PDF(Pubmed)
Abstract：
BACKGROUND: General Movement Assessment (GMA) is recommended for early detection of risk for cerebral palsy but requires trained clinical experts. We aimed to implement home- and hospital-based filming for remote GMA in a Norwegian high-risk infant cohort, as well as evaluating parents\' experiences in filming their infant at home.
METHODS: This knowledge translational study used a prospective cohort design including participants referred to neurodevelopmental follow-up across three sites in the Central Norway Regional Health Authority. Two home films of the fidgety type of general movements were collected between 12+1-14+6 and 15+1-17+6 weeks after term by parents. An additional film was collected at the hospital between 12+1 and 17+6 weeks after term. The instructional guide for all filming was the In-Motion App standards. Videos were transferred to a remote GMA team and classified as either \"GMA scorable\" or \"GMA not scorable\" based on Prechtl\'s GMA standards. Parents responded to an online survey using a 5-point Likert scale to collect information about their perspectives, experiences, and possible worries by filming their infant at home.
RESULTS: One-hundred-and-two infants from 95 families participated. Ninety-two (96.8%) families transferred 177 home-based videos. Eighty-four (92%) of these had 95 videos taken in their local hospital. All 177 home-videos were \"GMA scorable\" and three (3,1%) out of 95 hospital-based videos were classified as \"GMA not scorable\". Eight families did not respond to the survey and two families did not receive the survey due to a technical error. Seventy-eight (91.7%) respondents agreed or strongly agreed that it was easy to perform home filming and five (5.9%) agreed that they were more worried about their child`s development after filming at home. Almost 80% of respondents agreed that a video for GMA can be taken at home instead of in hospital.
CONCLUSIONS: This study strengthens the clinical implementation of home filming by parents and remote GMA for early detection of CP in high-risk follow-up programs. The implementation of remote GMA has the potential to facilitate early intervention to improve function in children with CP in line with international recommendations.
BACKGROUND: ClinicalTrials.gov ID: NCT04287166 Date of registration: 27/02/2020.
METHODS: This knowledge translational study used a prospective cohort design including participants referred to neurodevelopmental follow-up across three sites in the Central Norway Regional Health Authority. Two home films of the fidgety type of general movements were collected between 12+1-14+6 and 15+1-17+6 weeks after term by parents. An additional film was collected at the hospital between 12+1 and 17+6 weeks after term. The instructional guide for all filming was the In-Motion App standards. Videos were transferred to a remote GMA team and classified as either \"GMA scorable\" or \"GMA not scorable\" based on Prechtl\'s GMA standards. Parents responded to an online survey using a 5-point Likert scale to collect information about their perspectives, experiences, and possible worries by filming their infant at home.
RESULTS: One-hundred-and-two infants from 95 families participated. Ninety-two (96.8%) families transferred 177 home-based videos. Eighty-four (92%) of these had 95 videos taken in their local hospital. All 177 home-videos were \"GMA scorable\" and three (3,1%) out of 95 hospital-based videos were classified as \"GMA not scorable\". Eight families did not respond to the survey and two families did not receive the survey due to a technical error. Seventy-eight (91.7%) respondents agreed or strongly agreed that it was easy to perform home filming and five (5.9%) agreed that they were more worried about their child`s development after filming at home. Almost 80% of respondents agreed that a video for GMA can be taken at home instead of in hospital.
CONCLUSIONS: This study strengthens the clinical implementation of home filming by parents and remote GMA for early detection of CP in high-risk follow-up programs. The implementation of remote GMA has the potential to facilitate early intervention to improve function in children with CP in line with international recommendations.
BACKGROUND: ClinicalTrials.gov ID: NCT04287166 Date of registration: 27/02/2020.
摘要：
背景：全身运动评估（GMA）被推荐用于早期发现脑瘫的风险，但需要训练有素的临床专家。我们的目标是在挪威高危婴儿队列中实施远程GMA的家庭和医院拍摄，以及评估父母在家中拍摄婴儿的经历。
方法：这项知识转化研究使用了前瞻性队列设计，包括在挪威中部地区卫生局的三个地点进行神经发育随访的参与者。父母在足月后的121-146和151-176周之间收集了两张烦躁的一般动作的家庭电影。在足月后12+1和17+6周之间在医院收集另外的膜。所有拍摄的指导指南都是In-MotionApp标准。视频已传输到远程GMA团队，并根据Prechtl的GMA标准将其分类为“GMA可评分”或“GMA不可评分”。家长使用5点Likert量表回应在线调查，以收集有关他们观点的信息，经验,以及在家拍摄婴儿可能带来的担忧。
结果：来自95个家庭的一百一十二名婴儿参加了研究。92个（96.8%）家庭传输了177个家庭视频。其中84（92％）在当地医院拍摄了95个视频。所有177个家庭视频都是“GMA可评分”，而95个医院视频中有3个（3,1％）被归类为“GMA不可评分”。由于技术错误，八个家庭没有对调查做出回应，两个家庭没有收到调查。78名(91.7%)受访者同意或强烈同意家庭拍摄很容易，5名(5.9%)受访者认为他们更担心在家拍摄后孩子的发育。几乎80％的受访者同意GMA的视频可以在家中而不是在医院拍摄。
结论：本研究加强了父母家庭拍摄和远程GMA的临床实施，以在高风险随访计划中早期发现CP。远程GMA的实施有可能促进早期干预，以根据国际建议改善CP儿童的功能。
背景：ClinicalTrials.govID：NCT04287166注册日期：27/02/2020。
方法：这项知识转化研究使用了前瞻性队列设计，包括在挪威中部地区卫生局的三个地点进行神经发育随访的参与者。父母在足月后的121-146和151-176周之间收集了两张烦躁的一般动作的家庭电影。在足月后12+1和17+6周之间在医院收集另外的膜。所有拍摄的指导指南都是In-MotionApp标准。视频已传输到远程GMA团队，并根据Prechtl的GMA标准将其分类为“GMA可评分”或“GMA不可评分”。家长使用5点Likert量表回应在线调查，以收集有关他们观点的信息，经验,以及在家拍摄婴儿可能带来的担忧。
结果：来自95个家庭的一百一十二名婴儿参加了研究。92个（96.8%）家庭传输了177个家庭视频。其中84（92％）在当地医院拍摄了95个视频。所有177个家庭视频都是“GMA可评分”，而95个医院视频中有3个（3,1％）被归类为“GMA不可评分”。由于技术错误，八个家庭没有对调查做出回应，两个家庭没有收到调查。78名(91.7%)受访者同意或强烈同意家庭拍摄很容易，5名(5.9%)受访者认为他们更担心在家拍摄后孩子的发育。几乎80％的受访者同意GMA的视频可以在家中而不是在医院拍摄。
结论：本研究加强了父母家庭拍摄和远程GMA的临床实施，以在高风险随访计划中早期发现CP。远程GMA的实施有可能促进早期干预，以根据国际建议改善CP儿童的功能。
背景：ClinicalTrials.govID：NCT04287166注册日期：27/02/2020。
