Abstract：
OBJECTIVE: Parents of children/adolescents with cancer are placed in a state of severe suffering due to serious concerns, fears, and radical daily life changes. Human support is an important source of support for successful coping. This study explored fundamental aspects of parents\' daily, social, and personal life during their child\'s treatment to deepen our understanding of \'who\' plays a significant role in supporting parents, and how, and to what extent this support is provided.
METHODS: This qualitative study was undertaken in a compassion paradigm, designed and guided by Heidegger\'s and Gadamer\'s philosophy and compassionate methods. Data were generated through ethnographic observations (144 h), focus group interviews (n = 2), and individual/couple interviews (n = 16) at two Danish hospitals. Inductive content analysis was used to analyse data.
RESULTS: Overall, support from peers, health professionals, and social networks constituted significant sources of support. Especially peers and health professionals had a continuous support role, which was fundamental for establishing interpersonal closeness and relieving suffering. Sharing responsibilities between parents and among social networks seemed to ease the emotional and practical burden. However, to ensure effectiveness, social networks must be available, outreach, and responsive to needs. Moreover, parents disclosed little self-awareness and resources and options for self-care due to a combination of lack of awareness, time, and space in the hospitals.
CONCLUSIONS: Safeguarding interpersonal and interparental understanding and closeness in parental care is essential. One way is building resilience and a broader human-to-human-based safety net around the family, including social networks and professional psychosocial support, advantageously using compassion.
METHODS: This qualitative study was undertaken in a compassion paradigm, designed and guided by Heidegger\'s and Gadamer\'s philosophy and compassionate methods. Data were generated through ethnographic observations (144 h), focus group interviews (n = 2), and individual/couple interviews (n = 16) at two Danish hospitals. Inductive content analysis was used to analyse data.
RESULTS: Overall, support from peers, health professionals, and social networks constituted significant sources of support. Especially peers and health professionals had a continuous support role, which was fundamental for establishing interpersonal closeness and relieving suffering. Sharing responsibilities between parents and among social networks seemed to ease the emotional and practical burden. However, to ensure effectiveness, social networks must be available, outreach, and responsive to needs. Moreover, parents disclosed little self-awareness and resources and options for self-care due to a combination of lack of awareness, time, and space in the hospitals.
CONCLUSIONS: Safeguarding interpersonal and interparental understanding and closeness in parental care is essential. One way is building resilience and a broader human-to-human-based safety net around the family, including social networks and professional psychosocial support, advantageously using compassion.
摘要：
目标：患有癌症的儿童/青少年的父母由于严重的担忧而处于严重的痛苦状态，恐惧,和激进的日常生活变化。人的支持是成功应对的重要支持来源。这项研究探讨了父母每天的基本方面，社会,和个人生活在他们的孩子的治疗，以加深我们的理解\'谁\'在支持父母的重要作用，以及如何，以及提供这种支持的程度。
方法：这项定性研究是在同情范式中进行的，由海德格尔和伽达默尔的哲学和富有同情心的方法设计和指导。数据是通过人种学观察(144小时)产生的，焦点小组访谈(n=2)，以及两家丹麦医院的个人/夫妇访谈（n=16）。采用归纳内容分析法对数据进行分析。
结果：总体而言，同行的支持,卫生专业人员,和社交网络构成了重要的支持来源。特别是同行和卫生专业人员有持续的支持作用，这是建立人际关系和减轻痛苦的基础。父母之间和社交网络之间分担责任似乎减轻了情感和实际负担。然而,为了确保有效性，社交网络必须可用，外展，并响应需求。此外，由于缺乏意识，父母几乎没有自我意识以及自我护理的资源和选择，时间,和医院的空间。
结论：在父母照料中维护人际关系和父母间的理解和亲密关系至关重要。一种方法是在家庭周围建立韧性和更广泛的人与人之间的安全网，包括社交网络和专业社会心理支持，有利地使用同情心。
方法：这项定性研究是在同情范式中进行的，由海德格尔和伽达默尔的哲学和富有同情心的方法设计和指导。数据是通过人种学观察(144小时)产生的，焦点小组访谈(n=2)，以及两家丹麦医院的个人/夫妇访谈（n=16）。采用归纳内容分析法对数据进行分析。
结果：总体而言，同行的支持,卫生专业人员,和社交网络构成了重要的支持来源。特别是同行和卫生专业人员有持续的支持作用，这是建立人际关系和减轻痛苦的基础。父母之间和社交网络之间分担责任似乎减轻了情感和实际负担。然而,为了确保有效性，社交网络必须可用，外展，并响应需求。此外，由于缺乏意识，父母几乎没有自我意识以及自我护理的资源和选择，时间,和医院的空间。
结论：在父母照料中维护人际关系和父母间的理解和亲密关系至关重要。一种方法是在家庭周围建立韧性和更广泛的人与人之间的安全网，包括社交网络和专业社会心理支持，有利地使用同情心。
