Abstract：
UNASSIGNED: For the growing number of people with spinal cord injuries worldwide, advocacy organizations are an invaluable resource of information and education during recovery and rehabilitation.
UNASSIGNED: To examine the structure, information, and accessibility of websites from international organizations that serve and advocate for individuals with SCI.
UNASSIGNED: We performed a content analysis of information available from SCI organizations returned from a Google search. We used search terms relevant to SCI and advocacy and applied them to top-level domains for the G20 countries. Organizations that provide services or advocate for people with SCI with English-language websites were included; organizations focused on research, fundraising, clinical care, interprofessional knowledge exchange, or other neurological conditions were excluded. Accessibility, in terms of ease of use to information about participation, was assessed using a 3-point scale.
UNASSIGNED: We identified SCI organizations from 27 different countries across six regions: Africa (N = 4), Asia (N = 5), Europe (N = 27), Middle East (N = 1), North America (N = 12), and Oceania (N = 11). Across these, six categories of resources and services are covered: (1) education, (2) physical health, (3) external, (4) peer support, (5) mental health, and (6) financial and legal. Eleven organizations indicate specific engagement with research or clinical trials. Four websites provided highly accessible information (rank = 3) about participation in research.
UNASSIGNED: The SCI organizations identified in this study offer resources that largely pertain to education and physical health services and strategies. Information about clinical trials and SCI research studies are easily accessible on the websites of the limited number of organizations offering avenues for participation.
UNASSIGNED: To examine the structure, information, and accessibility of websites from international organizations that serve and advocate for individuals with SCI.
UNASSIGNED: We performed a content analysis of information available from SCI organizations returned from a Google search. We used search terms relevant to SCI and advocacy and applied them to top-level domains for the G20 countries. Organizations that provide services or advocate for people with SCI with English-language websites were included; organizations focused on research, fundraising, clinical care, interprofessional knowledge exchange, or other neurological conditions were excluded. Accessibility, in terms of ease of use to information about participation, was assessed using a 3-point scale.
UNASSIGNED: We identified SCI organizations from 27 different countries across six regions: Africa (N = 4), Asia (N = 5), Europe (N = 27), Middle East (N = 1), North America (N = 12), and Oceania (N = 11). Across these, six categories of resources and services are covered: (1) education, (2) physical health, (3) external, (4) peer support, (5) mental health, and (6) financial and legal. Eleven organizations indicate specific engagement with research or clinical trials. Four websites provided highly accessible information (rank = 3) about participation in research.
UNASSIGNED: The SCI organizations identified in this study offer resources that largely pertain to education and physical health services and strategies. Information about clinical trials and SCI research studies are easily accessible on the websites of the limited number of organizations offering avenues for participation.
摘要：
■对于全世界越来越多的脊髓损伤患者，倡导组织是恢复和康复期间的宝贵信息和教育资源。
■要检查结构，信息,以及为SCI个人提供服务和倡导的国际组织网站的可访问性。
■我们对从Google搜索返回的SCI组织提供的信息进行了内容分析。我们使用了与SCI和倡导相关的搜索词，并将其应用于G20国家的顶级域名。包括为SCI人士提供服务或倡导英语网站的组织；专注于研究的组织，筹款,临床护理,跨专业知识交流，或其他神经系统疾病被排除。可访问性，就易于使用有关参与的信息而言，使用3点量表进行评估。
■我们确定了来自六个地区的27个不同国家的SCI组织：非洲（N=4），亚洲（N=5），欧洲（N=27），中东（N=1），北美（N=12），和大洋洲（N=11）。跨越这些，涵盖六类资源和服务:(1)教育，（2）身体健康，（3）外部，（4）同行支持，（5）心理健康，(6)财务和法律。11个组织表示具体参与研究或临床试验。四个网站提供了有关参与研究的高度可访问的信息（排名=3）。
■本研究中确定的SCI组织提供的资源主要与教育和身体健康服务和策略有关。有关临床试验和SCI研究的信息可以在有限数量的组织的网站上轻松访问，提供参与途径。
■要检查结构，信息,以及为SCI个人提供服务和倡导的国际组织网站的可访问性。
■我们对从Google搜索返回的SCI组织提供的信息进行了内容分析。我们使用了与SCI和倡导相关的搜索词，并将其应用于G20国家的顶级域名。包括为SCI人士提供服务或倡导英语网站的组织；专注于研究的组织，筹款,临床护理,跨专业知识交流，或其他神经系统疾病被排除。可访问性，就易于使用有关参与的信息而言，使用3点量表进行评估。
■我们确定了来自六个地区的27个不同国家的SCI组织：非洲（N=4），亚洲（N=5），欧洲（N=27），中东（N=1），北美（N=12），和大洋洲（N=11）。跨越这些，涵盖六类资源和服务:(1)教育，（2）身体健康，（3）外部，（4）同行支持，（5）心理健康，(6)财务和法律。11个组织表示具体参与研究或临床试验。四个网站提供了有关参与研究的高度可访问的信息（排名=3）。
■本研究中确定的SCI组织提供的资源主要与教育和身体健康服务和策略有关。有关临床试验和SCI研究的信息可以在有限数量的组织的网站上轻松访问，提供参与途径。
