关键词: Head and neck cancer Psychosocial adjustment Qualitative research Quality of life Supportive care Voice prosthesis

来  源:   DOI:10.1016/j.apjon.2023.100362   PDF(Pubmed)

Abstract:
UNASSIGNED: Speech rehabilitation significantly contributes to the enhanced quality of life for patients who have undergone laryngectomy due to head and neck cancer. The initiation of tracheoesophageal speech early in the rehabilitation process has been associated with improved speech quality. Despite this, voice changes can carry a stigma due to communication challenges, even after successful voice restoration, potentially limiting the overall improvement in quality of life. Thus, our aim was to gain a profound understanding of the transition process from the selection to the adaptation of tracheoesophageal speech in patients with head and neck cancer.
UNASSIGNED: Participants, who had undergone laryngectomy for head and neck cancer, were recruited from peer support groups in Japan, resulting in the identification of thirteen tracheoesophageal speakers. The data were analyzed using grounded theory methodology, incorporating open, axial, and selective coding. Semi-structured interviews delved into tracheoesophageal speakers\' perceptions of their voices and the adaptive strategies employed for their preferred alternative communication methods.
UNASSIGNED: During the adaptation process, participants underscored the importance of communicating with their own voices. However, they also experienced anxiety about losing their natural voice, confronted the reality of living without a voice, and coped with their new voice. Eventually, participants came to recognize the changed voice as their own.
UNASSIGNED: The personal conviction associated with the notion of \"communicating with one\'s own voice\" is integral to the adaptation process for patients with head and neck cancer who undergo laryngectomies and utilize tracheoesophageal speech. Some aspects of tracheoesophageal speech can evoke feelings of hopelessness, emphasizing the importance of comprehensive support for professional speech rehabilitation.
摘要:
言语康复有助于提高因头颈部癌症而接受喉切除术的患者的生活质量。在康复过程中早期开始气管食管语音与改善语音质量有关。尽管如此,由于沟通挑战,语音变化可能会带来耻辱,即使在成功的语音恢复之后,可能限制生活质量的整体改善。因此,我们的目的是深入了解头颈部癌症患者从选择到适应气管食管语言的过渡过程。
参与者,他因头颈部癌症接受了喉切除术,是从日本的同行支持团体招募的,从而识别出13个气管食管扬声器。数据采用扎根理论方法进行分析,结合开放,轴向,和选择性编码。半结构化访谈探讨了气管食管说话者对他们声音的看法以及他们首选的替代交流方法所采用的适应性策略。
在适应过程中,参与者强调了用自己的声音交流的重要性。然而,他们也经历了失去自然声音的焦虑,面对没有声音的生活现实,用他们的新声音。最终,参与者开始将改变的声音视为自己的声音。
与“用自己的声音交流”概念相关的个人信念对于接受喉切除术并利用气管食管语音的头颈部癌症患者的适应过程是不可或缺的。气管食管语言的某些方面可以唤起绝望的感觉,强调全面支持专业言语康复的重要性。
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