关键词: advanced disease mixed-methods prostate cancer quality of life supportive care survivors unmet needs

来  源:   DOI:10.5737/23688076324512   PDF(Pubmed)

Abstract:
UNASSIGNED: Men with advanced prostate cancer experience a wide range of side effects from the cancer and its therapies, which have a negative effect on their quality of life (QOL). Few studies have evaluated supportive care needs in these individuals. The purpose of this study was to conduct a holistic supportive care needs assessment among these survivors guided by the Supportive Care Framework for Cancer Care.
UNASSIGNED: Using a convergent parallel mixed-methods approach, prostate cancer survivors with advanced disease (n = 188) completed a cross-sectional survey. A subset of these survivors (n = 20) participated in an interview to further explore their experience of unmet needs.
UNASSIGNED: Survivors reported unmet supportive care needs in every domain of the framework. Up to 95.2% of the survivors had at least one unmet need, with a mean of 14.9 (range: 0-42). Several areas of convergence among the quantitative and qualitative data (fatigue, sexual dysfunction, practical, and emotional/psychological domains), as well as divergence (informational and spiritual domains, depression, urinary dysfunction) were found through the integration process.
UNASSIGNED: This study confirms that prostate cancer survivors with advanced disease experience high rates of unmet supportive care needs. The findings also highlight the diversity of those unmet needs. These results may assist with future development of patient-centered supportive care interventions that better meet the specific needs of this vulnerable group of cancer survivors.
摘要:
患有晚期前列腺癌的男性经历了癌症及其治疗的广泛副作用,这对他们的生活质量(QOL)有负面影响。很少有研究评估这些人的支持性护理需求。这项研究的目的是在癌症护理支持性护理框架的指导下,对这些幸存者进行全面的支持性护理需求评估。
使用收敛并行混合方法,患有晚期疾病的前列腺癌幸存者(n=188)完成了一项横断面调查.这些幸存者的一部分(n=20)参加了一次访谈,以进一步探索他们对未满足需求的经历。
幸存者报告说,该框架的每个领域的支持性护理需求均未得到满足。高达95.2%的幸存者至少有一个未满足的需求,平均值为14.9(范围:0-42)。定量和定性数据之间的几个趋同领域(疲劳,性功能障碍,实用,和情感/心理领域),以及分歧(信息和精神领域,抑郁症,泌尿功能障碍)是通过整合过程发现的。
这项研究证实,患有晚期疾病的前列腺癌幸存者经历了高比例的未满足的支持性护理需求。调查结果还强调了这些未满足需求的多样性。这些结果可能有助于未来发展以患者为中心的支持性护理干预措施,从而更好地满足癌症幸存者这一脆弱群体的特定需求。
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