关键词: chronic illness common sense model illness representations migraine self-management self-regulation theory theoretical framework analysis

Mesh : Humans Migraine Disorders / psychology therapy United Kingdom Male Female Adult Middle Aged Adaptation, Psychological Interviews as Topic Quality of Life Perception Aged Emotions Self-Management / psychology Qualitative Research

来  源:   DOI:10.1093/ijpp/riae014

Abstract:
OBJECTIVE: Migraine is considered a chronic health condition that impacts both quality of life and psychological wellbeing. People with migraines use a range of management strategies, which include pharmacological and non-pharmacological treatments. The aim of this study was to explore individuals\' experiences and perceptions of migraines and its treatment using the Common-Sense Model (CSM) of Illness Representations.
METHODS: Semi-structured, one-to-one interviews were conducted with eleven individuals with a history of migraine to explore their experiences and perceptions of migraine and its treatment. Participants were recruited from across the United Kingdom via convenience sampling using social media advertisement. Interviews were recorded, transcribed verbatim, and qualitative data were analysed using theoretical framework analysis using the CSM.
RESULTS: The three dimensions of the CSM were mapped on to the qualitative data. These were: (i) Cognitive representations of migraine, within five domains: (a) identity of migraine, (b) perceived causes, (c) perceived timeline, (d) perceived control/cure, and (e) perceived consequences; (ii) Emotional representations of migraine relating to (a) migraine specific emotions and (b) emotional representation of the impact of migraine; and (iii) Coping/self-management behaviours, namely (a) self-medicating behaviours and (b) care-seeking behaviours. No incongruous data were found; therefore, no further thematic analysis was required.
CONCLUSIONS: This is the first study to apply the CSM to migraine for framework analysis of qualitative data in this way. The findings illustrate the emotional impact of migraine and the range of illness perceptions associated with appropriate self-management. The data will be used to design a questionnaire for quantitative studies to investigate the extent to which these perceptions are generalizable to the wider population of people who experience migraines.
摘要:
目的:偏头痛被认为是一种影响生活质量和心理健康的慢性健康状况。偏头痛患者使用一系列管理策略,其中包括药理学和非药理学治疗。这项研究的目的是使用疾病表征的常识模型(CSM)探索个人对偏头痛及其治疗的经验和看法。
方法:半结构化,我们对11例有偏头痛病史的患者进行了一对一访谈,以探讨他们对偏头痛及其治疗的经历和看法.参与者是通过使用社交媒体广告进行便利抽样从英国各地招募的。采访被记录下来,逐字转录,定性数据使用CSM进行理论框架分析。
结果:将CSM的三个维度映射到定性数据上。这些是:(i)偏头痛的认知表征,在五个领域内:(A)偏头痛的身份,(b)察觉的原因,(C)感知的时间表,(d)感知控制/治愈,和(e)感知的后果;(ii)与(a)偏头痛特定情绪和(b)偏头痛影响的情绪表现有关的偏头痛情绪表现;(iii)应对/自我管理行为,即(a)自我用药行为和(b)寻求护理行为。没有发现不一致的数据;因此,不需要进一步的主题分析.
结论:这是第一项将CSM应用于偏头痛的研究,以这种方式对定性数据进行框架分析。研究结果说明了偏头痛的情绪影响以及与适当的自我管理相关的疾病感知范围。这些数据将用于设计定量研究的问卷,以调查这些看法在多大程度上可推广到更广泛的偏头痛患者。
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