Abstract：
OBJECTIVE: Patients who undergo growth-friendly (GF) treatment for early-onset scoliosis (EOS) undergo multiple clinical and surgical encounters. We sought to quantify the associated temporal and travel burden and estimate subsequent cost.
METHODS: Four centers in an international study group combined data on EOS patients who underwent surgical GF treatment from 2006 to 2021. Data collected included demographics, scoliosis etiology, GF implant, encounter type, and driving distance. We applied 2022 IRS and BLS data or $0.625/mile and $208.2/day off work to calculate a relative financial burden.
RESULTS: A total of 300 patients were analyzed (55% female). Etiologies were: congenital (33.3%), idiopathic (18.7%), neuromuscular (30.7%), and syndromic (17.3%). The average age at the index procedure was 5.5 years. For the 300 patients, 5899 encounters were recorded (average 18 encounters/patient). Aggregate encounter types were 2521 clinical office encounters (43%), 2045 surgical lengthening encounters (35%), 1157 magnetic lengthening encounters (20%), 149 spinal fusions (3%), and 27 spinal fusion revisions (0.5%). When comparing patients by scoliosis etiology or by GF implant type, no significant differences were noted in the total number of encounters or average travel distance. Patients traveled a median round trip distance of 158 miles/encounter between their homes and treating institutions (range 2.4-5654 miles), with a cumulative median distance of 2651 miles for the entirety of their treatment (range 29-90,552 miles), at an estimated median cost of $1656.63. The mean number of days off work was 18 (range 3-75), with an associated loss of $3643.50 in income.
CONCLUSIONS: Patients with EOS averaged 18 encounters for GF surgical treatment. These patients and their families traveled a median distance of 158 miles/encounter, with an estimated combined mileage and loss of income of $5300.
METHODS: Four centers in an international study group combined data on EOS patients who underwent surgical GF treatment from 2006 to 2021. Data collected included demographics, scoliosis etiology, GF implant, encounter type, and driving distance. We applied 2022 IRS and BLS data or $0.625/mile and $208.2/day off work to calculate a relative financial burden.
RESULTS: A total of 300 patients were analyzed (55% female). Etiologies were: congenital (33.3%), idiopathic (18.7%), neuromuscular (30.7%), and syndromic (17.3%). The average age at the index procedure was 5.5 years. For the 300 patients, 5899 encounters were recorded (average 18 encounters/patient). Aggregate encounter types were 2521 clinical office encounters (43%), 2045 surgical lengthening encounters (35%), 1157 magnetic lengthening encounters (20%), 149 spinal fusions (3%), and 27 spinal fusion revisions (0.5%). When comparing patients by scoliosis etiology or by GF implant type, no significant differences were noted in the total number of encounters or average travel distance. Patients traveled a median round trip distance of 158 miles/encounter between their homes and treating institutions (range 2.4-5654 miles), with a cumulative median distance of 2651 miles for the entirety of their treatment (range 29-90,552 miles), at an estimated median cost of $1656.63. The mean number of days off work was 18 (range 3-75), with an associated loss of $3643.50 in income.
CONCLUSIONS: Patients with EOS averaged 18 encounters for GF surgical treatment. These patients and their families traveled a median distance of 158 miles/encounter, with an estimated combined mileage and loss of income of $5300.
摘要：
目的：接受生长友好（GF）治疗的早发性脊柱侧凸（EOS）患者经历多次临床和手术治疗。我们试图量化相关的时间和旅行负担，并估计后续成本。
方法：国际研究组的四个中心结合了2006年至2021年接受GF外科治疗的EOS患者的数据。收集的数据包括人口统计，脊柱侧凸的病因，GF植入物，相遇类型,和驾驶距离。我们应用2022年IRS和BLS数据或0.625美元/英里和208.2美元/天休假来计算相对财务负担。
结果：共分析了300例患者（55%为女性）。病因为：先天性（33.3％），特发性（18.7%），神经肌肉（30.7%），和综合征（17.3％）。指数程序的平均年龄为5.5岁。对于300名患者来说，记录了5899次相遇(平均18次相遇/患者)。总接触类型为2521次临床办公室接触(43%)，2045年手术延长遭遇（35%），1157次磁力加长相遇(20%),脊柱融合149例（3%），和27个脊柱融合修正（0.5％）。当根据脊柱侧凸病因或GF植入物类型比较患者时，在相遇总数或平均行进距离方面没有发现显著差异.患者在家中和治疗机构之间的往返行程中位数为158英里/次（范围2.4-5654英里），整个治疗过程的累积中位距离为2651英里（范围29-90,552英里），估计成本中位数为1656.63美元。平均休假天数为18天（范围3-75天），相关收入损失3643.50美元。
结论：患有EOS的患者平均18次接受GF手术治疗。这些患者和他们的家人旅行的平均距离为158英里/次，估计里程和收入损失合计为5300美元。
方法：国际研究组的四个中心结合了2006年至2021年接受GF外科治疗的EOS患者的数据。收集的数据包括人口统计，脊柱侧凸的病因，GF植入物，相遇类型,和驾驶距离。我们应用2022年IRS和BLS数据或0.625美元/英里和208.2美元/天休假来计算相对财务负担。
结果：共分析了300例患者（55%为女性）。病因为：先天性（33.3％），特发性（18.7%），神经肌肉（30.7%），和综合征（17.3％）。指数程序的平均年龄为5.5岁。对于300名患者来说，记录了5899次相遇(平均18次相遇/患者)。总接触类型为2521次临床办公室接触(43%)，2045年手术延长遭遇（35%），1157次磁力加长相遇(20%),脊柱融合149例（3%），和27个脊柱融合修正（0.5％）。当根据脊柱侧凸病因或GF植入物类型比较患者时，在相遇总数或平均行进距离方面没有发现显著差异.患者在家中和治疗机构之间的往返行程中位数为158英里/次（范围2.4-5654英里），整个治疗过程的累积中位距离为2651英里（范围29-90,552英里），估计成本中位数为1656.63美元。平均休假天数为18天（范围3-75天），相关收入损失3643.50美元。
结论：患有EOS的患者平均18次接受GF手术治疗。这些患者和他们的家人旅行的平均距离为158英里/次，估计里程和收入损失合计为5300美元。
