PDF(Pubmed)
Abstract：
This study examined the impact of advance care planning (ACP) on the quality of life for patients with chronic kidney disease (CKD) at Komfo Anokye Teaching Hospital in Ghana. It specifically investigated patients\' perspectives on their readiness for ACP. Utilizing a qualitative descriptive design, one-on-one interviews were conducted with CKD patients at the renal clinic, employing a semi-structured interview guide for thematic analysis of audio data. The findings revealed a gap in understanding among CKD patients, with participants acknowledging their vulnerability to renal failure, often linked to a medical history of diabetes and hypertension. Despite recognizing potential outcomes such as dialysis dependency or death, some patients retained hope for a cure, relying on faith. The initial kidney failure diagnosis induced shock and distress, leading many patients to prefer the comfort and familiarity of home-based care, including dialysis. Meanwhile, a minority favored hospital care to protect their children from psychological trauma. Most patients deemed legal preparations unnecessary, citing limited assets or a lack of concern for posthumous estate execution. These insights emphasize the necessity for targeted education and support in ACP to enhance patient outcomes in chronic kidney disease care and end-of-life planning.
摘要：
这项研究调查了加纳KomfoAnokye教学医院的高级护理计划（ACP）对慢性肾脏疾病（CKD）患者生活质量的影响。它专门调查了患者对ACP准备情况的看法。利用定性的描述性设计，在肾脏诊所对CKD患者进行了一对一的访谈，采用半结构化访谈指南对音频数据进行主题分析。研究结果揭示了CKD患者之间的理解差距，参与者承认他们容易患肾衰竭，通常与糖尿病和高血压病史有关。尽管认识到潜在的结果，如透析依赖或死亡，一些患者保留了治愈的希望，依靠信仰。最初的肾衰竭诊断引起休克和痛苦，导致许多患者更喜欢舒适和熟悉的家庭护理，包括透析.同时,少数人赞成医院护理，以保护他们的孩子免受心理创伤。大多数患者认为法律准备是不必要的，以资产有限或对死后遗产执行缺乏担忧为由。这些见解强调了在ACP中进行有针对性的教育和支持的必要性，以提高患者在慢性肾脏病护理和临终计划中的预后。
