Abstract：
BACKGROUND: The medical community has shown a growing interest in developing methods for measuring and comparing objective patient outcomes coupled with subjective patient assessments. Questionnaires enable healthcare professionals to obtain the patient\'s perspective about their experienced vestibular schwannomas (VS) symptoms quickly. To date, in Poland, a cross-cultural adapted version of a disease-specific questionnaire for the measurement of quality of life (QoL) in patients with VS has not been produced.
OBJECTIVE: This study aimed to adapt the questionnaire evaluating disease-specific QoL in patients with VS (Penn Acoustic Neuroma Quality-of-Life Scale; PANQOL) to Polish and evaluate its psychometric properties.
METHODS: One-hundred twenty-four patients aged between 24 and 85 years (mean (M) = 60.17 ±standard deviation (SD) = 13.27) diagnosed with VS and treated with Gamma Knife were included in the study. We used a questionnaire translated from English into Polish by a bilingual professional, verified through a back-translation. The final version consisted of 26 items. The internal consistency of the Polish version of the PANQOL scale domains was measured using the Cronbach\'s alpha (α). To verify the validity of PANQOL subscales, a correlation analysis was conducted between the domains of PANQOL and other questionnaires, including the Assessment of Quality of Life (AQoL-8D), the Glasgow Benefit Inventory (GBI), the 5 Well-Being Index (WHO-5), the Skarzynski Tinnitus Scale (STS) for the presence of dizziness, and the Gardner-Robertson classes.
RESULTS: The majority of PANQOL domains showed excellent or good internal consistency (for a PANQOL total of 0.934; for subscales in the range of 0.916-0.424). Our analysis showed strong correlations between the total PANQOL score and AQoL-8D utility score, as well as between the subscales. We observed weak to moderately significant relationships between GBI and PANQOL domains (r = 0.18-0.43), the WHO-5 (r = 0.18-0.56) and the STS scale (r = -0.40- -0.19).
CONCLUSIONS: The results demonstrated that the POL-PANQOL is a reliable and valid questionnaire for measuring QoL.
OBJECTIVE: This study aimed to adapt the questionnaire evaluating disease-specific QoL in patients with VS (Penn Acoustic Neuroma Quality-of-Life Scale; PANQOL) to Polish and evaluate its psychometric properties.
METHODS: One-hundred twenty-four patients aged between 24 and 85 years (mean (M) = 60.17 ±standard deviation (SD) = 13.27) diagnosed with VS and treated with Gamma Knife were included in the study. We used a questionnaire translated from English into Polish by a bilingual professional, verified through a back-translation. The final version consisted of 26 items. The internal consistency of the Polish version of the PANQOL scale domains was measured using the Cronbach\'s alpha (α). To verify the validity of PANQOL subscales, a correlation analysis was conducted between the domains of PANQOL and other questionnaires, including the Assessment of Quality of Life (AQoL-8D), the Glasgow Benefit Inventory (GBI), the 5 Well-Being Index (WHO-5), the Skarzynski Tinnitus Scale (STS) for the presence of dizziness, and the Gardner-Robertson classes.
RESULTS: The majority of PANQOL domains showed excellent or good internal consistency (for a PANQOL total of 0.934; for subscales in the range of 0.916-0.424). Our analysis showed strong correlations between the total PANQOL score and AQoL-8D utility score, as well as between the subscales. We observed weak to moderately significant relationships between GBI and PANQOL domains (r = 0.18-0.43), the WHO-5 (r = 0.18-0.56) and the STS scale (r = -0.40- -0.19).
CONCLUSIONS: The results demonstrated that the POL-PANQOL is a reliable and valid questionnaire for measuring QoL.
摘要：
背景：医学界对开发用于测量和比较客观患者结果以及主观患者评估的方法越来越感兴趣。问卷调查使医疗保健专业人员能够快速获得患者对其经历的前庭神经鞘瘤（VS）症状的看法。迄今为止,在波兰,尚未产生用于测量VS患者生活质量(QoL)的疾病特异性问卷的跨文化版本.
目的：这项研究旨在使评估VS患者疾病特异性QoL的问卷（PennAcousticNeuromaLifeQuality-of-LifeScale;PANQOL）适应波兰并评估其心理测量特性。
方法：本研究纳入诊断为VS并接受伽玛刀治疗的24名患者，年龄在24至85岁之间（平均值（M）=60.17±标准差（SD）=13.27）。我们使用了一份由双语专业人士从英语翻译成波兰语的问卷，通过回译验证。最终版本包含26个项目。使用Cronbach'salpha（α）测量了波兰版本的PANQOL量表域的内部一致性。为了验证PANQOL子量表的有效性，在PANQOL和其他问卷的领域之间进行了相关性分析，包括生活质量评估(AQoL-8D)，格拉斯哥福利清单(GBI)，5幸福指数(WHO-5)，Skarzynski耳鸣量表（STS）用于头晕的存在，和加德纳-罗伯逊班。
结果：大多数PANQOL域显示出优异或良好的内部一致性（PANQOL总计0.934；子量表范围为0.916-0.424）。我们的分析表明，PANQOL总得分和AQoL-8D效用得分之间存在很强的相关性，以及分量表之间。我们观察到GBI和PANQOL域之间的弱至中等显著关系(r=0.18-0.43)，WHO-5(r=0.18-0.56)和STS量表(r=-0.40--0.19)。
结论：结果表明，POL-PANQOL是测量QoL的可靠有效问卷。
目的：这项研究旨在使评估VS患者疾病特异性QoL的问卷（PennAcousticNeuromaLifeQuality-of-LifeScale;PANQOL）适应波兰并评估其心理测量特性。
方法：本研究纳入诊断为VS并接受伽玛刀治疗的24名患者，年龄在24至85岁之间（平均值（M）=60.17±标准差（SD）=13.27）。我们使用了一份由双语专业人士从英语翻译成波兰语的问卷，通过回译验证。最终版本包含26个项目。使用Cronbach'salpha（α）测量了波兰版本的PANQOL量表域的内部一致性。为了验证PANQOL子量表的有效性，在PANQOL和其他问卷的领域之间进行了相关性分析，包括生活质量评估(AQoL-8D)，格拉斯哥福利清单(GBI)，5幸福指数(WHO-5)，Skarzynski耳鸣量表（STS）用于头晕的存在，和加德纳-罗伯逊班。
结果：大多数PANQOL域显示出优异或良好的内部一致性（PANQOL总计0.934；子量表范围为0.916-0.424）。我们的分析表明，PANQOL总得分和AQoL-8D效用得分之间存在很强的相关性，以及分量表之间。我们观察到GBI和PANQOL域之间的弱至中等显著关系(r=0.18-0.43)，WHO-5(r=0.18-0.56)和STS量表(r=-0.40--0.19)。
结论：结果表明，POL-PANQOL是测量QoL的可靠有效问卷。
