PDF(Pubmed)
Abstract：
With nephrolithiasis projected to affect 25% of the global population in the next three decades, there is an urgent call for innovative management strategies to prevent and reduce stone recurrence. This study aims to explore the evolving management needs in nephrolithiasis from both patient and healthcare provider perspectives. An expert-collaborative online survey comprising 10 targeted questions on kidney stone management was developed and disseminated. This survey was designed to gather comprehensive insights from patients, physicians and dietician and other person in the field of nephrolithiasis. Analysis of responses from 120 participants, including 45 nephrologists, 38 dieticians, 11 urologists, and 14 kidney stones patients followed in our hospital, revealed critical insights. A significant 97.5% emphasized the necessity of optimizing daily water intake, and 94.1% recognized the need for practical dietary modifications. Additionally, 88.3% of respondents found timely hydration reminders beneficial. Notably, monitoring urine color and pH was valued by 85% and 84.3% of the participants, respectively. A striking disparity emerged in the perception of fatigue and wellness monitoring, with 65% of patients prioritizing fatigue monitoring, a view less shared by healthcare professionals. Similarly, 71% of patients deemed wellness monitoring essential, highlighting a gap in understanding between patients and their caregivers. This study underscores the critical need for more tailored guidance on hydration strategies and the promise of remote urine parameters monitoring in nephrolithiasis management. The findings strongly advocate for a patient-centered approach, aligning medical recommendations with patient lifestyles and experiences, to enhance the effectiveness of nephrolithiasis management.
摘要：
预计在未来三十年内，肾结石将影响全球25%的人口，迫切需要创新管理策略，以预防和减少结石复发。本研究旨在从患者和医疗保健提供者的角度探讨肾结石的不断发展的管理需求。制定并分发了一项专家协作在线调查，其中包括10个有关肾结石管理的针对性问题。这项调查旨在收集患者的全面见解，医生和营养师以及肾结石领域的其他人。分析120名参与者的反应，包括45名肾病专家,38位营养师，11位泌尿科医师,我们医院随访了14名肾结石患者，揭示了批判性的见解。97.5%的人强调优化每日取水量的必要性，94.1%的人认识到需要进行实际的饮食调整。此外,88.3%的受访者认为及时补水有益。值得注意的是,监测尿液颜色和pH值的参与者分别为85％和84.3％，分别。在疲劳和健康监测方面出现了惊人的差异，65%的患者优先考虑疲劳监测，医疗保健专业人员较少分享的观点。同样，71%的患者认为健康监测至关重要，突出患者和他们的照顾者之间的理解差距。这项研究强调了迫切需要对水合策略进行更量身定制的指导，并有望在肾结石治疗中进行远程尿液参数监测。这些发现强烈主张以患者为中心的方法，使医疗建议与患者的生活方式和经验保持一致，提高肾结石管理的有效性。
