关键词: Multiple sclerosis assistive devices assistive technology community daily activities engagement review

来  源:   DOI:10.1080/17483107.2024.2385052

Abstract:
Assistive technology (AT) provides persons with Multiple Sclerosis (PwMS) ability to engage in daily activities, however acquiring AT can be challenging. Understanding current state of knowledge about perspectives and use of AT by PwMS may support critical thinking about AT acquisition process. The aim of this scoping review was to map what is known about AT use by PwMS, to identify gaps in knowledge to guide future research and practice for AT matching. A scoping review of qualitative research on perspectives and use of AT by PwMS searched four databases (Medline, CINAHL, PsychNet, and Engineering Village). Papers included focused on non-institutional settings, addressed participant\'s feelings/perceptions/experiences, and were in English. Initial search October 2021, updated 2022 and 2023. Two reviewers conducted screening, review, and extraction, with a third resolving disagreements. Data extraction guided by the Canadian Model of Occupational Performance and Engagement, categorised AT use by productivity, self-care, and/or leisure occupations. Covidence® was used for extraction. Findings were exported into a spreadsheet to facilitate thematic analysis. Search identified 22 peer-reviewed journals and 11 consumer publications (n = 33). Most common AT was mobility devices. Primary purposes were self-care and leisure. Common use included functional mobility, transportation, personal care, household management, recreation, and socialisation. Perceptions focused on AT need, adjusting to AT, influencing factors, performance and engagement improvements, and seeking acquisition advice. Lack of research on experiences and use of AT beyond mobility equipment, and for engagement of daily activities. Evidence provides some insights for future directions and implications to support AT acquisition for PwMS.
Persons with Multiple Sclerosis use a range of assistive technologies to enable them to engage in daily life activities categorised by leisure, self-care, and productivity.Perceptions focused on their need for assistive technologies, adjusting or change experienced due to assistive technologies, experience with influential factors (funding, environment), and seeking advice.Lack of current qualitative evidence on assistive technology use by persons with Multiple Sclerosis, specifically on devices such as dictus band, raised toilet, walking poles, reminder systems and calendars, grabber, adjustable bed, virtual and voice activated assistants, tub transfer board, and home modifications for use by persons with Multiple Sclerosis.
摘要:
辅助技术(AT)为患有多发性硬化症(PwMS)的人提供从事日常活动的能力,然而,收购AT可能是具有挑战性的。了解有关PwMS对AT的观点和使用的当前知识状态可能会支持对AT获取过程的批判性思考。此范围审查的目的是绘制PwMS对AT使用的了解,确定知识差距,以指导未来AT匹配的研究和实践。PwMS对AT的观点和使用的定性研究的范围审查搜索了四个数据库(Medline,CINAHL,PsychNet,和工程村)。包括侧重于非机构环境的论文,解决参与者的感受/看法/经历,并且是英语。初始搜索2021年10月,更新2022年和2023年。两名审稿人进行了筛选,review,和提取,第三解决分歧。以加拿大职业绩效和敬业度模型为指导的数据提取,按生产力分类的AT使用,自我照顾,和/或休闲职业。Covidence®用于提取。调查结果被导出到电子表格中,以促进专题分析。搜索确定了22种同行评审的期刊和11种消费者出版物(n=33)。最常见的AT是移动设备。主要目的是自我保健和休闲。常见用途包括功能移动性,交通运输,个人护理,家庭管理,娱乐,和社会化。专注于AT需求的感知,调整到AT,影响因素,性能和参与度的改进,并寻求收购建议。缺乏对移动设备以外的AT的经验和使用的研究,并参与日常活动。证据为支持AT收购PwMS的未来方向和影响提供了一些见解。
多发性硬化症患者使用一系列辅助技术,使他们能够从事休闲分类的日常生活活动,自我照顾,和生产力。人们的看法集中在他们对辅助技术的需求上,由于辅助技术而经历的调整或改变,具有影响因素的经验(资金,环境),寻求建议。目前缺乏有关多发性硬化症患者使用辅助技术的定性证据,特别是在诸如dictus带之类的设备上,凸起的厕所,步行杆,提醒系统和日历,grabber,可调节床,虚拟和语音激活助手,浴缸转移板,和家庭改造,供多发性硬化症患者使用。
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