Chronic illness

慢性疾病
  • 文章类型: Journal Article
    免疫抑制患者的数量正在大幅增加,因为他们的存活率更高,并且对各种慢性疾病使用了新的免疫抑制治疗方法。这是一组异质性的患者,其中接种疫苗作为预防措施是他们健康的基本支柱之一,考虑到他们感染的风险增加。这一共识,由西班牙儿科传染病协会(西班牙儿科传染病协会)和西班牙儿科协会疫苗咨询委员会(西班牙儿科协会)联合开发,为特殊情况下的患者制定个性化的疫苗接种计划提供指导,包括对骨髓和实体器官移植受者接种疫苗的一般建议和具体建议,有先天免疫错误的孩子,肿瘤患者,患有慢性或全身性疾病和免疫抑制旅行者的患者。
    The number of people with immunosuppression is increasing considerably due to their greater survival and the use of new immunosuppressive treatments for various chronic diseases. This is a heterogeneous group of patients in whom vaccination as a preventive measure is one of the basic pillars of their wellbeing, given their increased risk of contracting infections. This consensus, developed jointly by the Sociedad Española de Infectología Pediátrica (Spanish Society of Pediatric Infectious Diseases) and the Advisory Committee on Vaccines of the Asociación Española de Pediatría (Spanish Association of Paediatrics), provides guidelines for the development of a personalised vaccination schedule for patients in special situations, including general recommendations and specific recommendations for vaccination of bone marrow and solid organ transplant recipients, children with inborn errors of immunity, oncologic patients, patients with chronic or systemic diseases and immunosuppressed travellers.
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  • 文章类型: Journal Article
    物质使用障碍(SUD)通常被理解为慢性疾病。
    本文调查SUD是否被视为慢性疾病。
    为了这个目标,我们使用世界卫生组织(WHO)对慢性病的定义进行了SUD和2型糖尿病(T2D)的比较分析,这是另一种慢性疾病。
    在分析挪威治疗指南时,我们发现,只有T2D指南反映了WHO对慢性病的概念化。我们认为,这种差异意味着SUD被理解为道德和法律问题,而T2D被概念化为一种躯体疾病。我们讨论社交,理解SUD的可能性的政治和历史条件与关于临床医生的规范性假设交织在一起,病人,治疗指南和药物政策可能会阻碍持续护理的发展。
    本文得出的结论是,由于SUD未被视为慢性疾病,因此治疗服务的提供是不公平的。
    Substance use disorder (SUD) is often understood as a chronic illness.
    This paper investigates whether SUD is treated as a chronic illness.
    To this aim, we have used World Health Organizations (WHO\'s) definition of chronic illness to conduct a comparative analysis of SUD and type 2 diabetes (T2D), which is another chronic illness.
    When analysing Norwegian treatment guidelines, we found that only the T2D guideline reflects the WHO\'s conceptualization of chronic illnesses. We argue that this discrepancy implies that SUD is understood as a moral and legal problem, while T2D is conceptualized as a somatic illness. We discuss how social, political and historical conditions of the possibility for understanding SUD are interwoven with normative presumptions about the clinician, patient, treatment guidelines and drug policies in a way that may impede the development of continuing care.
    The paper concludes that the delivery of treatment services is inequitable as SUD is not treated as a chronic illness.
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  • 文章类型: Journal Article
    Cancer survivorship care in Colombia is of increasing importance. International survivorship initiatives and studies show that continuing symptoms, psychological distress, and late effects impact the quality of life for survivors. Priorities for quality survivorship according to Colombian patients and clinicians are unknown. We undertook a nominal consensus approach with 24 participants using virtual meeting technology to identify the priorities for cancer survivorship. We applied an iterative approach conducted over eight weeks with five workshops and one patient focus group followed by a priority setting survey. The consensus group established six main themes, which were subsequently evaluated by experts: (i) symptoms and secondary effects of cancer; (ii) care coordination to increase patient access and integration of cancer care; (iii) psychosocial support after cancer treatment; (iv) mapping information resources and available support services for long-term cancer care; (v) identifying socioeconomic and regional inequalities in cancer survival to improve care and outcomes; and (vi) health promotion and encouraging lifestyle change. The order of priorities differed between clinicians and patients: patients mentioned psychosocial support as the number one priority, and clinicians prioritized symptoms and surveillance for cancer recurrence. Developing survivorship care needs consideration of both views, including barriers such as access to services and socioeconomic disparities.
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  • 文章类型: Journal Article
    疾病的概念主要源于肥大细胞(MC)的慢性异常组成型和反应性激活,没有肥大细胞增生症的MC瘤形成,首次出现在1980年代,但仅在过去十年中,对“肥大细胞活化综合征”(MCAS)的认识才显著增长。关于诊断标准的两个主要建议已经出现。一,最初发表于2012年,被其作者标记为“共识”(此处重新称为“共识-1”)。另一个相当大的调查人员和从业人员赞成不同的方法(最初发表于2011年,这里新称为“共识-2”),在某些方面类似于“共识-1”,但在其他方面不同,导致这些建议在符合诊断条件(以及治疗条件)的患者数量上存在实质性差异。“共识-2”标准的过度诊断可能会有问题,但是根据“共识-1”标准进行的诊断不足似乎是一个更大的问题,因为(1)越来越认识到MCAS是普遍存在的(占总人口的17%),和(2)大多数MCAS患者,无论诊断前的疾病持续时间如何,最终可以确定产生持续改善的治疗方法。我们分析这些建议(和其他建议),并建议,直到仔细的研究提供更明确的答案,任何一个建议的诊断都是有效的,合理,和有益的。
    The concept that disease rooted principally in chronic aberrant constitutive and reactive activation of mast cells (MCs), without the gross MC neoplasia in mastocytosis, first emerged in the 1980s, but only in the last decade has recognition of \"mast cell activation syndrome\" (MCAS) grown significantly. Two principal proposals for diagnostic criteria have emerged. One, originally published in 2012, is labeled by its authors as a \"consensus\" (re-termed here as \"consensus-1\"). Another sizable contingent of investigators and practitioners favor a different approach (originally published in 2011, newly termed here as \"consensus-2\"), resembling \"consensus-1\" in some respects but differing in others, leading to substantial differences between these proposals in the numbers of patients qualifying for diagnosis (and thus treatment). Overdiagnosis by \"consensus-2\" criteria has potential to be problematic, but underdiagnosis by \"consensus-1\" criteria seems the far larger problem given (1) increasing appreciation that MCAS is prevalent (up to 17% of the general population), and (2) most MCAS patients, regardless of illness duration prior to diagnosis, can eventually identify treatment yielding sustained improvement. We analyze these proposals (and others) and suggest that, until careful research provides more definitive answers, diagnosis by either proposal is valid, reasonable, and helpful.
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  • 文章类型: Journal Article
    暂无摘要。
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  • 文章类型: Journal Article
    Self-management support (SMS) initiatives have been hampered by insufficient attention to underserved and disadvantaged populations, a lack of integration between health, personal and social domains, over emphasis on individual responsibility and insufficient attention to ethical issues. This paper describes a SMS framework that provides guidance in developing comprehensive and coordinated approaches to SMS that may address these gaps and provides direction for decision makers in developing and implementing SMS initiatives in key areas at local levels. The framework was developed by researchers, policy-makers, practitioners and consumers from 5 English-speaking countries and reviewed by 203 individuals in 16 countries using an e-survey process. While developments in SMS will inevitably reflect local and regional contexts and needs, the strategic framework provides an emerging consensus on how we need to move SMS conceptualization, planning and development forward. The framework provides definitions of self-management (SM) and SMS, a collective vision, eight guiding principles and seven strategic directions. The framework combines important and relevant SM issues into a strategic document that provides potential value to the SMS field by helping decision-makers plan SMS initiatives that reflect local and regional needs and by catalyzing and expanding our thinking about the SMS field in relation to system thinking; shared responsibility; health equity and ethical issues. The framework was developed with the understanding that our knowledge and experience of SMS is continually evolving and that it should be modified and adapted as more evidence is available, and approaches in SMS advance.
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  • 文章类型: Journal Article
    Brain imaging and genetic studies over the past two decades suggest that substance use disorders are best considered chronic illnesses. The passing of the Affordable Care Act in the United States has set the occasion for integrating treatment of substance use disorders into mainstream healthcare; and for using the proactive, team-oriented Chronic Care Model (CCM). This paper systematically examines and compares whether and how well the CCM could be applied to the treatment of substance use disorders, using type 2 diabetes as a comparator. The chronic illness management approach is still new in the field of addiction and research is limited. However comparative findings suggest that most proactive, team treatment-oriented clinical management practices now used in diabetes management are applicable to the substance use disorders; capable of being implemented by primary care teams; and should offer comparable potential benefits in the treatment of substance use disorders. Such care should also improve the quality of care for many illnesses now negatively affected by unaddressed substance abuse.
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  • 文章类型: Journal Article
    While most youth with congenital heart disease have simple structural lesions and near-normal activity tolerance and functioning, youth with complex structural defects may be affected by significant morbidity. Efforts are being made to consider the impact of exercise and physical activity on quality of life. The benefits of physical activity are well documented; however, the levels of participation and self-efficacy for activity remain low, thus increasing the risk of obesity and cardiovascular morbidity. Rehabilitation is a novel and emerging area, and decisions regarding advocacy versus restriction of physical activity may pose a challenge for both cardiologists and nonspecialists. The present article outlines the rationale for physical activity recommendations in youth with surgically corrected congenital heart disease and the psychosocial determinants of participation. Clinical recommendations and future directions are proposed.
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