Abstract：
OBJECTIVE: To identify and map the evidence on interventions facilitating the involvement of relatives of patients with an acquired brain injury (ABI) or a malignant brain tumour (MBT).
BACKGROUND: An ABI or a MBT are severe diseases that have profound impact on the lives of patients and their relatives. The well-being of the patient may be deteriorated, and relatives may experience a new role and changing caregiving tasks. Involvement of relatives seems essential, and there is a need for identifying interventions facilitating the involvement.
METHODS: Scoping review.
METHODS: The Joanna Briggs Institute methodology was used in this review and the review was reported in accordance with the PRISMA extension for scoping reviews.
METHODS: The literature search was conducted in MEDLINE, Embase, CINAHL and Cochrane Library. Reference lists of included studies, Google Scholar and Web of Science were also searched.
RESULTS: In total, 46 studies were included of which 36 (78%) involved patients with stroke. Median duration of study interventions were 8 weeks, and nurses were involved as providers of the intervention in 23 (50%) studies. Thirty (65%) studies used a multicomponent intervention. Thirty-five unique outcomes were identified using 60 unique outcome measurements.
CONCLUSIONS: Interventions facilitating the involvement of relatives differed importantly in key characteristics of study interventions, and in relation to the context in which they were used. There was no consensus regarding choice of outcomes and outcome measurements. Our results highlight the complexity of interventions in this field.
UNASSIGNED: To our knowledge this is the first scoping review examining interventions facilitating the involvement of relatives of patients with an acquired brain injury or a malignant brain tumour. This review suggests a clear definition of \'involvement\' in future research and there is a need of development of a core outcome set for use in interventions facilitating the involvement.
UNASSIGNED: The scoping review was reported in accordance with the PRISMA extension for scoping reviews.
UNASSIGNED: The authors decided to undertake this scoping review without patient and public contribution. However, the protocol was published prior to review conduct and available to the public but we did not receive any comments on it.
BACKGROUND: An ABI or a MBT are severe diseases that have profound impact on the lives of patients and their relatives. The well-being of the patient may be deteriorated, and relatives may experience a new role and changing caregiving tasks. Involvement of relatives seems essential, and there is a need for identifying interventions facilitating the involvement.
METHODS: Scoping review.
METHODS: The Joanna Briggs Institute methodology was used in this review and the review was reported in accordance with the PRISMA extension for scoping reviews.
METHODS: The literature search was conducted in MEDLINE, Embase, CINAHL and Cochrane Library. Reference lists of included studies, Google Scholar and Web of Science were also searched.
RESULTS: In total, 46 studies were included of which 36 (78%) involved patients with stroke. Median duration of study interventions were 8 weeks, and nurses were involved as providers of the intervention in 23 (50%) studies. Thirty (65%) studies used a multicomponent intervention. Thirty-five unique outcomes were identified using 60 unique outcome measurements.
CONCLUSIONS: Interventions facilitating the involvement of relatives differed importantly in key characteristics of study interventions, and in relation to the context in which they were used. There was no consensus regarding choice of outcomes and outcome measurements. Our results highlight the complexity of interventions in this field.
UNASSIGNED: To our knowledge this is the first scoping review examining interventions facilitating the involvement of relatives of patients with an acquired brain injury or a malignant brain tumour. This review suggests a clear definition of \'involvement\' in future research and there is a need of development of a core outcome set for use in interventions facilitating the involvement.
UNASSIGNED: The scoping review was reported in accordance with the PRISMA extension for scoping reviews.
UNASSIGNED: The authors decided to undertake this scoping review without patient and public contribution. However, the protocol was published prior to review conduct and available to the public but we did not receive any comments on it.
摘要：
目的：确定并绘制促进获得性脑损伤（ABI）或恶性脑肿瘤（MBT）患者亲属受累的干预措施的证据。
背景：ABI或MBT是严重的疾病，对患者及其亲属的生活产生深远影响。病人的健康状况可能会恶化，和亲戚可能会经历一个新的角色和变化的照顾任务。亲属的参与似乎是必不可少的，并且有必要确定促进参与的干预措施。
方法：范围审查。
方法：本综述使用了JoannaBriggsInstitute方法，并根据PRISMA扩展范围审查报告了该综述。
方法：文献检索在MEDLINE,Embase,CINAHL和Cochrane图书馆。纳入研究的参考清单，还搜索了GoogleScholar和WebofScience。
结果：总计，纳入46项研究，其中36项（78%）涉及卒中患者。研究干预的中位持续时间为8周，在23项(50%)研究中,护士作为干预提供者参与.30项(65%)研究使用了多组分干预。使用60个独特的结果测量结果确定了35个独特的结果。
结论：促进亲属参与的干预措施在研究干预措施的关键特征上存在重要差异，以及与使用它们的上下文有关。在结果选择和结果测量方面没有达成共识。我们的结果强调了该领域干预措施的复杂性。
■据我们所知，这是第一次范围审查，检查促进获得性脑损伤或恶性脑肿瘤患者亲属参与的干预措施。这篇综述提出了在未来研究中对“参与”的明确定义，并且需要开发用于促进参与的干预措施的核心结果集。
■范围审查是根据PRISMA范围审查扩展报告的。
■作者决定在没有患者和公众贡献的情况下进行这项范围审查。然而,该方案是在审查之前发布的，并向公众开放，但我们没有收到任何意见。
背景：ABI或MBT是严重的疾病，对患者及其亲属的生活产生深远影响。病人的健康状况可能会恶化，和亲戚可能会经历一个新的角色和变化的照顾任务。亲属的参与似乎是必不可少的，并且有必要确定促进参与的干预措施。
方法：范围审查。
方法：本综述使用了JoannaBriggsInstitute方法，并根据PRISMA扩展范围审查报告了该综述。
方法：文献检索在MEDLINE,Embase,CINAHL和Cochrane图书馆。纳入研究的参考清单，还搜索了GoogleScholar和WebofScience。
结果：总计，纳入46项研究，其中36项（78%）涉及卒中患者。研究干预的中位持续时间为8周，在23项(50%)研究中,护士作为干预提供者参与.30项(65%)研究使用了多组分干预。使用60个独特的结果测量结果确定了35个独特的结果。
结论：促进亲属参与的干预措施在研究干预措施的关键特征上存在重要差异，以及与使用它们的上下文有关。在结果选择和结果测量方面没有达成共识。我们的结果强调了该领域干预措施的复杂性。
■据我们所知，这是第一次范围审查，检查促进获得性脑损伤或恶性脑肿瘤患者亲属参与的干预措施。这篇综述提出了在未来研究中对“参与”的明确定义，并且需要开发用于促进参与的干预措施的核心结果集。
■范围审查是根据PRISMA范围审查扩展报告的。
■作者决定在没有患者和公众贡献的情况下进行这项范围审查。然而,该方案是在审查之前发布的，并向公众开放，但我们没有收到任何意见。
