PDF(Pubmed)
Abstract：
Pediatric hospitalization is a common experience that may increase children\'s sense of isolation and impinge on their social-emotional wellbeing. Educators and medical practitioners could minimize these negative effects of hospitalization if they were able to listen to the voices of the children and, therefore, better meet their needs. This qualitative study provides an overview of how children with a medical condition actively construct and organize their thoughts and feelings about illness, life in hospital, and relationships. We extrapolated from a collection of children\'s narratives from a previous more comprehensive study (consisting of 379 narratives from children in 29 public hospitals across Italy, age range 3-14 years). Narratives grouped under the headings \"Me and my illness\" or \"Me and the others\" were selected and analyzed using interpretative phenomenological analysis (IPA) to identify the richness and complexity of children\'s experience. Results showed that children\'s description of their illness was affected both by cognitive and social factors. For children, the concept of feeling ill or well is not linked only to the fact that they are in hospital for a medical condition; rather, it is influenced by their ability to form relationships with others, play, be active, and feel alive within the hospital environment. Listening to narratives can deepen our understanding of children\'s illness-related experiences and how they make sense of their situation. A set of practice implications are presented to help health professionals and educators to improve their listening capabilities and better prevent adverse pediatric hospitalization outcomes.
摘要：
儿科住院是一种常见的经历，可能会增加儿童的孤立感，并影响他们的社会情感健康。教育者和医生可以最大限度地减少这些负面影响的住院，如果他们能够倾听儿童的声音，因此,更好地满足他们的需求。这项定性研究概述了患有疾病的儿童如何积极构建和组织他们对疾病的想法和感受，在医院的生活，和关系。我们从先前更全面的研究中收集了儿童的叙述（包括来自意大利29家公立医院儿童的379个叙述，年龄范围3-14岁)。选择并使用解释性现象学分析（IPA）对标题为“我和我的病”或“我和其他人”的叙述进行分析，以确定儿童经验的丰富性和复杂性。结果表明,儿童对疾病的描述受认知和社会因素的影响。对于孩子们来说,感觉不适或健康的概念不仅与他们因医疗状况而住院的事实有关；相反，它受到他们与他人建立关系的能力的影响，玩,积极,在医院环境中感到活着。倾听叙事可以加深我们对儿童疾病相关经历的理解，以及他们如何理解自己的处境。提出了一系列实践建议，以帮助卫生专业人员和教育工作者提高他们的听力能力，并更好地防止不良的儿科住院结果。
