQOL-T是在泰米尔语中开发的,并经过了严格的内容验证。该问卷被用于120名正常人和32名吞咽困难患者,评估各种吞咽困难及其QOL影响。
结果:结果表明SSDQOL-T具有良好的内部一致性(Cronbach'sα=0.78)。各年龄组在吞咽能力和生活质量方面存在显著差异,老年人出现症状加剧。在健康成年人和吞咽困难的所有子域之间,平均得分均具有很高的意义,p值为0.0005。被发现具有重要意义的症状是咳嗽/呕吐反射,返流,吞咽困难,球状感觉,机械性和退行性吞咽困难组之间比较的胃灼热和疲劳。在泰米尔语中,SSDQOL-T评分与吞咽困难障碍指数之间存在很强的相关性(r=0.89)。
结论:SSDQOL-T问卷为评估泰米尔语人群的吞咽困难相关QOL提供了一个可靠的工具。其验证强调了其在理解吞咽困难的多维影响方面的临床相关性和实用性。本研究强调了文化敏感性评估工具在综合评估吞咽困难的QOL影响方面的重要性。
BACKGROUND: Swallowing intricately involves sensorimotor systems, pivotal for integrating upper digestive and respiratory functions.
Dysphagia, challenging swallowing, often precipitates anxiety and depression, deeply affecting the quality of life (QOL). Understanding patient-centric symptoms is vital for assessing
dysphagia\'s QOL impact.
OBJECTIVE: This study aimed at developing and validating the Symptom Specific
Dysphagia Quality of Life Questionnaire in Tamil (SSDQOL-T).
METHODS: SSDQOL-T was developed in Tamil and underwent rigorous content validation. This questionnaire was administered to 120 normal individuals and 32
dysphagia patients, assessing various swallowing difficulties and their QOL impact.
RESULTS: Results indicate SSDQOL-T\'s good internal consistency (Cronbach\'s α = 0.78). Significant differences in swallowing ability and QOL were noted across age groups, with older adults experiencing heightened symptoms. A high significance in mean score was obtained between healthy adults and dysphagia across all sub-domains with a \'p-value\' of 0.0005. Symptoms that were found to have high significance were cough/gag reflex, regurgitation, odynophagia, globus sensation, heartburn and tiredness when compared between mechanical and degenerative dysphagia group. Strong correlations were found between SSDQOL-T scores and the
Dysphagia Handicap Index in Tamil (r = 0.89).
CONCLUSIONS: The SSDQOL-T questionnaire provides a robust tool for evaluating dysphagia-related QOL in the Tamil-speaking population. Its validation underscores its clinical relevance and utility for understanding the multidimensional impact of dysphagia. This study emphasizes the importance of culturally sensitive assessment tools in comprehensively evaluating dysphagia\'s QOL implications.