Abstract：
OBJECTIVE: Speech pathology is the first-line treatment for inducible laryngeal obstruction (ILO) and involves behavioral techniques to address symptoms and modify maladaptive laryngeal postures. Benefit from speech pathology is reliant on patients engaging in treatment sessions, regular home practice, and generalizing techniques to everyday activities. There is limited research exploring engagement in speech pathology treatment for ILO, particularly from the patient perspective. This study aimed to explore the experiences of living with ILO and how this experience may impact the way patients engage in speech pathology treatment.
METHODS: Qualitative study.
METHODS: Semistructured interviews were completed with seven participants exploring their experiences living with ILO, their diagnostic process and their experiences with speech pathology treatment. Data were analyzed using reflexive thematic analysis to determine shared meanings across participants and themes were developed.
RESULTS: Three major themes were identified - Life with ILO, Challenges of Speech Pathology Treatment, and What Matters to Me. Patients\' reports of living with ILO and interacting with speech pathology suggested that these experiences impacted their readiness to start treatment and persist through the challenges of the treatment. Engagement appeared to be positively associated with significant ILO symptom burden and life impact, confidence in the diagnostic process, recommendation for speech pathology treatment, a tailored intervention by a patient-perceived expert in the field and working in a partnership with the speech pathologist to develop a sense of agency. Patients indicated their engagement was negatively influenced by competing time demands, social embarrassment when using symptom relief techniques and laryngeal exercises, and a low ILO symptom burden and life impact.
CONCLUSIONS: The reasons behind engagement in speech pathology treatment for ILO appear to be a complex interaction between previous experiences of living with ILO including the diagnostic process and the experience of speech pathology treatment. A patient-centered approach to therapy may help to maximize engagement by exploring readiness and expectations for treatment. The greater understanding of the patient experience provided through this study may allow speech pathologists to devise meaningful ways to maximize engagement in treatment for people with ILO.
METHODS: Qualitative study.
METHODS: Semistructured interviews were completed with seven participants exploring their experiences living with ILO, their diagnostic process and their experiences with speech pathology treatment. Data were analyzed using reflexive thematic analysis to determine shared meanings across participants and themes were developed.
RESULTS: Three major themes were identified - Life with ILO, Challenges of Speech Pathology Treatment, and What Matters to Me. Patients\' reports of living with ILO and interacting with speech pathology suggested that these experiences impacted their readiness to start treatment and persist through the challenges of the treatment. Engagement appeared to be positively associated with significant ILO symptom burden and life impact, confidence in the diagnostic process, recommendation for speech pathology treatment, a tailored intervention by a patient-perceived expert in the field and working in a partnership with the speech pathologist to develop a sense of agency. Patients indicated their engagement was negatively influenced by competing time demands, social embarrassment when using symptom relief techniques and laryngeal exercises, and a low ILO symptom burden and life impact.
CONCLUSIONS: The reasons behind engagement in speech pathology treatment for ILO appear to be a complex interaction between previous experiences of living with ILO including the diagnostic process and the experience of speech pathology treatment. A patient-centered approach to therapy may help to maximize engagement by exploring readiness and expectations for treatment. The greater understanding of the patient experience provided through this study may allow speech pathologists to devise meaningful ways to maximize engagement in treatment for people with ILO.
摘要：
目的：言语病理学是可诱导的喉梗阻（ILO）的一线治疗方法，涉及到处理症状和改变喉适应不良姿势的行为技术。从语言病理学中获益依赖于参与治疗的患者，定期在家练习，并将技术推广到日常活动中。有有限的研究探索参与国际劳工组织的言语病理学治疗，特别是从病人的角度。本研究旨在探讨与国际劳工组织一起生活的经历，以及这种经历如何影响患者从事言语病理学治疗的方式。
方法：定性研究。
方法：对7名参与者进行了半结构化访谈，探讨了他们在国际劳工组织的生活经历。他们的诊断过程和语言病理学治疗的经验。使用反身主题分析对数据进行了分析，以确定参与者之间的共享含义，并开发了主题。
结果：确定了三个主要主题-国际劳工组织的生活，言语病理治疗的挑战，和什么对我很重要。患者与ILO生活在一起并与言语病理学互动的报告表明，这些经历影响了他们开始治疗的准备程度，并坚持接受治疗的挑战。参与似乎与显著的国际劳工组织症状负担和生活影响呈正相关，对诊断过程的信心，语言病理学治疗的建议，由患者感知的领域专家进行量身定制的干预，并与言语病理学家合作，以培养代理意识。患者表示他们的参与受到竞争时间需求的负面影响，使用症状缓解技术和喉部锻炼时的社会尴尬，以及较低的国际劳工组织症状负担和生活影响。
结论：参与国际劳工组织言语病理学治疗的原因似乎是与国际劳工组织一起生活的先前经历之间的复杂相互作用，包括诊断过程和言语病理学治疗的经历。以患者为中心的治疗方法可以通过探索治疗的准备和期望来帮助最大化参与度。通过这项研究提供的对患者体验的更多了解可能使言语病理学家能够设计出有意义的方法，以最大程度地参与国际劳工组织患者的治疗。
方法：定性研究。
方法：对7名参与者进行了半结构化访谈，探讨了他们在国际劳工组织的生活经历。他们的诊断过程和语言病理学治疗的经验。使用反身主题分析对数据进行了分析，以确定参与者之间的共享含义，并开发了主题。
结果：确定了三个主要主题-国际劳工组织的生活，言语病理治疗的挑战，和什么对我很重要。患者与ILO生活在一起并与言语病理学互动的报告表明，这些经历影响了他们开始治疗的准备程度，并坚持接受治疗的挑战。参与似乎与显著的国际劳工组织症状负担和生活影响呈正相关，对诊断过程的信心，语言病理学治疗的建议，由患者感知的领域专家进行量身定制的干预，并与言语病理学家合作，以培养代理意识。患者表示他们的参与受到竞争时间需求的负面影响，使用症状缓解技术和喉部锻炼时的社会尴尬，以及较低的国际劳工组织症状负担和生活影响。
结论：参与国际劳工组织言语病理学治疗的原因似乎是与国际劳工组织一起生活的先前经历之间的复杂相互作用，包括诊断过程和言语病理学治疗的经历。以患者为中心的治疗方法可以通过探索治疗的准备和期望来帮助最大化参与度。通过这项研究提供的对患者体验的更多了解可能使言语病理学家能够设计出有意义的方法，以最大程度地参与国际劳工组织患者的治疗。
