Abstract：
UNASSIGNED: Functional neurological disorders are common, highly stigmatised and associated with significant disability. This review aimed to synthesise qualitative research exploring the experiences of people living with motor and/or sensory FND. Identifying their needs should inform service development, education for healthcare professionals and generate future research questions.
UNASSIGNED: Five databases were systematically searched (Medline, PsychInfo, Web of Science, Embase and Cinahl) in November 2022, updated in June 2023. Data from included papers was extracted by two authors and studies were critically appraised using the Critical Appraisal Skills Programme (CASP). Data was thematically analysed and synthesised.
UNASSIGNED: 12 papers were included in the synthesis describing the views of 156 people with FND. The overarching theme was uncertainty; about what caused FND and how to live with it. Uncertainty was underpinned by four analytic themes; challenging healthcare interactions, loss of power and control, who or what is responsible and living with a visible disability and an invisible illness. Early and clear diagnosis, validation and support for living with FND should form part of multidisciplinary care. Co-produced service development, research agendas and education for clinicians, patients and the public would reduce stigma and improve the experiences of people with FND.
A clear diagnosis and explanation of motor and/or sensory functional neurological disorder is validating and an important first step in recovery.People with motor and/or sensory functional neurological disorder experience significant disability, stigma, self-blame and functional impairment.Multidisciplinary care pathways for functional neurological disorder urgently need to be developed.There is a need for co-produced education and training for healthcare professionals which covers how to deliver diagnoses and personalised formulations, communicate concepts of applied neuroscience and challenges stigma and discrimination.
UNASSIGNED: Five databases were systematically searched (Medline, PsychInfo, Web of Science, Embase and Cinahl) in November 2022, updated in June 2023. Data from included papers was extracted by two authors and studies were critically appraised using the Critical Appraisal Skills Programme (CASP). Data was thematically analysed and synthesised.
UNASSIGNED: 12 papers were included in the synthesis describing the views of 156 people with FND. The overarching theme was uncertainty; about what caused FND and how to live with it. Uncertainty was underpinned by four analytic themes; challenging healthcare interactions, loss of power and control, who or what is responsible and living with a visible disability and an invisible illness. Early and clear diagnosis, validation and support for living with FND should form part of multidisciplinary care. Co-produced service development, research agendas and education for clinicians, patients and the public would reduce stigma and improve the experiences of people with FND.
A clear diagnosis and explanation of motor and/or sensory functional neurological disorder is validating and an important first step in recovery.People with motor and/or sensory functional neurological disorder experience significant disability, stigma, self-blame and functional impairment.Multidisciplinary care pathways for functional neurological disorder urgently need to be developed.There is a need for co-produced education and training for healthcare professionals which covers how to deliver diagnoses and personalised formulations, communicate concepts of applied neuroscience and challenges stigma and discrimination.
摘要：
■功能性神经系统疾病很常见，高度污名化，并与严重残疾有关。这篇综述旨在综合定性研究，探索患有运动和/或感觉FND的人们的经历。确定他们的需求应该为服务开发提供信息，对医疗保健专业人员的教育，并产生未来的研究问题。
■系统地搜索了五个数据库(Medline，PsychInfo,WebofScience,Embase和Cinahl）于2022年11月，于2023年6月更新。两位作者提取了论文中的数据，并使用关键评估技能计划（CASP）对研究进行了严格评估。对数据进行了主题分析和综合。
■合成中包含12篇论文，描述了156名FND患者的观点。首要主题是不确定性；关于是什么导致了FND以及如何与之共存。不确定性由四个分析主题支撑；具有挑战性的医疗保健互动，失去动力和控制，谁或什么是负责任的，生活在明显的残疾和无形的疾病中。早期明确诊断，与FND一起生活的验证和支持应成为多学科护理的一部分。联合生产服务开发，临床医生的研究议程和教育，患者和公众将减少污名并改善FND患者的体验。
对运动和/或感觉功能性神经障碍的明确诊断和解释是有效的，也是康复的重要第一步。患有运动和/或感觉功能性神经障碍的人经历了严重的残疾，污名,自责和功能障碍。迫切需要开发针对功能性神经系统疾病的多学科护理途径。需要为医疗保健专业人员提供共同制作的教育和培训，涵盖如何提供诊断和个性化配方，传达应用神经科学的概念，挑战污名和歧视。
■系统地搜索了五个数据库(Medline，PsychInfo,WebofScience,Embase和Cinahl）于2022年11月，于2023年6月更新。两位作者提取了论文中的数据，并使用关键评估技能计划（CASP）对研究进行了严格评估。对数据进行了主题分析和综合。
■合成中包含12篇论文，描述了156名FND患者的观点。首要主题是不确定性；关于是什么导致了FND以及如何与之共存。不确定性由四个分析主题支撑；具有挑战性的医疗保健互动，失去动力和控制，谁或什么是负责任的，生活在明显的残疾和无形的疾病中。早期明确诊断，与FND一起生活的验证和支持应成为多学科护理的一部分。联合生产服务开发，临床医生的研究议程和教育，患者和公众将减少污名并改善FND患者的体验。
对运动和/或感觉功能性神经障碍的明确诊断和解释是有效的，也是康复的重要第一步。患有运动和/或感觉功能性神经障碍的人经历了严重的残疾，污名,自责和功能障碍。迫切需要开发针对功能性神经系统疾病的多学科护理途径。需要为医疗保健专业人员提供共同制作的教育和培训，涵盖如何提供诊断和个性化配方，传达应用神经科学的概念，挑战污名和歧视。
