PDF(Pubmed)
Abstract：
OBJECTIVE: To investigate the views, hopes and concerns of patients living with glaucoma and age-related macular degeneration (AMD) regarding vision home-monitoring.
METHODS: Qualitative study using focus groups and questionnaires. Participants were given three disease-relevant home-monitoring tests to try. The tests consisted of three visual field tests for the glaucoma groups (Melbourne Rapid Fields, Eyecatcher, Visual Fields Fast) and three acuity and/or contrast-sensitivity tests for AMD groups (Alleye, PopCSF, SpotChecks). Focus group data were thematically analysed.
METHODS: University meeting rooms in London, UK.
METHODS: Eight people with glaucoma (five women, median age 74) and seven people with AMD (four women, median age 77) volunteered through two UK-based charities. Participants were excluded if they did not self-report a diagnosis of glaucoma or AMD or if they lived further than a 1-hour travel distance from the university (to ensure minimal travel burden on participants).
RESULTS: Six themes emerged from focus groups, the two most frequently referenced being: \'concerns about home-monitoring\' and \'patient and practitioner access to results\'. Overall, participants believed home-monitoring could provide patients with a greater sense of control, but also expressed concerns, including: the possibility of home-monitoring replacing face-to-face appointments; the burden placed on clinicians by the need to process additional data; struggles to keep up with requisite technologies; and potential anxiety from seeing worrying results. Most devices were scored highly for usability, though several practical improvements were suggested.
CONCLUSIONS: Patients with mild-to-moderate glaucoma/AMD expect vision home-monitoring to be beneficial, but have significant concerns about its potential implementation.
METHODS: Qualitative study using focus groups and questionnaires. Participants were given three disease-relevant home-monitoring tests to try. The tests consisted of three visual field tests for the glaucoma groups (Melbourne Rapid Fields, Eyecatcher, Visual Fields Fast) and three acuity and/or contrast-sensitivity tests for AMD groups (Alleye, PopCSF, SpotChecks). Focus group data were thematically analysed.
METHODS: University meeting rooms in London, UK.
METHODS: Eight people with glaucoma (five women, median age 74) and seven people with AMD (four women, median age 77) volunteered through two UK-based charities. Participants were excluded if they did not self-report a diagnosis of glaucoma or AMD or if they lived further than a 1-hour travel distance from the university (to ensure minimal travel burden on participants).
RESULTS: Six themes emerged from focus groups, the two most frequently referenced being: \'concerns about home-monitoring\' and \'patient and practitioner access to results\'. Overall, participants believed home-monitoring could provide patients with a greater sense of control, but also expressed concerns, including: the possibility of home-monitoring replacing face-to-face appointments; the burden placed on clinicians by the need to process additional data; struggles to keep up with requisite technologies; and potential anxiety from seeing worrying results. Most devices were scored highly for usability, though several practical improvements were suggested.
CONCLUSIONS: Patients with mild-to-moderate glaucoma/AMD expect vision home-monitoring to be beneficial, but have significant concerns about its potential implementation.
摘要：
目的：调查观点，青光眼和年龄相关性黄斑变性（AMD）患者对家庭视力监测的希望和担忧。
方法：使用焦点小组和问卷调查的定性研究。参与者接受了三项与疾病相关的家庭监测测试。该测试包括针对青光眼组的三项视野测试（墨尔本RapidFields，Eyecatcher,视野快速）和AMD组的三项敏锐度和/或对比敏感度测试（Alleye，PopCSF,SpotChecks）。对焦点组数据进行了主题分析。
方法：伦敦的大学会议室，英国。
方法：8名青光眼患者（5名女性，平均年龄74岁)和7名AMD患者(4名女性，中位数年龄77）通过两个英国慈善机构自愿参加。如果参与者没有自我报告青光眼或AMD的诊断，或者他们距离大学超过1小时的旅行距离（以确保参与者的旅行负担最小），则被排除在外。
结果：焦点小组提出了六个主题，最常引用的两个是：“对家庭监控的担忧”和“患者和医生对结果的访问”。总的来说,参与者认为家庭监控可以为患者提供更大的控制感，但也表达了担忧，包括:家庭监控取代面对面预约的可能性;需要处理额外数据给临床医生带来的负担;努力跟上必要的技术;以及看到令人担忧的结果的潜在焦虑。大多数设备的可用性得分很高，尽管建议了一些实际的改进。
结论：轻度至中度青光眼/AMD患者期望家庭视力监测是有益的，但对其潜在的实施有很大的担忧。
方法：使用焦点小组和问卷调查的定性研究。参与者接受了三项与疾病相关的家庭监测测试。该测试包括针对青光眼组的三项视野测试（墨尔本RapidFields，Eyecatcher,视野快速）和AMD组的三项敏锐度和/或对比敏感度测试（Alleye，PopCSF,SpotChecks）。对焦点组数据进行了主题分析。
方法：伦敦的大学会议室，英国。
方法：8名青光眼患者（5名女性，平均年龄74岁)和7名AMD患者(4名女性，中位数年龄77）通过两个英国慈善机构自愿参加。如果参与者没有自我报告青光眼或AMD的诊断，或者他们距离大学超过1小时的旅行距离（以确保参与者的旅行负担最小），则被排除在外。
结果：焦点小组提出了六个主题，最常引用的两个是：“对家庭监控的担忧”和“患者和医生对结果的访问”。总的来说,参与者认为家庭监控可以为患者提供更大的控制感，但也表达了担忧，包括:家庭监控取代面对面预约的可能性;需要处理额外数据给临床医生带来的负担;努力跟上必要的技术;以及看到令人担忧的结果的潜在焦虑。大多数设备的可用性得分很高，尽管建议了一些实际的改进。
结论：轻度至中度青光眼/AMD患者期望家庭视力监测是有益的，但对其潜在的实施有很大的担忧。
