Abstract：
Within the framework of its Market Insights Program, AMCP convened a panel of experts representing diverse stakeholders to identify alterations to plan design and/or coverage options geared toward improving the diagnosis and treatment of mental health conditions among persons living with rare diseases (PLWRD). PLWRD face unique mental health challenges because of the misunderstood nature of their conditions, potential misdiagnosis, and limited treatment options. Economic burdens arise from increased medical needs, reliance on caregivers, and work disruptions. The interplay of these factors, along with health insurance coverage, creates a distinctive mental health landscape for PLWRD and a need to prioritize mental health support for this patient population. This article aims to (1) summarize expert perspectives on health care system challenges and areas of agreement concerning the management of mental health conditions and (2) advance payers\' understanding of their role in supporting mental health care for patients with rare diseases. Addressing mental health needs of PLWRD presents multifaceted challenges. Managed care organizations play a pivotal role in supporting mental health care for PLWRD through their quality improvement initiatives and policies for coverage and reimbursement, which can impact both the rare disease treatment and mental health services PLWRD receive.
摘要：
在其市场洞察计划的框架内，AMCP召集了一个代表不同利益相关者的专家小组，以确定计划设计和/或覆盖方案的变更，以改善罕见病患者（PLWRD）的精神健康状况的诊断和治疗。PLWRD面临着独特的心理健康挑战，因为他们的条件被误解了，潜在的误诊,和有限的治疗选择。经济负担来自医疗需求的增加，依赖护理人员，和工作中断。这些因素的相互作用，除了医疗保险，为PLWRD创造了一个独特的心理健康环境，并且需要优先考虑为该患者人群提供心理健康支持。本文旨在（1）总结专家对医疗保健系统挑战和有关精神健康状况管理的协议领域的观点，以及（2）预先支付者对他们在支持罕见病患者精神保健中的作用的理解。解决PLWRD的心理健康需求面临多方面的挑战。管理式护理组织通过其质量改进举措以及覆盖范围和报销政策，在支持PLWRD的精神保健方面发挥着关键作用，这可能会影响PLWRD获得的罕见疾病治疗和心理健康服务。
