PDF(Pubmed)
Abstract：
BACKGROUND: Visual impairment is a common consequence of neurological impairments, and can impact a person\'s ability to undertake everyday tasks, affecting their confidence and mental health. Previous qualitative research in the UK has shown inequalities to exist where patients are accessing vision care after stroke, but little is known around the experiences of accessing vision care following other neurological impairments, and a lack of national guidelines prevent standardised care planning. The aim of this qualitative study is to explore the perceptions of vision care after neurological impairment, and to identify possible inequalities and support mechanisms, where it has been possible to access vision care.
METHODS: University ethical approval was obtained, and adults with a visual impairment as a result of a neurological impairment were offered an in-depth interview to explore their vision care experiences. Data were collected between April and November 2021 and analysed using iterative, thematic analysis (TA), informed by a social constructionist ideology.
RESULTS: Seventeen participants were recruited. Three overarching themes were conceptualised in relation to the participants\' perception of vision care: Making sense of the visual impairment; The responsibility of vision care; and Influential factors in care quality perception.
CONCLUSIONS: Inequalities were noted by participants, with most reporting a lack of suitable vision care offered as part of their neurological rehabilitation. Participants were thus burdened with the task of seeking their own support online, and encountered inaccurate and worrying information in the process. Participants noted changes in their identity, and the identity of their family carers, as they adjusted to their vision loss. The findings from this research highlight a need for clinicians to consider the long-term impact of vision loss after neurological impairment, and ensure patients are provided with adequate support and information, and appropriate referral pathways, alleviating this patient burden.
METHODS: University ethical approval was obtained, and adults with a visual impairment as a result of a neurological impairment were offered an in-depth interview to explore their vision care experiences. Data were collected between April and November 2021 and analysed using iterative, thematic analysis (TA), informed by a social constructionist ideology.
RESULTS: Seventeen participants were recruited. Three overarching themes were conceptualised in relation to the participants\' perception of vision care: Making sense of the visual impairment; The responsibility of vision care; and Influential factors in care quality perception.
CONCLUSIONS: Inequalities were noted by participants, with most reporting a lack of suitable vision care offered as part of their neurological rehabilitation. Participants were thus burdened with the task of seeking their own support online, and encountered inaccurate and worrying information in the process. Participants noted changes in their identity, and the identity of their family carers, as they adjusted to their vision loss. The findings from this research highlight a need for clinicians to consider the long-term impact of vision loss after neurological impairment, and ensure patients are provided with adequate support and information, and appropriate referral pathways, alleviating this patient burden.
摘要：
背景：视力障碍是神经系统损害的常见后果，并且会影响一个人承担日常任务的能力，影响他们的信心和心理健康。以前在英国的定性研究表明，在中风后患者获得视力护理的地方存在不平等，但是对其他神经损伤后获得视力护理的经验知之甚少，缺乏国家指导方针，阻碍了标准化护理计划。这项定性研究的目的是探索神经功能缺损后对视力护理的看法，并确定可能的不平等和支持机制，在那里可以获得视力保健。
方法：获得了大学伦理批准，对因神经功能缺损而导致视力障碍的成年人进行了深入访谈，以探讨他们的视力护理经验。数据在2021年4月至11月之间收集，并使用迭代进行分析，专题分析(TA)，受社会建构主义意识形态的影响。
结果：招募了17名参与者。关于参与者对视力护理的感知，概念化了三个总体主题：理解视力障碍；视力护理的责任；以及护理质量感知的影响因素。
结论：参与者注意到不平等，大多数人报告缺乏作为神经系统康复的一部分提供的合适的视力护理。因此，参与者承担了在网上寻求自己支持的任务，并在此过程中遇到了不准确和令人担忧的信息。参与者注意到他们身份的变化，以及他们家庭照顾者的身份，当他们适应视力丧失的时候。这项研究的发现强调了临床医生需要考虑神经功能缺损后视力丧失的长期影响，并确保为患者提供足够的支持和信息，和适当的转诊途径，减轻病人的负担。
方法：获得了大学伦理批准，对因神经功能缺损而导致视力障碍的成年人进行了深入访谈，以探讨他们的视力护理经验。数据在2021年4月至11月之间收集，并使用迭代进行分析，专题分析(TA)，受社会建构主义意识形态的影响。
结果：招募了17名参与者。关于参与者对视力护理的感知，概念化了三个总体主题：理解视力障碍；视力护理的责任；以及护理质量感知的影响因素。
结论：参与者注意到不平等，大多数人报告缺乏作为神经系统康复的一部分提供的合适的视力护理。因此，参与者承担了在网上寻求自己支持的任务，并在此过程中遇到了不准确和令人担忧的信息。参与者注意到他们身份的变化，以及他们家庭照顾者的身份，当他们适应视力丧失的时候。这项研究的发现强调了临床医生需要考虑神经功能缺损后视力丧失的长期影响，并确保为患者提供足够的支持和信息，和适当的转诊途径，减轻病人的负担。
