关键词: FASD PRISMA Preferred Reporting Items for Systematic Reviews and Meta-Analyses accessibility alcohol alcohol intake caregiver caregivers developmental disability diagnosis fetal fetal alcohol fetal alcohol spectrum disorder intervention lifelong support mobile phone pregnant pregnant substance scoping review support technology

Mesh : Humans Fetal Alcohol Spectrum Disorders / therapy diagnosis Caregivers / education psychology Female

来  源:   DOI:10.2196/51074   PDF(Pubmed)

Abstract:
UNASSIGNED: Fetal alcohol spectrum disorder (FASD) is a common developmental disability that requires lifelong and ongoing support but is often difficult to find due to the lack of trained professionals, funding, and support available. Technology could provide cost-effective, accessible, and effective support to those living with FASD and their caregivers.
UNASSIGNED: In this review, we aimed to explore the use of technology available for supporting people living with FASD and their caregivers.
UNASSIGNED: We conducted a scoping review to identify studies that included technology for people with FASD or their caregivers; focused on FASD; used an empirical study design; were published since 2005; and used technology for assessment, diagnosis, monitoring, or support for people with FASD. We searched MEDLINE, Web of Science, Scopus, Embase, APA PsycINFO, ACM Digital Library, JMIR Publications journals, the Cochrane Library, EBSCOhost, IEEE, study references, and gray literature to find studies. Searches were conducted in November 2022 and updated in January 2024. Two reviewers (CZC and HW) independently completed study selection and data extraction.
UNASSIGNED: In total, 17 studies exploring technology available for people with FASD showed that technology could be effective at teaching skills, supporting caregivers, and helping people with FASD develop skills.
UNASSIGNED: Technology could provide support for people affected by FASD; however, currently there is limited technology available, and the potential benefits are largely unexplored.
摘要:
胎儿酒精谱系障碍(FASD)是一种常见的发育障碍,需要终身和持续的支持,但由于缺乏训练有素的专业人员,通常很难找到。资金,和可用的支持。技术可以提供具有成本效益的,可访问,以及对与FASD生活在一起的人及其照顾者的有效支持。
在这篇评论中,我们的目的是探索使用可用的技术来支持FASD患者及其护理人员。
我们进行了范围审查,以确定包括针对FASD患者或其护理人员的技术的研究;专注于FASD;使用实证研究设计;自2005年以来发表;并使用技术进行评估,诊断,监测,或支持FASD患者。我们搜索了MEDLINE,WebofScience,Scopus,Embase,APAPsycINFO,ACM数字图书馆,JMIR出版物期刊,Cochrane图书馆,EBSCOhost,IEEE,研究参考文献,和灰色文献来寻找研究。搜索于2022年11月进行,并于2024年1月进行了更新。两名评审员(CZC和HW)独立完成研究选择和数据提取。
总共,17项探索FASD患者可用技术的研究表明,技术可以有效地教授技能,支持护理人员,帮助FASD患者发展技能。
技术可以为受FASD影响的人提供支持;然而,目前可用的技术有限,潜在的好处在很大程度上是未开发的。
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