OBJECTIVE: To investigate the lived experiences, perceptions, and care requirements of temporary colostomy patients within their home environment, with the ultimate goal of formulating a standardized management protocol.
METHODS: Over the period of June to August 2023, a purposive sampling technique was utilized to select 12 patients with temporary intestinal stomas from a tertiary hospital in Shanghai, China. Employing a phenomenological research approach, a semi-structured interview guide was developed, and qualitative interviews were conducted using in-depth interview techniques. The acquired data underwent coding, analysis, organization, and summarization following Colaizzi\'s seven-step method.
RESULTS: The findings of this study revealed that the experiences and needs of patients with temporary intestinal stomas can be delineated into four principal themes: Firstly, Temporary colostomy patients bear various burdens and concerns about the uncertainty of disease progression; secondly, patients exhibit limited self-care capabilities and face information deficits, resulting in heightened reliance on healthcare professionals; thirdly, patients demonstrate the potential for internal motivation through proactive self-adjustment; and finally, patients express a significant need for emotional and social support.
CONCLUSIONS: Home-living patients with temporary intestinal stomas confront multifaceted challenges encompassing burdens, inadequate self-care abilities, informational deficits, and emotional needs. Identifying factors influencing patients\' self-care at home and proposing strategies to mitigate barriers can serve as a foundational framework for developing and implementing nursing interventions tailored to the needs of patients with temporary intestinal stomas.
目的:为了调查生活经历,感知,以及家庭环境中临时结肠造口患者的护理要求,最终目的是制定标准化的管理协议。
方法:在2023年6月至8月期间,采用目的抽样技术从上海某三甲医院抽取12例暂时性肠造口患者,中国。采用现象学研究方法,开发了半结构化面试指南,定性访谈采用深度访谈技术进行。采集的数据经过编码,分析,组织,并按照Colaizzi的七步方法进行总结。
结果:这项研究的结果表明,暂时性肠造口患者的经历和需求可以分为四个主要主题:首先,临时结肠造口患者承担着各种负担和对疾病进展的不确定性的担忧;其次,患者表现出有限的自我护理能力和面临的信息缺陷,导致对医疗保健专业人员的高度依赖;第三,患者通过主动的自我调整表现出潜在的内在动机;最后,患者表达了对情感和社会支持的显著需求。
结论:家庭生活的暂时性肠造口患者面临多方面的挑战,包括负担,自理能力不足,信息缺陷,和情感需求。确定影响患者在家自我护理的因素,并提出缓解障碍的策略,可以作为制定和实施针对暂时性肠造口患者需求的护理干预措施的基础框架。