目标:从消费者的角度描述和反思五个生活指南中使用的消费者参与方法(即病人,看护者,公众及其代表)和准则开发商。
方法:在描述性报告中,我们使用一个模板来捕捉澳大利亚和英国生活指南中消费者和指南开发者的参与方式和体验.使用描述性综合对反应进行总结。
结果:一个指南使用了消费者小组,其中三名包括指南开发小组中的两到三名消费者,一名同时包括这两名消费者。我们的许多经验对于所有准则都是共同的(例如,消费者感到受欢迎,但他们的角色最初缺乏明确性)。我们确定了生活指南特有的六个挑战和机遇:管理工作流程;管理在线环境中的参与;管理小组成员;促进更大的灵活性,参与的多样性和深度;招募特定技能-尽管这些技能可以随着时间的推移而建立;开发生活流程以改善和适应消费者的参与度。
结论:消费者参与生活指南应遵循消费者参与指南的既定原则。把订婚想象成生活,以生活过程评估为基础,允许随着时间的推移与消费者一起开发该方法。
To describe and reflect on the consumer engagement approaches used in five living guidelines from the perspectives of consumers (i.e., patients, carers, the public, and their representatives) and
guideline developers.
In a descriptive report, we used a template to capture engagement approaches and the experiences of consumers and
guideline developers in living
guidelines in Australia and the United Kingdom. Responses were summarized using descriptive synthesis.
One
guideline used a Consumer Panel, three included two to three consumers in the
guideline development group, and one did both. Much of our experience was common to all guidelines (e.g., consumers felt welcomed but that their role initially lacked clarity). We identified six challenges and opportunities specific to living guidelines: managing the flow of work; managing engagement in online environments; managing membership of the panel; facilitating more flexibility, variety and depth in engagement; recruiting for specific skills-although these can be built over time; developing living processes to improve; and adapting consumer engagement together.
Consumer engagement in living guidelines should follow established principles of consumer engagement in
guidelines. Conceiving the engagement as living, underpinned by a living process evaluation, allows the approach to be developed with consumers over time.