PDF(Pubmed)
Abstract：
Most of the studies on the cost of intellectual disability are limited to a healthcare perspective or cohorts composed of individuals where the etiology of the condition is a mixture of genetic and non-genetic factors. When used in policy development, these can impact the decisions made on the optimal allocation of resources. In our study, we have developed a static microsimulation model to estimate the healthcare, societal, and lifetime cost of individuals with familial intellectual disability, an inheritable form of the condition, to families and government. The results from our modeling show that the societal costs outweighed the health costs (approximately 89.2% and 10.8%, respectively). The lifetime cost of familial intellectual disability is approximately AUD 7 million per person and AUD 10.8 million per household. The lifetime costs to families are second to those of the Australian Commonwealth government (AUD 4.2 million and AUD 9.3 million per household, respectively). These findings suggest that familial intellectual disability is a very expensive condition, representing a significant cost to families and government. Understanding the drivers of familial intellectual disability, especially societal, can assist us in the development of policies aimed at improving health outcomes and greater access to social care for affected individuals and their families.
摘要：
大多数关于智力残疾成本的研究仅限于医疗保健观点或由个体组成的队列，其中该疾病的病因是遗传和非遗传因素的混合物。当用于政策制定时，这些都会影响资源优化配置的决策。在我们的研究中,我们开发了一个静态微观模拟模型来估计医疗保健，社会,以及家庭智力残疾人士的终生成本，条件的可继承形式，家庭和政府。我们建模的结果表明，社会成本超过了医疗成本(约89.2%和10.8%，分别)。家庭智力残疾的终生成本约为每人700万澳元，每个家庭1080万澳元。家庭的终生成本仅次于澳大利亚联邦政府（每户420万澳元和930万澳元，分别)。这些发现表明，家族性智力障碍是一种非常昂贵的疾病，这给家庭和政府带来了巨大的代价。了解家庭智力残疾的驱动因素，尤其是社会，可以帮助我们制定旨在改善健康结果和为受影响的个人及其家庭提供更多社会护理的政策。
