PDF(Pubmed)
Abstract：
BACKGROUND: Individuals with high risk for lung cancer may benefit from lung cancer screening, but there are associated risks as well as benefits. Shared decision-making (SDM) tools with personalized information may provide key support for patients. Understanding patient perspectives on educational tools to facilitate SDM for lung cancer screening may support tool development.
OBJECTIVE: This study aimed to explore patient perspectives related to a SDM tool for lung cancer screening using a qualitative approach.
METHODS: We elicited patient perspectives by showing a provider-facing SDM tool. Focus group interviews that ranged in duration from 1.5 to 2 h were conducted with 23 individuals with high risk for lung cancer. Data were interpreted inductively using thematic analysis to identify patients\' thoughts on and desires for a patient-facing SDM tool.
RESULTS: The findings highlight that patients would like to have educational information related to lung cancer screening. We identified several key themes to be considered in the future development of patient-facing tools: barriers to acceptance, preference against screening and seeking empowerment. One further theme illustrated effects of patient-provider relationship as a limitation to meeting lung cancer screening information needs. Participants also noted several suggestions for the design of technology decision aids.
CONCLUSIONS: These findings suggest that patients desire additional information on lung cancer screening in advance of clinical visits. However, there are several issues that must be considered in the design and development of technology to meet the information needs of patients for lung cancer screening decisions.
UNASSIGNED: Patients, service users, caregivers or members of the public were not involved in the study design, conduct, analysis or interpretation of the data. However, clinical experts in health communication provided detailed feedback on the study protocol, including the focus group approach. The study findings contribute to a better understanding of patient expectations for lung cancer screening decisions and may inform future development of tools for SDM.
OBJECTIVE: This study aimed to explore patient perspectives related to a SDM tool for lung cancer screening using a qualitative approach.
METHODS: We elicited patient perspectives by showing a provider-facing SDM tool. Focus group interviews that ranged in duration from 1.5 to 2 h were conducted with 23 individuals with high risk for lung cancer. Data were interpreted inductively using thematic analysis to identify patients\' thoughts on and desires for a patient-facing SDM tool.
RESULTS: The findings highlight that patients would like to have educational information related to lung cancer screening. We identified several key themes to be considered in the future development of patient-facing tools: barriers to acceptance, preference against screening and seeking empowerment. One further theme illustrated effects of patient-provider relationship as a limitation to meeting lung cancer screening information needs. Participants also noted several suggestions for the design of technology decision aids.
CONCLUSIONS: These findings suggest that patients desire additional information on lung cancer screening in advance of clinical visits. However, there are several issues that must be considered in the design and development of technology to meet the information needs of patients for lung cancer screening decisions.
UNASSIGNED: Patients, service users, caregivers or members of the public were not involved in the study design, conduct, analysis or interpretation of the data. However, clinical experts in health communication provided detailed feedback on the study protocol, including the focus group approach. The study findings contribute to a better understanding of patient expectations for lung cancer screening decisions and may inform future development of tools for SDM.
摘要：
背景：肺癌高危人群可能受益于肺癌筛查，但也有相关的风险和好处。具有个性化信息的共享决策（SDM）工具可以为患者提供关键支持。了解患者对教育工具的看法以促进SDM进行肺癌筛查可能会支持工具开发。
目的：本研究旨在利用定性方法探索与肺癌筛查SDM工具相关的患者观点。
方法：我们通过展示面向提供者的SDM工具，激发了患者的观点。对23名肺癌高危个体进行了为期1.5至2小时的焦点小组访谈。使用主题分析对数据进行归纳解释，以确定患者对面向患者的SDM工具的想法和期望。
结果：研究结果强调患者希望获得与肺癌筛查相关的教育信息。我们确定了在未来开发面向患者的工具时要考虑的几个关键主题：接受障碍，偏爱筛查和寻求赋权。另一个主题说明了患者与提供者关系的影响，这是满足肺癌筛查信息需求的限制。与会者还注意到关于技术决策辅助工具设计的若干建议。
结论：这些研究结果表明，患者希望在临床就诊之前获得有关肺癌筛查的更多信息。然而,在设计和开发技术以满足患者对肺癌筛查决策的信息需求时，必须考虑几个问题。
■患者，服务用户，护理人员或公众没有参与研究设计，行为,分析或解释数据。然而,健康沟通的临床专家对研究方案提供了详细的反馈，包括焦点小组的方法。研究结果有助于更好地理解患者对肺癌筛查决策的期望，并可能为SDM工具的未来发展提供信息。
目的：本研究旨在利用定性方法探索与肺癌筛查SDM工具相关的患者观点。
方法：我们通过展示面向提供者的SDM工具，激发了患者的观点。对23名肺癌高危个体进行了为期1.5至2小时的焦点小组访谈。使用主题分析对数据进行归纳解释，以确定患者对面向患者的SDM工具的想法和期望。
结果：研究结果强调患者希望获得与肺癌筛查相关的教育信息。我们确定了在未来开发面向患者的工具时要考虑的几个关键主题：接受障碍，偏爱筛查和寻求赋权。另一个主题说明了患者与提供者关系的影响，这是满足肺癌筛查信息需求的限制。与会者还注意到关于技术决策辅助工具设计的若干建议。
结论：这些研究结果表明，患者希望在临床就诊之前获得有关肺癌筛查的更多信息。然而,在设计和开发技术以满足患者对肺癌筛查决策的信息需求时，必须考虑几个问题。
■患者，服务用户，护理人员或公众没有参与研究设计，行为,分析或解释数据。然而,健康沟通的临床专家对研究方案提供了详细的反馈，包括焦点小组的方法。研究结果有助于更好地理解患者对肺癌筛查决策的期望，并可能为SDM工具的未来发展提供信息。
