PDF(Pubmed)
Abstract：
UNASSIGNED: Pediatric cerebellar mutism syndrome (pCMS) can occur following resection of a posterior fossa tumor and, although some symptoms are transient, many result in long-lasting neurological deficits. A multi-disciplinary rehabilitation approach is often used in cases of pCMS; however, there have been no clinical trials to determine gold standards in rehabilitation practice in this population, which remains a research priority. The purpose of this study was to identify and compare intervention practices used in pCMS throughout the disciplines of occupational and physical therapy, speech-language pathology, and neuropsychology across geographic regions.
UNASSIGNED: A 55-question e-survey was created by an international multidisciplinary research group made up of members of the Posterior Fossa Society and sent to rehabilitation professionals in pediatric neuro-oncology centers in the US, Canada, and Europe.
UNASSIGNED: Although some differences in the type of intervention used in pCMS were identified within each discipline, many of the targeted interventions including dose, frequency, and intensity were similar within disciplines across geographic regions. In addition, there were common themes identified across disciplines regarding challenges in the rehabilitation of this population.
UNASSIGNED: These results provide a foundation of current practices on which to build future intervention-based clinical trials.
UNASSIGNED: A 55-question e-survey was created by an international multidisciplinary research group made up of members of the Posterior Fossa Society and sent to rehabilitation professionals in pediatric neuro-oncology centers in the US, Canada, and Europe.
UNASSIGNED: Although some differences in the type of intervention used in pCMS were identified within each discipline, many of the targeted interventions including dose, frequency, and intensity were similar within disciplines across geographic regions. In addition, there were common themes identified across disciplines regarding challenges in the rehabilitation of this population.
UNASSIGNED: These results provide a foundation of current practices on which to build future intervention-based clinical trials.
摘要：
■小儿小脑mutism综合征（pCMS）可在切除后颅窝肿瘤后发生，虽然有些症状是短暂的，许多导致长期的神经功能缺损。在pCMS的情况下，经常使用多学科的康复方法;然而，尚无临床试验确定该人群康复实践的黄金标准，这仍然是研究的重点。这项研究的目的是确定和比较pCMS在职业和物理治疗学科中使用的干预措施，言语-语言病理学,和跨地理区域的神经心理学。
■一项55个问题的电子调查是由后窝学会成员组成的国际多学科研究小组创建的，并发送给美国儿科神经肿瘤中心的康复专业人员。加拿大,和欧洲。
■尽管在每个学科中都发现了pCMS中使用的干预类型的一些差异，许多有针对性的干预措施，包括剂量，频率,在不同地理区域的学科中，强度相似。此外,关于该人群康复中的挑战，跨学科确定了共同的主题。
■这些结果为当前的实践奠定了基础，在此基础上构建未来的基于干预的临床试验。
■一项55个问题的电子调查是由后窝学会成员组成的国际多学科研究小组创建的，并发送给美国儿科神经肿瘤中心的康复专业人员。加拿大,和欧洲。
■尽管在每个学科中都发现了pCMS中使用的干预类型的一些差异，许多有针对性的干预措施，包括剂量，频率,在不同地理区域的学科中，强度相似。此外,关于该人群康复中的挑战，跨学科确定了共同的主题。
■这些结果为当前的实践奠定了基础，在此基础上构建未来的基于干预的临床试验。
