Abstract:
Siblings of individuals with neurodevelopmental conditions (NDCs) experience distinct challenges and have unique strengths compared to siblings of individuals without NDCs. The present study examined attributes and aspirations of siblings of individuals with and without neurodevelopmental conditions, and analyzed the association between qualitative responses and quantitative measures of growth mindset, positive and negative valence, and mental health diagnoses. A novel mixed methods thematic analysis was employed to explore the experiences of 166 siblings (75 NDC and 91 controls, aged 14-26, 66.27% female) completing an online survey as part of a larger study on sibling mental health. The overarching theme described The Process of Self-Actualization and Integration, reflecting the journey siblings undergo in seeking to understand themselves and others amidst psychological challenges. It encompassed three subthemes: Personal Growth and Identity Formation; Connection and Belonginess; and Societal Perspective and Global Consciousness. Qualitative responses were analyzed within a Research Domain Criteria (RDoC) framework, and associations between phenomenology and mental health diagnoses examined. NDC siblings had higher negative valence and lower positive valence embedded in their responses, and quantitatively lower self-reported growth mindset (i.e., beliefs about the capacity for personal growth), compared to control siblings, which correlated with self-reported mental health diagnoses. Findings suggest clinical practice may focus on optimizing self-identified strengths and offer opportunities for self-actualization of hopes and ambitions, while providing support for families to attenuate bioecological factors impacting mental health.
摘要:
与没有NDC的个体的兄弟姐妹相比,患有神经发育疾病(NDC)的个体的兄弟姐妹经历了不同的挑战,并且具有独特的优势。本研究检查了有或没有神经发育疾病的个体的兄弟姐妹的属性和愿望,并分析了增长心态的定性反应和定量测量之间的关系,正价和负价,和心理健康诊断。采用了一种新颖的混合方法进行主题分析,以探索166个兄弟姐妹(75个NDC和91个对照,年龄在14-26岁之间,女性占66.27%)完成了一项在线调查,这是一项有关兄弟姐妹心理健康的大型研究的一部分。总体主题描述了自我实现和整合的过程,反映了兄弟姐妹在心理挑战中寻求了解自己和他人的旅程。它包含三个子主题:个人成长和身份形成;联系和归属;社会视角和全球意识。在研究领域标准(RDoC)框架内分析了定性响应,以及现象学和心理健康诊断之间的关联。NDC兄弟姐妹的反应中嵌入了较高的负价和较低的正价,和定量较低的自我报告的成长心态(即,关于个人成长能力的信念),与对照兄弟姐妹相比,这与自我报告的心理健康诊断相关。研究结果表明,临床实践可能专注于优化自我识别的优势,并为自我实现希望和抱负提供机会。同时为家庭提供支持,以减轻影响心理健康的生物生态因素。