PDF(Pubmed)
Abstract：
This paper aims to map the daily functional characteristics of people diagnosed with essential tremor (ET) based on their subjective self-reports. In addition, we provide objective measurements of a cup-drinking task. This study involved 20 participants diagnosed with ET who completed the Columbia University Assessment of Disability in Essential Tremor (CADET) questionnaire that included five additional tasks related to digital equipment operation we wrote. Participants also described task-performance modifications they implemented. To create objective personal performance profiles, they performed a cup-drinking task while being monitored using a sensor measurement system. The CADET\'s subjective self-report results indicate that the most prevalent tasks participants reported as having difficulty with or requiring modifications were writing, threading a needle, carrying a cup, using a spoon, pouring, and taking a photo or video on a mobile phone. Analysis of participants\' modifications revealed that holding the object with two hands or with one hand supporting the other were the most prevalent types. No significant correlation was found between the CADET total scores and the cup drinking objective measures. Capturing patients\' perspectives on their functional disability, alongside objective performance measures, is envisioned to contribute to the development of custom-tailored interventions aligned with individual profiles, i.e., patient-based/smart healthcare.
摘要：
本文旨在根据主观自我报告绘制被诊断为特发性震颤（ET）的人的日常功能特征。此外,我们提供了一个客观的测量杯酒的任务。这项研究涉及20名被诊断为ET的参与者，他们完成了哥伦比亚大学原发性震颤残疾评估（CADET）问卷，其中包括与我们撰写的数字设备操作相关的五项额外任务。参与者还描述了他们实施的任务绩效修改。要创建客观的个人绩效配置文件，他们在使用传感器测量系统进行监控的同时执行了饮用杯子的任务。CADET的主观自我报告结果表明，参与者报告为难以修改或需要修改的最普遍的任务是写作，穿针，拿着一个杯子,用勺子,浇筑,并在手机上拍摄照片或视频。对参与者修改的分析表明，用两只手或一只手支撑另一只手握住物体是最普遍的类型。CADET总分与杯饮客观指标之间没有显着相关性。捕捉患者对其功能残疾的看法，除了客观的绩效衡量标准，设想为开发与个人概况相一致的定制干预措施做出贡献，即，基于患者/智能医疗。
