PDF(Pubmed)
Abstract：
(1) Background: A significant proportion of cancer survivors report experiencing a cognitive \'fog\' that affects their ability to think coherently and quickly, and reason with clarity. This has been referred to as cancer-related cognitive impairment (CRCI). CRCI has extensive impacts on the daily lives of people living with or beyond cancer, including occupational, social, and psychological functioning. Oncology health professionals report feeling under-resourced to effectively assess the needs of an individual with CRCI and then provide optimal care and referral. (2) Methods: The objective of this project is to develop and provide an initial validation of the first purpose-built unmet needs assessment for CRCI: the Unmet Needs Assessment of Cancer-Related Cognitive Impairment Impact (COG-IMPACT). We will use a multiple-stage, co-design, mixed-methods approach to develop and provide an initial validation of the COG-IMPACT. (3) Results: The primary anticipated result of this research is the production of the COG-IMPACT, the first purpose-built unmet needs assessment for CRCI. The assessment could be used by health professionals to understand the unmet needs and facilitate optimal care and referral for cancer survivors, by survivors to elucidate their supportive needs and advocate for their care, and by researchers to examine the correlates of unmet needs relating to CRCI, as well as how best to support people with CRCI.
摘要：
（1）背景：相当比例的癌症幸存者报告经历了认知“雾”，这影响了他们连贯和快速思考的能力，和清晰的理性。这被称为癌症相关的认知障碍(CRCI)。CRCI对癌症患者的日常生活产生广泛影响，包括职业,社会,和心理功能。肿瘤学健康专业人员报告感到资源不足，无法有效评估CRCI患者的需求，然后提供最佳护理和转诊。（2）方法：该项目的目的是开发并提供对CRCI的第一个专门构建的未满足需求评估的初步验证：癌症相关认知障碍影响的未满足需求评估（COG-IMPACT）。我们将使用多阶段，共同设计，混合方法方法开发并提供COG-IMPACT的初步验证。（3）结果：本研究的主要预期结果是产生COG-IMPACT，CRCI首次专门构建的未满足需求评估。卫生专业人员可以使用该评估来了解未满足的需求，并为癌症幸存者提供最佳护理和转诊。由幸存者阐明他们的支持需求并倡导他们的护理，并由研究人员检查与CRCI相关的未满足需求的相关性，以及如何最好地支持CRCI的人们。
