关键词: family member global maternal health healthcare communication hospital experience maternal death maternal mortality mental health sub-Saharan Africa

来  源:   DOI:10.1016/j.xagr.2024.100358   PDF(Pubmed)

Abstract:
UNASSIGNED: Rates of maternal mortality are highest in low-resource settings. Family members are often involved in the critical periods surrounding a maternal death, including transportation to health centers and financial and emotional support during hospital admissions. Maternal death has devastating impacts on surviving family members, which are often overlooked and understudied.
UNASSIGNED: Our study aimed to explore the hospital experiences of family members surrounding a maternal death, and to define their access to and need for institutional and psychosocial support.
UNASSIGNED: This mixed methods cross-sectional study was conducted at an urban tertiary hospital in Ghana. Maternal mortalities from June 2019 to December 2020 were identified using death certificates. Participants, defined as husbands or other heads of households in families affected by maternal mortality, were purposively recruited. An interview guide was developed using grounded theory. In-person semi-structured interviews were conducted in English or Twi to explore impacts of maternal mortality on family members, with a focus on hospital experiences. Surveys were administered on types of and needs for institutional support. Interviews were audio recorded, translated, transcribed, coded with an iteratively-developed codebook, and thematically analyzed. Survey data was descriptively analyzed.
UNASSIGNED: Fifty-one participants included 26 husbands of the deceased woman, 5 parents, 12 siblings, and 8 second-degree relatives. Interviews revealed an overall negative hospital experience for surviving family members, who expressed substantial dissatisfaction and distress. Four themes regarding the hospital experience emerged from the interviews: 1) poor communication from healthcare workers and hospital personnel, which contributed to 2) limited understanding of the patient\'s clinical status, hospital course, and cause of death; 3) maternal death perceived as avoidable; and 4) maternal death perceived as unexpected and shocking. Survey data revealed that only 10% of participants were provided psychosocial support following the maternal death event, yet 93.3% of those who did not receive support desired this resource.
UNASSIGNED: The hospital experience was overall negative for family members and a lack of effective communication emerged as the root cause of this negative perception. Strategies to improve communication between healthcare providers and families are essential. In addition, there is an unmet need for formal mental health resources for families who experience a maternal death.
摘要:
在资源匮乏的地区,孕产妇死亡率最高。家庭成员经常参与孕产妇死亡的关键时期,包括前往医疗中心的交通以及住院期间的财务和情感支持。产妇死亡对幸存的家庭成员有毁灭性影响,经常被忽视和研究不足。
我们的研究旨在探讨家庭成员围绕产妇死亡的住院经历,并确定他们获得机构和社会心理支持的途径和需求。
这项混合方法的横断面研究是在加纳的一家城市三级医院进行的。2019年6月至2020年12月的孕产妇死亡率是使用死亡证明确定的。参与者,被定义为受孕产妇死亡率影响的家庭中的丈夫或其他户主,被故意招募。使用扎根理论开发了采访指南。以英语或Twi进行了面对面的半结构化访谈,以探讨孕产妇死亡率对家庭成员的影响。专注于医院的经验。对机构支持的类型和需求进行了调查。采访是录音,翻译,转录,用迭代开发的码本编码,并进行了主题分析。对调查数据进行描述性分析。
51名参与者包括已故妇女的26名丈夫,5父母,12个兄弟姐妹,和8个二级亲属。采访显示,幸存的家庭成员总体上有负面的住院经历,他们表达了极大的不满和痛苦。采访中出现了有关医院经验的四个主题:1)医护人员和医院人员沟通不畅,这有助于2)对患者临床状况的有限理解,医院课程,和死亡原因;3)产妇死亡被认为是可以避免的;4)产妇死亡被认为是意外和令人震惊的。调查数据显示,只有10%的参与者在孕产妇死亡事件后获得了社会心理支持,然而,93.3%的未获得支持的人希望获得此资源。
对家庭成员来说,医院的经历总体上是负面的,缺乏有效的沟通是这种负面看法的根本原因。改善医疗保健提供者与家庭之间沟通的策略至关重要。此外,对于经历孕产妇死亡的家庭,对正式的心理健康资源的需求尚未满足。
公众号