PDF(Pubmed)
Abstract：
BACKGROUND: Practical social media recommendations are needed to facilitate greater engagement in dementia prevention research. Alongside relevant experts, our aim was to develop a set of consensus recommendations that reflect the values and priorities of prospective participants to guide social media use.
METHODS: We conducted a three-round, modified Delphi consisting of three online surveys and three conferences calls. The diverse, international Delphi panel comprised 16 experts with lived (n = 10) and professional (n = 6) experiences. Consensus was defined a priori as ≥ 70% agreement.
RESULTS: Twenty-six items achieved consensus. Two items reached consensus in round 1: ethical considerations of closed social media groups (88%) and of social media users sharing prevention content with connections who are not on social media (79%). Nine items reached consensus in round 2, related to misinformation (79%), stigma (93%), and other key aspects of social media communication. After revisions, 15 items reached consensus in the final round. These items included: identifying when researchers ought to engage, managing closed social media groups, rankings of short form content, prioritizing lay summaries and multimedia resources, and rankings of preferred language. One item about the language of prevention for audiences living with dementia did not reach consensus. Final consensus items formed the new set of recommendations, which we organized into seven social media use cases. These use cases include setting up a social media page or community, handling online misinformation, actively challenging stigma, handling difficult online interactions, introducing new research to the public, help with study recruitment, and the language of prevention when writing posts.
CONCLUSIONS: These consensus recommendations can help dementia prevention researchers harness social media use for the purposes of public engagement and uphold the norms and values specific to the dementia research and broader communities.
UNASSIGNED: We created social media recommendations with research and community experts.Recommendations cover key ethical considerations for dementia prevention research.Areas include misinformation, stigma, information updates, and preferred language.Full consensus recommendations are organized into seven social media use cases.
METHODS: We conducted a three-round, modified Delphi consisting of three online surveys and three conferences calls. The diverse, international Delphi panel comprised 16 experts with lived (n = 10) and professional (n = 6) experiences. Consensus was defined a priori as ≥ 70% agreement.
RESULTS: Twenty-six items achieved consensus. Two items reached consensus in round 1: ethical considerations of closed social media groups (88%) and of social media users sharing prevention content with connections who are not on social media (79%). Nine items reached consensus in round 2, related to misinformation (79%), stigma (93%), and other key aspects of social media communication. After revisions, 15 items reached consensus in the final round. These items included: identifying when researchers ought to engage, managing closed social media groups, rankings of short form content, prioritizing lay summaries and multimedia resources, and rankings of preferred language. One item about the language of prevention for audiences living with dementia did not reach consensus. Final consensus items formed the new set of recommendations, which we organized into seven social media use cases. These use cases include setting up a social media page or community, handling online misinformation, actively challenging stigma, handling difficult online interactions, introducing new research to the public, help with study recruitment, and the language of prevention when writing posts.
CONCLUSIONS: These consensus recommendations can help dementia prevention researchers harness social media use for the purposes of public engagement and uphold the norms and values specific to the dementia research and broader communities.
UNASSIGNED: We created social media recommendations with research and community experts.Recommendations cover key ethical considerations for dementia prevention research.Areas include misinformation, stigma, information updates, and preferred language.Full consensus recommendations are organized into seven social media use cases.
摘要：
背景：需要实用的社交媒体建议，以促进更多参与痴呆症预防研究。与相关专家一道，我们的目标是制定一套共识建议，反映潜在参与者的价值观和优先事项，以指导社交媒体的使用。
方法：我们进行了三轮，修改后的Delphi由三个在线调查和三个电话会议组成。多样化，国际德尔福小组由16名专家组成，他们有生活经验（n=10）和专业经验（n=6）。共识先验定义为≥70%的一致性。
结果：26项达成共识。在第一轮中，有两个项目达成了共识：封闭社交媒体团体的道德考虑（88％）和社交媒体用户与不在社交媒体上的联系人分享预防内容（79％）。在第二轮中，有九个项目达成共识，与错误信息有关(79%)，污名（93%），以及社交媒体传播的其他关键方面。修订后,15个项目在最后一轮达成共识。这些项目包括：确定研究人员何时应该参与，管理封闭的社交媒体团体，短格式内容排名，优先考虑摘要和多媒体资源，以及首选语言的排名。关于痴呆症患者的预防语言的一项内容尚未达成共识。最后的共识项目形成了一套新的建议，我们组织了七个社交媒体用例。这些用例包括建立社交媒体页面或社区，处理网上错误信息，积极挑战污名，处理困难的在线互动，向公众介绍新的研究，帮助学习招聘，和写帖子时的预防语言。
结论：这些共识建议可以帮助痴呆症预防研究人员利用社交媒体用于公众参与的目的，并维护痴呆症研究和更广泛社区特有的规范和价值观。
■我们与研究和社区专家一起创建了社交媒体推荐。建议涵盖痴呆症预防研究的关键伦理考虑因素。领域包括错误信息，污名,信息更新，和首选语言。完整的共识建议被组织成七个社交媒体用例。
方法：我们进行了三轮，修改后的Delphi由三个在线调查和三个电话会议组成。多样化，国际德尔福小组由16名专家组成，他们有生活经验（n=10）和专业经验（n=6）。共识先验定义为≥70%的一致性。
结果：26项达成共识。在第一轮中，有两个项目达成了共识：封闭社交媒体团体的道德考虑（88％）和社交媒体用户与不在社交媒体上的联系人分享预防内容（79％）。在第二轮中，有九个项目达成共识，与错误信息有关(79%)，污名（93%），以及社交媒体传播的其他关键方面。修订后,15个项目在最后一轮达成共识。这些项目包括：确定研究人员何时应该参与，管理封闭的社交媒体团体，短格式内容排名，优先考虑摘要和多媒体资源，以及首选语言的排名。关于痴呆症患者的预防语言的一项内容尚未达成共识。最后的共识项目形成了一套新的建议，我们组织了七个社交媒体用例。这些用例包括建立社交媒体页面或社区，处理网上错误信息，积极挑战污名，处理困难的在线互动，向公众介绍新的研究，帮助学习招聘，和写帖子时的预防语言。
结论：这些共识建议可以帮助痴呆症预防研究人员利用社交媒体用于公众参与的目的，并维护痴呆症研究和更广泛社区特有的规范和价值观。
■我们与研究和社区专家一起创建了社交媒体推荐。建议涵盖痴呆症预防研究的关键伦理考虑因素。领域包括错误信息，污名,信息更新，和首选语言。完整的共识建议被组织成七个社交媒体用例。
