PDF(Pubmed)
Abstract：
BACKGROUND: Interventions for social difficulties have not been investigated in the neurofibromatosis type 1 (NF1) population despite observations of elevated rates of social difficulties. In this pilot study, the effectiveness of a 14-week telehealth PEERS® intervention with nineteen adolescents with NF1 (Mage=13.79 years, SD = 1.32) with social skills difficulties was examined. Measures of social outcomes were completed at three timepoints (before, immediately after, and at 14-week follow-up).
RESULTS: Caregiver-reported social-emotional skills, social impairment, caregiver-reported number of adolescent get-togethers, and teen social knowledge showed significant improvement following the intervention.
CONCLUSIONS: The PEERS® intervention is promising to support the social and friendship skills of adolescents with NF1 who have social difficulties.
RESULTS: Caregiver-reported social-emotional skills, social impairment, caregiver-reported number of adolescent get-togethers, and teen social knowledge showed significant improvement following the intervention.
CONCLUSIONS: The PEERS® intervention is promising to support the social and friendship skills of adolescents with NF1 who have social difficulties.
摘要：
背景：尽管观察到社会困难发生率升高，但尚未在1型神经纤维瘤病（NF1）人群中研究社会困难的干预措施。在这项试点研究中，对19名NF1青少年进行14周远程医疗PEERS®干预的有效性(Mage=13.79岁，SD=1.32）与社交技能困难进行了检查。社会成果的衡量标准在三个时间点完成(之前，紧接着,并在14周的随访中）。
结果：照顾者报告的社交情感技能，社会损害，护理人员报告的青少年聚会次数，干预后，青少年社会知识显着改善。
结论：PEERS®干预措施有望支持有社交困难的NF1青少年的社交和友谊技能。
结果：照顾者报告的社交情感技能，社会损害，护理人员报告的青少年聚会次数，干预后，青少年社会知识显着改善。
结论：PEERS®干预措施有望支持有社交困难的NF1青少年的社交和友谊技能。
