关键词: carer experiences community care dementia family carers qualitative interviews

来  源:   DOI:10.3390/healthcare12111122   PDF(Pubmed)

Abstract:
Family caregivers are vital to enabling people with dementia to live longer in their own homes. For these caregivers, chatting with clinicians-being listened to empathetically and receiving reassurance-can be seen as not incidental but important to supporting them. This paper considers and identifies the significance of this relational work for family carers by re-examining data originally collected to document caregivers\' perspectives on quality in crisis response teams. This reveals that chatting, for family caregivers, comprises three related features: (i) that family caregivers by responding to a person\'s changing and sometimes challenging needs and behaviors inhabit a precarious equilibrium; (ii) that caregivers greatly appreciate \'chatting\' with visiting clinicians; and (iii) that while caregivers appreciate these chats, they can be highly critical of the institutionalized character of a crisis response team\'s involvement with them.
摘要:
家庭护理人员对于使痴呆症患者在自己的家中寿命更长至关重要。对于这些照顾者来说,与临床医生聊天-被同情地倾听并得到安慰-可以被视为不是偶然的,但对支持他们很重要。本文通过重新检查最初收集的数据来记录护理人员对危机应对团队质量的看法,从而考虑并确定了这种关系工作对家庭护理人员的重要性。这表明聊天,对于家庭照顾者来说,包括三个相关的特征:(i)家庭照顾者通过对一个人不断变化的、有时具有挑战性的需求和行为做出反应,生活在不稳定的平衡中;(ii)照顾者非常喜欢与来访的临床医生“聊天”;(iii)虽然照顾者喜欢这些聊天,他们可能会高度批评危机应对小组参与其中的制度化特征。
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