■痴呆症的提前护理计划包括支持患者及其家人考虑重要的护理目标。国际研究报告了心理社会精神方面对生命终结的重要性。
■开发用于实践的痴呆症的多维国际姑息治疗目标模型。
■国际德尔菲研究,整合了元定性研究的共识和证据。Delphi小组以5点协议量表对有关模型的陈述进行了评级。协商一致的标准是预先规定的。
■来自8个国家的17名研究人员开发了一个初始模型,169名候选小组成员被邀请参加国际在线德尔福研究。
■小组成员(107人;反应63.3%)居住在33个国家。该模型包括四个主要的护理目标:(1)确保舒适;(2)维持对功能的控制;(3)身份保护和人格尊重;(4)应对悲伤,失去亲人和护理人员的支持。该模型反映了需求和护理目标如何随着时间的推移随着痴呆症的进展而变化,最后支持丧亲。该模型的第一个版本达成了共识,之后根据反馈对其进行了一些改进。我们没有在增加延长寿命的目标上达成共识,以及痴呆症患者和家人自己使用该模型。
■针对痴呆症患者及其家人的新姑息治疗目标模型包括供专业人士使用的关系方面,并在具有不同文化背景的小组中达成共识。延长寿命与姑息治疗目标的关系需要进一步研究。
UNASSIGNED: Advance care planning in dementia includes supporting the person and their family to consider important goals of care. International research reports the importance of psycho-social-spiritual aspects towards end of life.
UNASSIGNED: To develop a multidimensional international palliative care goals model in dementia for use in practice.
UNASSIGNED: International Delphi study integrating
consensus and evidence from a meta-qualitative study. The Delphi panel rated statements about the model on a 5-point agreement scale. The criteria for
consensus were pre-specified.
UNASSIGNED: Seventeen researchers from eight countries developed an initial model, and 169 candidate panellists were invited to the international online Delphi study.
UNASSIGNED: Panellists (107; response 63.3%) resided in 33 countries. The model comprised four main care goals: (1) Comfort ensured; (2) Control over function maintained; (3) Identity protected and personhood respected and (4) Coping with grief and loss-person and caregiver supported. The model reflects how needs and care goals change over time with the progression of dementia, concluding with bereavement support. The first version of the model achieved a
consensus after which it was slightly refined based on feedback. We did not achieve a
consensus on adding a goal of life prolongation, and on use of the model by people with dementia and family themselves.
UNASSIGNED: A new palliative care goals model for people with dementia and their families includes relationship aspects for use by professionals and achieved a
consensus among a panel with diverse cultural background. The position of life prolongation in relation to palliative care goals needs further research.