Abstract：
OBJECTIVE: Age-related macular degeneration (AMD) and diabetic retinopathy (DR) are highly prevalent.
OBJECTIVE: To explore perceptions of patients with AMD or DR about the impact of the disease and treatment on their daily living activities.
METHODS: Semi-structured interviews with a questionnaire developed from validated patient reported outcomes questionnaires. The questionnaire consisted of 19 questions about the disease and 9 about the treatment. The questions (items) were answered on a scale from 1 to 9. In addition, the patient interviewed was invited to make free comments on each question. Nine patients with AMD and 9 with DR were interviewed by videoconference or telephone call. A quantitative analysis of the responses and a qualitative analysis of the comments were carried out.
RESULTS: The most relevant item for patients with AMD or DR is \"Recognize people when they are nearby\", and \"Read text in normal size font in a newspaper or book\", followed, in patients with AMD, by \"Do things what you would like\" and, in patients with DR, \"Feeling frustrated by the vision problems.\" Regarding the treatment, the most relevant aspects for both groups is that the treatment works and receiving appropriate information before and after the treatment. The qualitative comments were focused to the disease, the treatment, and to the role of doctors and the health system.
CONCLUSIONS: Quantitative responses and free comments can be useful to improve the care of patients with AMD or DR by physicians and the health system.
OBJECTIVE: To explore perceptions of patients with AMD or DR about the impact of the disease and treatment on their daily living activities.
METHODS: Semi-structured interviews with a questionnaire developed from validated patient reported outcomes questionnaires. The questionnaire consisted of 19 questions about the disease and 9 about the treatment. The questions (items) were answered on a scale from 1 to 9. In addition, the patient interviewed was invited to make free comments on each question. Nine patients with AMD and 9 with DR were interviewed by videoconference or telephone call. A quantitative analysis of the responses and a qualitative analysis of the comments were carried out.
RESULTS: The most relevant item for patients with AMD or DR is \"Recognize people when they are nearby\", and \"Read text in normal size font in a newspaper or book\", followed, in patients with AMD, by \"Do things what you would like\" and, in patients with DR, \"Feeling frustrated by the vision problems.\" Regarding the treatment, the most relevant aspects for both groups is that the treatment works and receiving appropriate information before and after the treatment. The qualitative comments were focused to the disease, the treatment, and to the role of doctors and the health system.
CONCLUSIONS: Quantitative responses and free comments can be useful to improve the care of patients with AMD or DR by physicians and the health system.
摘要：
目的：年龄相关性黄斑变性（AMD）和糖尿病性视网膜病变（DR）非常普遍。
目的：探讨AMD或DR患者对疾病和治疗对其日常生活活动的影响的看法。
方法：使用经过验证的患者报告结果问卷开发的问卷进行半结构化访谈。问卷由19个关于疾病的问题和9个关于治疗的问题组成。问题(项目)以1至9的等级回答。此外,接受采访的患者被邀请对每个问题进行免费评论。通过视频会议或电话采访了9名AMD患者和9名DR患者。对答复进行了定量分析，对评论进行了定性分析。
结果：与AMD或DR患者最相关的项目是\“在附近时识别人\”，和“阅读报纸或书籍中正常大小字体的文本”，跟着，在AMD患者中，通过\“做你想做的事情\”和，在DR患者中，“对视力问题感到沮丧。“关于治疗，两组最相关的方面是治疗有效，并在治疗前后获得适当的信息。定性评论集中在疾病上，治疗,以及医生和卫生系统的作用。
结论：定量反应和免费评论有助于改善医生和卫生系统对AMD或DR患者的护理。
目的：探讨AMD或DR患者对疾病和治疗对其日常生活活动的影响的看法。
方法：使用经过验证的患者报告结果问卷开发的问卷进行半结构化访谈。问卷由19个关于疾病的问题和9个关于治疗的问题组成。问题(项目)以1至9的等级回答。此外,接受采访的患者被邀请对每个问题进行免费评论。通过视频会议或电话采访了9名AMD患者和9名DR患者。对答复进行了定量分析，对评论进行了定性分析。
结果：与AMD或DR患者最相关的项目是\“在附近时识别人\”，和“阅读报纸或书籍中正常大小字体的文本”，跟着，在AMD患者中，通过\“做你想做的事情\”和，在DR患者中，“对视力问题感到沮丧。“关于治疗，两组最相关的方面是治疗有效，并在治疗前后获得适当的信息。定性评论集中在疾病上，治疗,以及医生和卫生系统的作用。
结论：定量反应和免费评论有助于改善医生和卫生系统对AMD或DR患者的护理。
