Abstract：
BACKGROUND: Parkinson\'s disease (PD) affects the physical, cognitive, emotional, and social domains of people who suffer it. A good strategy for patients is to belong to an Association, using the services they offer.
OBJECTIVE: The aim of this study was to explore the experiences and perceptions of patients with PD in a Parkinson\'s Association.
METHODS: A sample of participants with PD who met the inclusion criteria was selected through purpose and theoretical sampling. Semi-structured qualitative interviews were used to collect the data, which was analyzed by thematic phenomenological analysis. Different strategies such as triangulation between researchers were used to ensure methodological rigor.
RESULTS: The data analyzed from 10 participants led to two themes: the context of the Association, where the importance of interdisciplinary treatments and the relationship with other patients is collected; and how they see their future, which describes the future perspectives that patients with PD have.
CONCLUSIONS: Patients agree on the importance of belonging to the Association, feeling part of a group, while benefiting from receiving therapies from the interdisciplinary team. The Association plays a relevant role in the evolution of the disease, as it influences how patients imagine their future. Developing strategies based on a good therapeutic alliance with professionals at the service of patients promotes the empowerment, adherence and continuity of treatments at home, which results in improving the quality of life of patients with PD.
OBJECTIVE: The aim of this study was to explore the experiences and perceptions of patients with PD in a Parkinson\'s Association.
METHODS: A sample of participants with PD who met the inclusion criteria was selected through purpose and theoretical sampling. Semi-structured qualitative interviews were used to collect the data, which was analyzed by thematic phenomenological analysis. Different strategies such as triangulation between researchers were used to ensure methodological rigor.
RESULTS: The data analyzed from 10 participants led to two themes: the context of the Association, where the importance of interdisciplinary treatments and the relationship with other patients is collected; and how they see their future, which describes the future perspectives that patients with PD have.
CONCLUSIONS: Patients agree on the importance of belonging to the Association, feeling part of a group, while benefiting from receiving therapies from the interdisciplinary team. The Association plays a relevant role in the evolution of the disease, as it influences how patients imagine their future. Developing strategies based on a good therapeutic alliance with professionals at the service of patients promotes the empowerment, adherence and continuity of treatments at home, which results in improving the quality of life of patients with PD.
摘要：
背景：帕金森病（PD）影响身体，认知，情感,以及遭受痛苦的人的社会领域。对患者来说，一个好的策略是加入一个协会，使用他们提供的服务。
目的：本研究的目的是探索帕金森病患者在帕金森病患者中的经历和认知。
方法：通过目的和理论抽样选择符合纳入标准的PD患者样本。半结构化定性访谈用于收集数据，通过专题现象学分析进行了分析。使用不同的策略，例如研究人员之间的三角测量，以确保方法的严谨性。
结果：从10名参与者分析的数据导致了两个主题：协会的背景，收集跨学科治疗的重要性以及与其他患者的关系；以及他们如何看待自己的未来，它描述了PD患者的未来前景。
结论：患者同意加入协会的重要性，感觉是一个群体的一部分，同时受益于接受跨学科团队的治疗。该协会在疾病的演变中起着相关的作用，因为这会影响病人对未来的想象.在与为患者服务的专业人员建立良好的治疗联盟的基础上制定策略，促进赋权，家庭治疗的坚持和连续性，从而改善PD患者的生活质量。
目的：本研究的目的是探索帕金森病患者在帕金森病患者中的经历和认知。
方法：通过目的和理论抽样选择符合纳入标准的PD患者样本。半结构化定性访谈用于收集数据，通过专题现象学分析进行了分析。使用不同的策略，例如研究人员之间的三角测量，以确保方法的严谨性。
结果：从10名参与者分析的数据导致了两个主题：协会的背景，收集跨学科治疗的重要性以及与其他患者的关系；以及他们如何看待自己的未来，它描述了PD患者的未来前景。
结论：患者同意加入协会的重要性，感觉是一个群体的一部分，同时受益于接受跨学科团队的治疗。该协会在疾病的演变中起着相关的作用，因为这会影响病人对未来的想象.在与为患者服务的专业人员建立良好的治疗联盟的基础上制定策略，促进赋权，家庭治疗的坚持和连续性，从而改善PD患者的生活质量。
