Abstract：
OBJECTIVE: When a child needs a hematopoietic stem cell transplant, the seriousness of the child\'s illness is highlighted. The purpose of this study was to explore parents\' experiences of the transplantation process when two children in the family are involved, one severely ill child as the recipient and the other as the donor.
METHODS: In this qualitative study, interviews were conducted with 18 parents of 13 healthy minor donors after successful stem cell transplants. Qualitative content analysis was used to explore parents\' experiences.
RESULTS: The parents described they were living with the threat of losing a child. They lived with an uncertain future as they were confronted with life-changing information. Whether the ill child would survive or not could not be predicted; thus, parents had to endure unpredictability, and to cope with this they chose to focus on positives. Finally, the parents managed family life in the midst of chaos, felt an inadequacy and a perception that the family became a fragmented although close team during hospital stays. They expressed a need for both tangible and emotional support.
CONCLUSIONS: When a child needs a stem cell transplant, the parents feel inadequate to their healthy children including the donating child. It is obvious that they experience an uncertain future and struggle to keep the family together amid the chaos.
CONCLUSIONS: Considering these results, psychosocial support should be mandatory for parents in connection with pediatric HSCT, to enable a process where parents can prepare for the outcome, whether successful or not.
METHODS: In this qualitative study, interviews were conducted with 18 parents of 13 healthy minor donors after successful stem cell transplants. Qualitative content analysis was used to explore parents\' experiences.
RESULTS: The parents described they were living with the threat of losing a child. They lived with an uncertain future as they were confronted with life-changing information. Whether the ill child would survive or not could not be predicted; thus, parents had to endure unpredictability, and to cope with this they chose to focus on positives. Finally, the parents managed family life in the midst of chaos, felt an inadequacy and a perception that the family became a fragmented although close team during hospital stays. They expressed a need for both tangible and emotional support.
CONCLUSIONS: When a child needs a stem cell transplant, the parents feel inadequate to their healthy children including the donating child. It is obvious that they experience an uncertain future and struggle to keep the family together amid the chaos.
CONCLUSIONS: Considering these results, psychosocial support should be mandatory for parents in connection with pediatric HSCT, to enable a process where parents can prepare for the outcome, whether successful or not.
摘要：
目标：当儿童需要造血干细胞移植时，孩子疾病的严重性凸显出来。这项研究的目的是探讨父母的移植过程的经验，当两个孩子在家庭参与，一个病重的孩子作为接受者，另一个作为捐赠者。
方法：在这项定性研究中，在干细胞移植成功后，对13名健康未成年人捐赠者的18名父母进行了访谈。定性内容分析用于探索父母的经历。
结果：父母描述他们生活在失去孩子的威胁中。当他们面对改变生活的信息时，他们生活在一个不确定的未来。生病的孩子是否能活下来是无法预测的；因此，父母不得不忍受不可预测性，为了解决这个问题，他们选择了把重点放在积极的方面。最后,父母在混乱中管理家庭生活，感到不足，并认为在住院期间，家庭变得支离破碎，尽管亲密。他们表示需要有形和情感上的支持。
结论：当孩子需要干细胞移植时，父母对他们的健康孩子，包括捐赠孩子感到不足。很明显，他们经历了一个不确定的未来，并在混乱中努力保持家庭团结。
结论：考虑到这些结果，对于与小儿HSCT有关的父母来说，社会心理支持应该是强制性的，为了实现父母可以为结果做准备的过程，无论成功与否。
方法：在这项定性研究中，在干细胞移植成功后，对13名健康未成年人捐赠者的18名父母进行了访谈。定性内容分析用于探索父母的经历。
结果：父母描述他们生活在失去孩子的威胁中。当他们面对改变生活的信息时，他们生活在一个不确定的未来。生病的孩子是否能活下来是无法预测的；因此，父母不得不忍受不可预测性，为了解决这个问题，他们选择了把重点放在积极的方面。最后,父母在混乱中管理家庭生活，感到不足，并认为在住院期间，家庭变得支离破碎，尽管亲密。他们表示需要有形和情感上的支持。
结论：当孩子需要干细胞移植时，父母对他们的健康孩子，包括捐赠孩子感到不足。很明显，他们经历了一个不确定的未来，并在混乱中努力保持家庭团结。
结论：考虑到这些结果，对于与小儿HSCT有关的父母来说，社会心理支持应该是强制性的，为了实现父母可以为结果做准备的过程，无论成功与否。
