PDF(Pubmed)
Abstract：
Spondyloarthritis (SpA) is a group of inflammatory disorders, including axial SpA (axSpA), characterized by inflammation in the spine and sacroiliac joints. Healthcare professionals have a crucial role in diagnosing and managing axSpA. Assessing their knowledge, perceptions, and practices is essential to enhance patient care. The objective of this study is to evaluate these factors by conducting an online survey. This online survey was performed using SurveyMonkey.com to assess healthcare professionals\' knowledge, perceptions, and practices related to axSpA diagnosis, management, and monitoring. The questionnaire included questions about definitions, management strategies, monitoring approaches, treatment options, and barriers to care. Convenience sampling was used, and the data were analyzed descriptively by Microsoft Excel. One hundred sixty-four healthcare professionals participated; most respondents were rheumatologists from various geographic locations (27 countries). Most participants were familiar with axSpA definitions and diagnostic criteria, demonstrating high expertise. Variations were seen in follow-up intervals and diagnostic preferences, reflecting clinical heterogeneity. Seventy-two (43.9%) individuals had a multidisciplinary team, frequently including rheumatologists, physiotherapists, and radiologists. Of the participants, 73 (44.5%) had online/telephone follow-up sessions. The pharmacological and non-pharmacological treatment approaches varied, pointing to the importance of personalized care. Glucocorticoid use varied among countries. Recognizing inflammatory back pain, interpreting radiographs, and diagnosing early was essential to medical education. This study provides beneficial data on healthcare professionals\' knowledge, perceptions, and practices regarding axSpA. While diagnostic familiarity and multidisciplinary approach are positives, there is a potential to standardize management, improve telemedicine services, remove barriers to physical activity, and optimize treatment options.
摘要：
脊柱关节炎(SpA)是一组炎症性疾病,包括轴向SpA（axSpA），以脊柱和骶髂关节发炎为特征。医疗保健专业人员在诊断和管理axSpA中起着至关重要的作用。评估他们的知识，感知，和实践对于加强病人护理至关重要。这项研究的目的是通过进行在线调查来评估这些因素。这项在线调查是使用SurveyMonkey.com进行的，以评估医疗保健专业人员的知识，感知，以及与axSpA诊断相关的实践，管理,和监测。问卷包括关于定义的问题，管理策略，监测方法，治疗方案,和护理障碍。使用了方便的取样，并通过MicrosoftExcel对数据进行描述性分析。共有164名医疗保健专业人员参加；大多数受访者是来自不同地理位置（27个国家）的风湿病学家。大多数参与者熟悉axSpA定义和诊断标准，展示高度的专业知识。观察到随访间隔和诊断偏好的差异，反映临床异质性。72(43.9%)个人拥有多学科团队，经常包括风湿病学家，物理治疗师,和放射科医生。在参与者中，73人（44.5%）进行了在线/电话随访。药理学和非药理学治疗方法各不相同，指出个性化护理的重要性。糖皮质激素的使用因国家而异。认识到炎症性背痛，解释射线照片，早期诊断对医学教育至关重要。这项研究提供了有关医疗保健专业人员知识的有益数据，感知，和关于axSpA的实践。虽然熟悉诊断和多学科方法是积极的，有可能规范管理，改善远程医疗服务，消除身体活动的障碍，优化治疗方案。
