Abstract：
UNASSIGNED: Advance care planning discussions are crucial in the management and support of individuals with life-limiting or life-threatening conditions. Few studies have examined best practices for advance care planning with adolescents and young adults.
UNASSIGNED: To identify core components of current guidelines, frameworks and tools for advance care planning discussions with adolescents and young adults with life-limiting or life-threatening conditions and their families.
UNASSIGNED: A scoping review of the literature was conducted followed by a thematic analysis of the included papers. The scoping review was reported according to the Joanna Briggs Institute approach to the conduct of scoping reviews.
UNASSIGNED: Five databases [Cochrane Central Register of Controlled Trials (CENTRAL), Cochrane Database of Systematic Reviews, PsycInfo, PubMed and Scopus] were searched for English-language papers published between inception until January 2023.
UNASSIGNED: The search yielded 2976 papers, of which 9 met the inclusion criteria. Five main themes were identified: (i) utilisation of standardised documents and protocols; (ii) shared decision-making between the adolescents and young adults, their families and the healthcare team; (iii) the importance of open and honest communication with adolescents and young adults during advance care planning discussions; (iv) individualisation and flexibility in the advance care planning process and (v) timing of advance care planning initiation.
UNASSIGNED: Results highlight the importance of engaging adolescents and young adults in advance care planning and considering their unique needs when initiating and framing these discussions. Our findings can be used by healthcare professionals to inform advance care planning in this group.
UNASSIGNED: To identify core components of current guidelines, frameworks and tools for advance care planning discussions with adolescents and young adults with life-limiting or life-threatening conditions and their families.
UNASSIGNED: A scoping review of the literature was conducted followed by a thematic analysis of the included papers. The scoping review was reported according to the Joanna Briggs Institute approach to the conduct of scoping reviews.
UNASSIGNED: Five databases [Cochrane Central Register of Controlled Trials (CENTRAL), Cochrane Database of Systematic Reviews, PsycInfo, PubMed and Scopus] were searched for English-language papers published between inception until January 2023.
UNASSIGNED: The search yielded 2976 papers, of which 9 met the inclusion criteria. Five main themes were identified: (i) utilisation of standardised documents and protocols; (ii) shared decision-making between the adolescents and young adults, their families and the healthcare team; (iii) the importance of open and honest communication with adolescents and young adults during advance care planning discussions; (iv) individualisation and flexibility in the advance care planning process and (v) timing of advance care planning initiation.
UNASSIGNED: Results highlight the importance of engaging adolescents and young adults in advance care planning and considering their unique needs when initiating and framing these discussions. Our findings can be used by healthcare professionals to inform advance care planning in this group.
摘要：
■提前护理计划的讨论对于有生命限制或危及生命的个人的管理和支持至关重要。很少有研究研究了针对青少年和年轻人的提前护理计划的最佳实践。
■为了确定当前指南的核心组成部分，与有生命限制或危及生命的青少年及其家人进行提前护理计划讨论的框架和工具。
■对文献进行范围审查，然后对所包含的论文进行主题分析。范围审查是根据JoannaBriggsInstitute进行范围审查的方法报告的。
■五个数据库[Cochrane中央对照试验登记册（CENTRAL），Cochrane系统评价数据库，PsycInfo,搜索了PubMed和Scopus]从成立之初到2023年1月之间发表的英文论文。
■搜索产生了2976篇论文，其中9人符合纳入标准。确定了五个主要主题：（i）利用标准化文件和协议；（ii）青少年和年轻人之间的共同决策，他们的家人和医疗团队；（iii）在提前护理计划讨论期间与青少年和年轻人进行公开和诚实沟通的重要性；（iv）提前护理计划过程中的个性化和灵活性，以及（v）提前护理计划启动的时机。
■结果强调了在启动和框架这些讨论时，让青少年和年轻人参与预先护理计划并考虑他们独特需求的重要性。我们的发现可供医疗保健专业人员使用，以告知该组中的提前护理计划。
■为了确定当前指南的核心组成部分，与有生命限制或危及生命的青少年及其家人进行提前护理计划讨论的框架和工具。
■对文献进行范围审查，然后对所包含的论文进行主题分析。范围审查是根据JoannaBriggsInstitute进行范围审查的方法报告的。
■五个数据库[Cochrane中央对照试验登记册（CENTRAL），Cochrane系统评价数据库，PsycInfo,搜索了PubMed和Scopus]从成立之初到2023年1月之间发表的英文论文。
■搜索产生了2976篇论文，其中9人符合纳入标准。确定了五个主要主题：（i）利用标准化文件和协议；（ii）青少年和年轻人之间的共同决策，他们的家人和医疗团队；（iii）在提前护理计划讨论期间与青少年和年轻人进行公开和诚实沟通的重要性；（iv）提前护理计划过程中的个性化和灵活性，以及（v）提前护理计划启动的时机。
■结果强调了在启动和框架这些讨论时，让青少年和年轻人参与预先护理计划并考虑他们独特需求的重要性。我们的发现可供医疗保健专业人员使用，以告知该组中的提前护理计划。
