关键词: Fetoscopy Laser photocoagulation Medical decision-making Monochorionic twin pregnancy Relationship-based care

Mesh : Humans Female Pregnancy Pregnancy, Twin Laser Coagulation / methods Adult Prospective Studies Decision Making Fetoscopy / methods Qualitative Research

来  源:   DOI:10.1159/000539054

Abstract:
BACKGROUND: The aim of the study was to explore patients\' perspectives on diagnosis and treatment options for complicated monochorionic multiple gestations, and experiences with fetoscopic laser photocoagulation.
METHODS: This is a prospective cohort study of patients undergoing laser photocoagulation. Participants were interviewed during pregnancy and the postpartum period. Qualitative analysis was performed.
RESULTS: Twenty-seven patients who were candidates for laser photocoagulation were included. All elected to have laser photocoagulation. Patients chose surgery with goals of improving survival, decreasing the risk of preterm delivery, and improving the long-term health of their fetuses. They demonstrated accurate knowledge of the risks and benefits of treatment. Most (74%) felt that laser photocoagulation represented their only viable clinical option. Few seriously considered pregnancy termination or selective reduction (7% and 11% respectively). Postpartum, patients expressed no regrets about their decisions for surgery, but many felt unprepared for the challenges of preterm delivery.
CONCLUSIONS: Participants weighed treatment options similarly to fetal specialists. They acknowledged but did not seriously consider treatments other than fetoscopic laser photocoagulation and were highly motivated to do whatever they could to improve outcomes for their fetuses.
摘要:
背景:为了探索患者对复杂的单绒毛膜多胎妊娠的诊断和治疗选择的看法,和经验与胎儿镜激光光凝。
方法:这是一项对接受激光光凝治疗的患者进行的前瞻性队列研究。参与者在怀孕期间和产后期间进行了访谈。进行定性分析。
结果:纳入27例激光光凝候选患者。全部当选为激光光凝。患者选择以提高生存率为目标的手术,降低早产的风险,改善胎儿的长期健康。他们展示了对治疗风险和益处的准确了解。大多数(74%)认为激光光凝是他们唯一可行的临床选择。很少有人认真考虑终止妊娠或选择性减少妊娠(分别为7%和11%)。产后,患者对他们的手术决定并不后悔,但许多人对早产的挑战感到毫无准备。
结论:参与者与胎儿专家相似地权衡治疗方案。他们承认,但没有认真考虑除胎儿镜激光光凝外的其他治疗方法,并且非常有动力尽一切可能改善胎儿的结果。
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