PDF(Pubmed)
Abstract：
UNASSIGNED: The period before, during, and after pregnancy presents an opportunity to reduce diabetes-related risks, which in Australia disproportionately impact Aboriginal and Torres Strait Islander women. Collaboration with Aboriginal and Torres Strait Islander women/communities is essential to ensure acceptability and sustainability of lifestyle modifications. Using a novel co-design approach, we aimed to identify shared priorities and potential lifestyle strategies. We also reflected on learnings from this approach.
UNASSIGNED: We conducted 11 workshops and 8 interviews at two sites in Australia\'s Northern Territory (Central Australia and Top End), using experience-based co-design (EBCD) and incorporating principles of First Nations participatory research. Workshops/interviews explored participant\' experiences and understanding of diabetes in pregnancy, contextual issues, and potential lifestyle strategies. Participants included three groups: 1) Aboriginal and Torres Strait Islander women of reproductive age (defined as aged 16-45 years); 2) Aboriginal and Torres Strait Islander community members; and 3) health/community services professionals. The study methodology sought to amplify the voices of Aboriginal women.
UNASSIGNED: Participants included 23 women between ages 16-45 years (9 with known lived experience of diabetes in pregnancy), 5 community members and 23 health professionals. Key findings related to identified priority issues, strategies to address priorities, and reflections on use of EBCD methodology. Priorities were largely consistent across study regions: access to healthy foods and physical activity; connection to traditional practices and culture; communication regarding diabetes and related risks; and the difficulty for women of prioritising their health among competing priorities. Strategies included implementation of a holistic women\'s program in Central Australia, while Top End participants expressed the desire to improve nutrition, peer support and community awareness of diabetes. EBCD provided a useful structure to explore participants\' experiences and collectively determine priorities, while allowing for modifications to ensure co-design methods were contextually appropriate. Challenges included the resource-intensive nature of stakeholder engagement, and collaborating effectively with services and communities when researchers were \"outsiders\".
UNASSIGNED: A hybrid methodology using EBCD and First Nations participatory research principles enabled collaboration between Aboriginal women, communities and health services to identify shared priorities and solutions to reduce diabetes-related health risks. Genuine co-design processes support self-determination and enhance acceptability and sustainability of health strategies.
UNASSIGNED: We conducted 11 workshops and 8 interviews at two sites in Australia\'s Northern Territory (Central Australia and Top End), using experience-based co-design (EBCD) and incorporating principles of First Nations participatory research. Workshops/interviews explored participant\' experiences and understanding of diabetes in pregnancy, contextual issues, and potential lifestyle strategies. Participants included three groups: 1) Aboriginal and Torres Strait Islander women of reproductive age (defined as aged 16-45 years); 2) Aboriginal and Torres Strait Islander community members; and 3) health/community services professionals. The study methodology sought to amplify the voices of Aboriginal women.
UNASSIGNED: Participants included 23 women between ages 16-45 years (9 with known lived experience of diabetes in pregnancy), 5 community members and 23 health professionals. Key findings related to identified priority issues, strategies to address priorities, and reflections on use of EBCD methodology. Priorities were largely consistent across study regions: access to healthy foods and physical activity; connection to traditional practices and culture; communication regarding diabetes and related risks; and the difficulty for women of prioritising their health among competing priorities. Strategies included implementation of a holistic women\'s program in Central Australia, while Top End participants expressed the desire to improve nutrition, peer support and community awareness of diabetes. EBCD provided a useful structure to explore participants\' experiences and collectively determine priorities, while allowing for modifications to ensure co-design methods were contextually appropriate. Challenges included the resource-intensive nature of stakeholder engagement, and collaborating effectively with services and communities when researchers were \"outsiders\".
UNASSIGNED: A hybrid methodology using EBCD and First Nations participatory research principles enabled collaboration between Aboriginal women, communities and health services to identify shared priorities and solutions to reduce diabetes-related health risks. Genuine co-design processes support self-determination and enhance acceptability and sustainability of health strategies.
摘要：
■之前的时期，during,怀孕后提供了减少糖尿病相关风险的机会，在澳大利亚，这对土著和托雷斯海峡岛民妇女的影响不成比例。与土著和托雷斯海峡岛民妇女/社区的合作对于确保改变生活方式的可接受性和可持续性至关重要。使用一种新颖的共同设计方法，我们旨在确定共同的优先事项和潜在的生活方式策略。我们还反思了从这种方法中学到的东西。
■我们在澳大利亚北领地的两个地点（澳大利亚中部和顶端）举办了11次研讨会和8次访谈，使用基于经验的共同设计（EBCD），并纳入原住民参与式研究的原则。研讨会/访谈探讨了参与者对怀孕期间糖尿病的经验和理解，上下文问题，和潜在的生活方式策略。参加者包括三组：1）土著和托雷斯海峡岛民育龄妇女（定义为16-45岁）；2）土著和托雷斯海峡岛民社区成员；3）卫生/社区服务专业人员。研究方法试图扩大土著妇女的声音。
参与者包括23名年龄在16-45岁之间的女性（9名已知怀孕期间有糖尿病的生活经历），5名社区成员和23名卫生专业人员。与已确定的优先问题有关的关键调查结果，解决优先事项的战略，以及对EBCD方法使用的思考。各研究区域的优先事项在很大程度上是一致的：获得健康食品和体育活动；与传统习俗和文化的联系；关于糖尿病和相关风险的沟通；以及妇女在竞争优先事项中优先考虑自己的健康的困难。战略包括在澳大利亚中部实施整体妇女计划，而高端参与者表达了改善营养的愿望，同伴支持和社区对糖尿病的认识。EBCD提供了一种有用的结构来探索参与者的经验并集体确定优先级，同时允许修改以确保共同设计方法在上下文上是合适的。挑战包括利益相关者参与的资源密集型性质，当研究人员成为“局外人”时，与服务和社区进行有效合作。
■使用EBCD和原住民参与研究原则的混合方法使土著妇女之间能够进行合作，社区和卫生服务，以确定共同的优先事项和解决方案，以减少与糖尿病相关的健康风险。真正的共同设计过程支持自决，并提高卫生战略的可接受性和可持续性。
■我们在澳大利亚北领地的两个地点（澳大利亚中部和顶端）举办了11次研讨会和8次访谈，使用基于经验的共同设计（EBCD），并纳入原住民参与式研究的原则。研讨会/访谈探讨了参与者对怀孕期间糖尿病的经验和理解，上下文问题，和潜在的生活方式策略。参加者包括三组：1）土著和托雷斯海峡岛民育龄妇女（定义为16-45岁）；2）土著和托雷斯海峡岛民社区成员；3）卫生/社区服务专业人员。研究方法试图扩大土著妇女的声音。
参与者包括23名年龄在16-45岁之间的女性（9名已知怀孕期间有糖尿病的生活经历），5名社区成员和23名卫生专业人员。与已确定的优先问题有关的关键调查结果，解决优先事项的战略，以及对EBCD方法使用的思考。各研究区域的优先事项在很大程度上是一致的：获得健康食品和体育活动；与传统习俗和文化的联系；关于糖尿病和相关风险的沟通；以及妇女在竞争优先事项中优先考虑自己的健康的困难。战略包括在澳大利亚中部实施整体妇女计划，而高端参与者表达了改善营养的愿望，同伴支持和社区对糖尿病的认识。EBCD提供了一种有用的结构来探索参与者的经验并集体确定优先级，同时允许修改以确保共同设计方法在上下文上是合适的。挑战包括利益相关者参与的资源密集型性质，当研究人员成为“局外人”时，与服务和社区进行有效合作。
■使用EBCD和原住民参与研究原则的混合方法使土著妇女之间能够进行合作，社区和卫生服务，以确定共同的优先事项和解决方案，以减少与糖尿病相关的健康风险。真正的共同设计过程支持自决，并提高卫生战略的可接受性和可持续性。
