PDF(Pubmed)
Abstract：
The COVID-19 pandemic imposed widespread impacts on the health and well-being of children with respiratory challenges and their families, as well as on the health care system that supports them. An exploratory qualitative study was undertaken to examine how the pandemic impacted families\' and health care providers\' daily lives and experiences of care. Four youth, 12 parents and 7 health care providers participated in interviews via telephone or online technology. Content analysis of transcribed interviews revealed participant experiences, including initial responses to the pandemic, adjustment to pandemic shifts, and anticipation of the future. While deleterious physical health impacts were minimal for children with pre-existing respiratory conditions, their mental health was negatively impacted by the pandemic and related health protocols. Families and health care providers experienced strain, yet demonstrated resilience. Pandemic-related shifts profoundly impacted daily life at home, school, and work. Pediatric pandemic planning in clinical care is recommended to better address the needs of children with respiratory conditions and their families as well as pediatric health care providers.
摘要：
COVID-19大流行对患有呼吸系统疾病的儿童及其家庭的健康和福祉产生了广泛影响，以及支持他们的医疗保健系统。进行了一项探索性定性研究，以检查大流行如何影响家庭和医疗保健提供者的日常生活和护理经验。四个青年，12名父母和7名医疗保健提供者通过电话或在线技术参加了采访。转录访谈的内容分析揭示了参与者的经历，包括对大流行的初步反应，适应大流行的变化，和对未来的期待。虽然对已有呼吸道疾病的儿童有害的身体健康影响很小，他们的心理健康受到大流行和相关健康协议的负面影响。家庭和医疗保健提供者经历了压力，但表现出了韧性。与大流行相关的变化深刻地影响了家庭的日常生活，学校,和工作。建议在临床护理中制定儿科大流行计划，以更好地满足患有呼吸系统疾病的儿童及其家庭以及儿科医疗保健提供者的需求。
