PDF(Pubmed)
Abstract：
UNASSIGNED: Mental health recovery narratives are widely available to the public, and can benefit people affected by mental health problems. The NEON Intervention is a novel web-based digital health intervention providing access to the NEON Collection of recovery narratives. The NEON Intervention was found to be effective and cost-effective in the NEON-O Trial for people with nonpsychosis mental health problems (ISRCTN63197153), and has also been evaluated in the NEON Trial for people with psychosis experience (ISRCTN11152837). We aimed to document NEON Intervention experiences, through an integrated process evaluation.
UNASSIGNED: Analysis of interviews with a purposive sample of intervention arm participants who had completed trial participation.
UNASSIGNED: We interviewed 34 NEON Trial and 20 NEON-O Trial participants (mean age 40.4 years). Some users accessed narratives through the NEON Intervention almost daily, whilst others used it infrequently or not at all. Motivations for trial participation included: exploring the NEON Intervention as an alternative or addition to existing mental health provision; searching for answers about mental health experiences; developing their practice as a mental health professional (for a subset who were mental health professionals); claiming payment vouchers. High users (10 + narrative accesses) described three forms of appropriation: distracting from difficult mental health experiences; providing an emotional boost; sustaining a sense of having a social support network. Most participants valued the scale of the NEON Collection (n = 659 narratives), but some found it overwhelming. Many felt they could describe the characteristics of a desired narrative that would benefit their mental health. Finding a narrative meeting their desires enhanced engagement, but not finding one reduced engagement. Narratives in the NEON Collection were perceived as authentic if they acknowledged the difficult reality of mental health experiences, appeared to describe real world experiences, and described mental health experiences similar to those of the participant.
UNASSIGNED: We present recommendations for digital health interventions incorporating collections of digital narratives: (1) make the scale and diversity of the collection visible; (2) provide delivery mechanisms that afford appropriation; (3) enable contributors to produce authentic narratives; (4) enable learning by healthcare professionals; (5) consider use to address loneliness.
UNASSIGNED: Analysis of interviews with a purposive sample of intervention arm participants who had completed trial participation.
UNASSIGNED: We interviewed 34 NEON Trial and 20 NEON-O Trial participants (mean age 40.4 years). Some users accessed narratives through the NEON Intervention almost daily, whilst others used it infrequently or not at all. Motivations for trial participation included: exploring the NEON Intervention as an alternative or addition to existing mental health provision; searching for answers about mental health experiences; developing their practice as a mental health professional (for a subset who were mental health professionals); claiming payment vouchers. High users (10 + narrative accesses) described three forms of appropriation: distracting from difficult mental health experiences; providing an emotional boost; sustaining a sense of having a social support network. Most participants valued the scale of the NEON Collection (n = 659 narratives), but some found it overwhelming. Many felt they could describe the characteristics of a desired narrative that would benefit their mental health. Finding a narrative meeting their desires enhanced engagement, but not finding one reduced engagement. Narratives in the NEON Collection were perceived as authentic if they acknowledged the difficult reality of mental health experiences, appeared to describe real world experiences, and described mental health experiences similar to those of the participant.
UNASSIGNED: We present recommendations for digital health interventions incorporating collections of digital narratives: (1) make the scale and diversity of the collection visible; (2) provide delivery mechanisms that afford appropriation; (3) enable contributors to produce authentic narratives; (4) enable learning by healthcare professionals; (5) consider use to address loneliness.
摘要：
■心理健康恢复叙述广泛提供给公众，并能使受心理健康影响的人受益。NEON干预是一种新颖的基于网络的数字健康干预措施，可访问NEON恢复叙述集。NEON干预在NEON-O试验中被发现是有效和成本效益的非精神病精神健康问题的人（ISRCTN63197153），并且在NEON试验中也对有精神病经历的人进行了评估(ISRCTN11152837)。我们旨在记录NEON干预经验，通过综合过程评估。
■对已完成试验参与的干预组参与者的目的性样本的访谈分析。
我们采访了34名NEON试验和20名NEON-O试验参与者（平均年龄40.4岁）。一些用户几乎每天都通过NEON干预访问叙述，而其他人不经常使用或根本不使用它。参与试验的动机包括：探索NEON干预措施作为现有精神卫生规定的替代或补充；寻找有关精神卫生经验的答案；发展他们作为精神卫生专业人员的实践（对于一部分精神卫生专业人员）；申请付款券。高用户（10种叙事访问）描述了三种形式的挪用：分散困难的心理健康体验；提供情感提升；维持拥有社会支持网络的感觉。大多数参与者都重视NEON收藏的规模(n=659个叙述)，但有些人发现它是压倒性的。许多人认为他们可以描述所需叙事的特征，这将有利于他们的心理健康。找到一个满足他们欲望的叙事，增强参与度，但没有找到一个减少的参与。如果他们承认心理健康经历的艰难现实，那么NEON收藏中的叙述被认为是真实的，似乎描述了现实世界的经历，并描述了与参与者相似的心理健康经历。
■我们提出了包含数字叙述集合的数字健康干预措施的建议：（1）使集合的规模和多样性可见；（2）提供提供拨款的交付机制；（3）使贡献者能够产生真实的叙述；（4）使医疗保健专业人员能够学习；（5）考虑用于解决孤独感。
■对已完成试验参与的干预组参与者的目的性样本的访谈分析。
我们采访了34名NEON试验和20名NEON-O试验参与者（平均年龄40.4岁）。一些用户几乎每天都通过NEON干预访问叙述，而其他人不经常使用或根本不使用它。参与试验的动机包括：探索NEON干预措施作为现有精神卫生规定的替代或补充；寻找有关精神卫生经验的答案；发展他们作为精神卫生专业人员的实践（对于一部分精神卫生专业人员）；申请付款券。高用户（10种叙事访问）描述了三种形式的挪用：分散困难的心理健康体验；提供情感提升；维持拥有社会支持网络的感觉。大多数参与者都重视NEON收藏的规模(n=659个叙述)，但有些人发现它是压倒性的。许多人认为他们可以描述所需叙事的特征，这将有利于他们的心理健康。找到一个满足他们欲望的叙事，增强参与度，但没有找到一个减少的参与。如果他们承认心理健康经历的艰难现实，那么NEON收藏中的叙述被认为是真实的，似乎描述了现实世界的经历，并描述了与参与者相似的心理健康经历。
■我们提出了包含数字叙述集合的数字健康干预措施的建议：（1）使集合的规模和多样性可见；（2）提供提供拨款的交付机制；（3）使贡献者能够产生真实的叙述；（4）使医疗保健专业人员能够学习；（5）考虑用于解决孤独感。
