PDF(Pubmed)
Abstract：
BACKGROUND: Hepatitis B is endemic amongst the Australian Aboriginal population in the Northern Territory. A participatory action research project identified the lack of culturally appropriate education tools and led to the development of the \"Hep B Story\" app in the Aboriginal language Yolŋu Matha. This paper describes a formal evaluation of the app\'s first version, which informed improvements and translation into a further ten Aboriginal languages.
METHODS: The evaluation employed Participatory Action Research (PAR) principles to work within Indigenous research methodologies and prioritise Indigenous knowledge to improve the app iteratively. Semi-structured interviews and focus groups were conducted across the Northern Territory with 11 different language groups. Local Community Based Researchers and Aboriginal Research team members coordinated sessions. The recorded, translated conversations were transcribed verbatim and thematically analysed using an inductive and deductive approach.
RESULTS: Between November 2018 and September 2020, 94 individuals from 11 language groups participated in 25 semi-structured interviews and 10 focus groups. All participants identified as Aboriginal. Most participants felt the app would be culturally appropriate for Aboriginal communities in the Northern Territory and improve knowledge surrounding hepatitis B. The information gathered from these interviews allowed for identifying five main themes: support for app, relationships, concept versus language, shame, and perceptions of images, along with errors that required modification.
CONCLUSIONS: A \"real-life\" evaluation of the app was comprehensively completed using a PAR approach blended with Indigenous research methods. This evaluation allowed us to develop an updated and enhanced version of the app before creating the additional ten language versions. An iterative approach alongside strong community engagement was pivotal in ensuring the app\'s cultural safety and appropriateness. We recommend avoiding the use of knowledge-based evaluations in an Aboriginal setting to ensure relevant and culturally appropriate feedback is obtained.
METHODS: The evaluation employed Participatory Action Research (PAR) principles to work within Indigenous research methodologies and prioritise Indigenous knowledge to improve the app iteratively. Semi-structured interviews and focus groups were conducted across the Northern Territory with 11 different language groups. Local Community Based Researchers and Aboriginal Research team members coordinated sessions. The recorded, translated conversations were transcribed verbatim and thematically analysed using an inductive and deductive approach.
RESULTS: Between November 2018 and September 2020, 94 individuals from 11 language groups participated in 25 semi-structured interviews and 10 focus groups. All participants identified as Aboriginal. Most participants felt the app would be culturally appropriate for Aboriginal communities in the Northern Territory and improve knowledge surrounding hepatitis B. The information gathered from these interviews allowed for identifying five main themes: support for app, relationships, concept versus language, shame, and perceptions of images, along with errors that required modification.
CONCLUSIONS: A \"real-life\" evaluation of the app was comprehensively completed using a PAR approach blended with Indigenous research methods. This evaluation allowed us to develop an updated and enhanced version of the app before creating the additional ten language versions. An iterative approach alongside strong community engagement was pivotal in ensuring the app\'s cultural safety and appropriateness. We recommend avoiding the use of knowledge-based evaluations in an Aboriginal setting to ensure relevant and culturally appropriate feedback is obtained.
摘要：
背景：乙型肝炎是北领地澳大利亚原住民中的地方病。一项参与式行动研究项目确定了缺乏适合文化的教育工具，并导致了以原住民语言YoluMatha开发的“HepBStory”应用程序。本文描述了对应用程序的第一个版本的正式评估，它为改进和翻译成另外十种土著语言提供了信息。
方法：评估采用参与式行动研究（PAR）原则在土著研究方法中工作，并优先考虑土著知识以迭代地改进应用程序。在北领地与11个不同的语言组进行了半结构化访谈和焦点小组。当地社区研究人员和原住民研究小组成员协调会议。有记录的,翻译后的对话被逐字转录，并使用归纳和演绎的方法进行主题分析。
结果：在2018年11月至2020年9月之间，来自11个语言组的94名个人参加了25次半结构化访谈和10个焦点小组。所有参与者都被确定为土著居民。大多数参与者认为该应用程序在文化上适合北领地的原住民社区，并改善了有关乙型肝炎的知识。从这些访谈中收集的信息可以确定五个主要主题：对应用程序的支持，关系,概念与语言，羞耻,和对图像的感知，以及需要修改的错误。
结论：使用PAR方法与土著研究方法相结合，全面完成了对应用程序的“现实生活”评估。此评估使我们能够在创建其他十种语言版本之前开发应用程序的更新和增强版本。迭代方法以及强大的社区参与对于确保应用程序的文化安全和适当性至关重要。我们建议避免在原住民环境中使用基于知识的评估，以确保获得相关和文化上适当的反馈。
方法：评估采用参与式行动研究（PAR）原则在土著研究方法中工作，并优先考虑土著知识以迭代地改进应用程序。在北领地与11个不同的语言组进行了半结构化访谈和焦点小组。当地社区研究人员和原住民研究小组成员协调会议。有记录的,翻译后的对话被逐字转录，并使用归纳和演绎的方法进行主题分析。
结果：在2018年11月至2020年9月之间，来自11个语言组的94名个人参加了25次半结构化访谈和10个焦点小组。所有参与者都被确定为土著居民。大多数参与者认为该应用程序在文化上适合北领地的原住民社区，并改善了有关乙型肝炎的知识。从这些访谈中收集的信息可以确定五个主要主题：对应用程序的支持，关系,概念与语言，羞耻,和对图像的感知，以及需要修改的错误。
结论：使用PAR方法与土著研究方法相结合，全面完成了对应用程序的“现实生活”评估。此评估使我们能够在创建其他十种语言版本之前开发应用程序的更新和增强版本。迭代方法以及强大的社区参与对于确保应用程序的文化安全和适当性至关重要。我们建议避免在原住民环境中使用基于知识的评估，以确保获得相关和文化上适当的反馈。
