PDF(Pubmed)
Abstract：
BACKGROUND: People living with multiple chronic conditions (MCCs) face substantial challenges in planning and coordinating increasingly complex care. Family caregivers provide important assistance for people with MCCs but lack sufficient support. Caregiver apps have the potential to help by enhancing care coordination and planning among the health care team, including patients, caregivers, and clinicians.
OBJECTIVE: We aim to conduct a scoping review to assess the evidence on the development and use of caregiver apps that support care planning and coordination, as well as to identify key factors (ie, needs, barriers, and facilitators) related to their use and desired caregiver app functionalities.
METHODS: Papers intersecting 2 major domains, mobile health (mHealth) apps and caregivers, that were in English and published from 2015 to 2021 were included in the initial search from 6 databases and gray literature and ancestry searches. As per JBI (Joanna Briggs Institute) Scoping Review guidelines and PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews), 2 authors independently screened full texts with disagreements resolved by a third author. Working in pairs, the authors extracted data using a pilot-tested JBI extraction table and compared results for consensus.
RESULTS: We identified 34 papers representing 25 individual studies, including 18 (53%) pilot and feasibility studies, 13 (38%) qualitative studies, and 2 experimental or quasi-experimental studies. None of the identified studies assessed an intervention of a caregiver app for care planning and coordination for people with MCCs. We identified important caregiver needs in terms of information, support, and care coordination related to both caregiving and self-care. We compiled desired functionalities and features enabling apps to meet the care planning and care coordination needs of caregivers, in particular, the integration of caregiver roles into the electronic health record.
CONCLUSIONS: Caregiver needs identified through this study can inform developers and researchers in the design and implementation of mHealth apps that integrate with the electronic health record to link caregivers, patients, and clinicians to support coordinated care for people with MCCs. In addition, this study highlights the need for more rigorous research on the use of mHealth apps to support caregivers in care planning and coordination.
OBJECTIVE: We aim to conduct a scoping review to assess the evidence on the development and use of caregiver apps that support care planning and coordination, as well as to identify key factors (ie, needs, barriers, and facilitators) related to their use and desired caregiver app functionalities.
METHODS: Papers intersecting 2 major domains, mobile health (mHealth) apps and caregivers, that were in English and published from 2015 to 2021 were included in the initial search from 6 databases and gray literature and ancestry searches. As per JBI (Joanna Briggs Institute) Scoping Review guidelines and PRISMA-ScR (Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews), 2 authors independently screened full texts with disagreements resolved by a third author. Working in pairs, the authors extracted data using a pilot-tested JBI extraction table and compared results for consensus.
RESULTS: We identified 34 papers representing 25 individual studies, including 18 (53%) pilot and feasibility studies, 13 (38%) qualitative studies, and 2 experimental or quasi-experimental studies. None of the identified studies assessed an intervention of a caregiver app for care planning and coordination for people with MCCs. We identified important caregiver needs in terms of information, support, and care coordination related to both caregiving and self-care. We compiled desired functionalities and features enabling apps to meet the care planning and care coordination needs of caregivers, in particular, the integration of caregiver roles into the electronic health record.
CONCLUSIONS: Caregiver needs identified through this study can inform developers and researchers in the design and implementation of mHealth apps that integrate with the electronic health record to link caregivers, patients, and clinicians to support coordinated care for people with MCCs. In addition, this study highlights the need for more rigorous research on the use of mHealth apps to support caregivers in care planning and coordination.
摘要：
背景：患有多种慢性病（MCC）的人在规划和协调日益复杂的护理方面面临着巨大的挑战。家庭照顾者为患有MCC的人提供重要的帮助，但缺乏足够的支持。照顾者应用程序有可能通过加强医疗保健团队之间的护理协调和计划来提供帮助，包括患者,看护者,和临床医生。
目的：我们的目标是进行范围审查，以评估支持护理计划和协调的护理人员应用程序的开发和使用的证据。以及确定关键因素(即，需要,障碍,和促进者)与他们的使用和所需的护理人员应用程序功能有关。
方法：涉及两个主要领域的论文，移动健康(mHealth)应用程序和护理人员，从2015年到2021年发布的英文版本包含在6个数据库的初始搜索以及灰色文献和祖先搜索中。根据JBI（JoannaBriggsInstitute）范围审查指南和PRISMA-ScR（系统审查的首选报告项目和范围审查的荟萃分析扩展），2位作者独立筛选了全文，第三作者解决了分歧。成对工作，作者使用经过中试测试的JBI提取表提取数据,并比较结果达成共识.
结果：我们确定了34篇论文，代表25项单独研究，包括18项(53%)试点和可行性研究，13项（38%）定性研究，和2个实验或准实验研究。没有一项确定的研究评估了护理人员应用程序对MCC患者护理计划和协调的干预。我们在信息方面确定了重要的护理人员需求，支持,以及与护理和自我护理有关的护理协调。我们编制了所需的功能和特性，使应用程序能够满足护理人员的护理计划和护理协调需求，特别是,将护理人员角色整合到电子健康记录中。
结论：通过本研究确定的看护者需求可以为开发人员和研究人员提供设计和实施mHealth应用程序的信息，这些应用程序与电子健康记录集成以链接看护者，病人,和临床医生支持MCC患者的协调护理。此外,这项研究强调需要对使用mHealth应用程序进行更严格的研究,以支持护理人员进行护理计划和协调.
目的：我们的目标是进行范围审查，以评估支持护理计划和协调的护理人员应用程序的开发和使用的证据。以及确定关键因素(即，需要,障碍,和促进者)与他们的使用和所需的护理人员应用程序功能有关。
方法：涉及两个主要领域的论文，移动健康(mHealth)应用程序和护理人员，从2015年到2021年发布的英文版本包含在6个数据库的初始搜索以及灰色文献和祖先搜索中。根据JBI（JoannaBriggsInstitute）范围审查指南和PRISMA-ScR（系统审查的首选报告项目和范围审查的荟萃分析扩展），2位作者独立筛选了全文，第三作者解决了分歧。成对工作，作者使用经过中试测试的JBI提取表提取数据,并比较结果达成共识.
结果：我们确定了34篇论文，代表25项单独研究，包括18项(53%)试点和可行性研究，13项（38%）定性研究，和2个实验或准实验研究。没有一项确定的研究评估了护理人员应用程序对MCC患者护理计划和协调的干预。我们在信息方面确定了重要的护理人员需求，支持,以及与护理和自我护理有关的护理协调。我们编制了所需的功能和特性，使应用程序能够满足护理人员的护理计划和护理协调需求，特别是,将护理人员角色整合到电子健康记录中。
结论：通过本研究确定的看护者需求可以为开发人员和研究人员提供设计和实施mHealth应用程序的信息，这些应用程序与电子健康记录集成以链接看护者，病人,和临床医生支持MCC患者的协调护理。此外,这项研究强调需要对使用mHealth应用程序进行更严格的研究,以支持护理人员进行护理计划和协调.
