关键词: Black autism equity intersectionality transition

来  源:   DOI:10.1089/aut.2023.0041   PDF(Pubmed)

Abstract:
Little evidence is available to provide context for understanding the experiences of parents and youth from historically marginalized groups as they age into adulthood, especially in regard to the transition experiences of Black autistic transition-age youth and their family members. This commentary builds upon recent publications that inform intersectional understandings of Black autistic experiences in America, and outlines research recommendations to better address the specific needs of Black autistic transition-age youth. Given the noted deficits in transition research and the transition process in regard to the experiences of Black autistic youth, we provide recommendations for improving autism transition research. We propose changes that are necessary to achieve equitable research processes, which could inform the design of targeted interventions to improve transition experiences for Black autistic youth.
Why is this topic important? There is little research on the experiences of Black autistic youth and young adults during the transition to adulthood. It is important to study this group of people, because they may have more unmet needs for services and supports during the transition years. They may have a harder time achieving employment or continuing their education because of the long-term effects of racism in communities. What is the purpose of this article? To add to what is known on this topic, we report on recent studies about Black autistic youth during the transition to adulthood. We provide research and practice recommendations. What personal or professional perspectives do the authors bring to this topic? The authors of this study are allistic researchers and research assistants who are members of a research team working on, or advising, autism transition research. A.M.R. is a White researcher, and a family member of autistic individuals, who studies the transition experiences of autistic youth. S.V. is a Black, nonbinary, public health social worker with experience in Black LGBTQIA+ mental health. E.-D.W. is a Black researcher who studies the mental health of Black autistic youth. H.S. is a White qualitative sociologist with experience studying the transition to young adulthood from the critical disability lens. K.A.A. is a mixed-race researcher who is White-presenting and who studies the intersectionality of autism, race, and poverty. T.M.H. is a Black researcher whose work focuses on intersecting identities, with a special focus on race and autism, and the way those intersections impact the lived experiences of individuals. L.L.S. is a White researcher with experience in studying health services disparities. The positionality of this team is that we identify as nonautistic researchers who seek to support increased focus on Black autistic youth and adults within autism research. What is already known about this topic? We know that there has been little attention given to studying how Black autistic youth and their families experience the transition to adulthood. We also know they are less likely to receive information about the transition in a timely manner. These disparities are unacceptable. What do the authors recommend? We need to find better ways to learn about the barriers that Black autistic youth face as they become adults. We also need to learn about the strengths they use to overcome these barriers. That information will help us to design ways to improve transitions. This work should be done with Black autistic youth and their families as partners. Researchers should use different approaches to invite Black youth into their studies. When researchers are designing studies they should think about the connections between people\'s identities such as being autistic, Black, or poor, because these identities combine to make discrimination worse. It would be helpful if the leaders of academic departments placed value on hiring Black and autistic scholars and encouraged more diversity within research. How will these recommendations help autistic adults now or in the future? It is possible to make changes in how Black autistic transition-age youth move through transition. However, the same solutions will not work for all communities. This is because different communities experience different barriers to receiving information and services during the transition years. We hope these recommendations will help researchers to think about how they can improve the participation of Black autistic youth and their family members.
摘要:
几乎没有证据可以为了解来自历史上边缘化群体的父母和青年在成年后的经历提供背景,特别是关于黑人自闭症过渡年龄青年及其家庭成员的过渡经历。这篇评论建立在最近的出版物上,这些出版物为美国对黑人自闭症经历的交叉理解提供了信息,并概述了研究建议,以更好地满足黑人自闭症过渡年龄青年的具体需求。鉴于黑人自闭症青年在转型研究和转型过程中的不足,我们为改善自闭症转型研究提供建议.我们提出了实现公平研究过程所必需的变革,这可以为设计有针对性的干预措施提供信息,以改善黑人自闭症青年的过渡体验。
为什么这个话题很重要?关于黑人自闭症青年和年轻人在向成年过渡期间的经历的研究很少。研究这群人很重要,因为在过渡期间,他们可能对服务和支持有更多未满足的需求。由于种族主义在社区中的长期影响,他们可能更难获得就业或继续接受教育。本文的目的是什么?我们报道了最近关于黑人自闭症青年向成年过渡的研究。我们提供研究和实践建议。作者为这一主题带来了什么个人或专业观点?这项研究的作者是alistic研究人员和研究助理,他们是研究团队的成员,或建议,自闭症转型研究。A.M.R.是白人研究员,和自闭症患者的家庭成员,研究自闭症青年的转型经历。S.V.是黑色的,非二进制,具有黑人LGBTQIA+心理健康经验的公共卫生社会工作者。E.-D.W.是一名黑人研究员,研究黑人自闭症青年的心理健康。H.S.是一位白人定性社会学家,具有从严重残疾镜头向年轻成年过渡的经验。K.A.A.是一位混血研究人员,他是白人,研究自闭症的交叉性,种族,和贫困。T.M.H.是一位黑人研究员,他的工作重点是交叉身份,特别关注种族和自闭症,以及这些交叉点影响个人生活体验的方式。L.L.S.是一位白人研究人员,在研究卫生服务差异方面具有丰富的经验。该团队的定位是,我们确定为非自闭症研究人员,他们寻求支持自闭症研究中对黑人自闭症青年和成年人的关注。关于这个话题已经知道了什么?我们知道,很少有人关注研究黑人自闭症青年及其家庭如何经历成年的过渡。我们还知道,他们不太可能及时收到有关过渡的信息。这些差距是不可接受的。作者有什么建议?我们需要找到更好的方法来了解黑人自闭症青年成年后面临的障碍。我们还需要了解他们用来克服这些障碍的优势。这些信息将帮助我们设计改进过渡的方法。这项工作应该与黑人自闭症青年及其家人作为伙伴一起完成。研究人员应该使用不同的方法邀请黑人青年参加他们的研究。当研究人员设计研究时,他们应该考虑人的身份之间的联系,比如自闭症患者,黑色,或贫穷,因为这些身份结合在一起使歧视变得更糟。如果学术部门的领导重视雇用黑人和自闭症学者,并鼓励研究领域的更多多样性,那将是有帮助的。这些建议将如何帮助现在或将来的自闭症成年人?有可能改变黑人自闭症过渡年龄的年轻人如何过渡。然而,同样的解决方案并不适用于所有社区。这是因为在过渡期间,不同的社区在获得信息和服务方面遇到了不同的障碍。我们希望这些建议将有助于研究人员思考如何提高黑人自闭症青年及其家庭成员的参与度。
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