PDF(Pubmed)
Abstract：
UNASSIGNED: Patients on hemodialysis have complex medical diagnoses and medication regimens, requiring access to numerous health services and consultation with various healthcare providers. While interprofessional collaboration can optimize care among hemodialysis patients, these patients commonly experience medication-related problems and frequent hospitalizations resulting from miscommunications and mismanagement of medications.
UNASSIGNED: This study aims to capture the lived experiences of patients on hemodialysis to reveal their medication management needs as they navigate ongoing care between various outpatient services.
UNASSIGNED: A qualitative methodology was used to explore the perspectives of hemodialysis patients. One-on-one, in-person, semi-structured interviews were conducted at an outpatient hemodialysis clinic located inside an urban teaching hospital. English-speaking adults 18 years and older who have been followed at the clinic for at least three months were selected through random, convenience sampling. Interviews were recorded and transcribed verbatim. Patients were recruited and data were collected iteratively and continued until data saturation was reached. Data was analyzed through the lens of the Picker Principles of Patient Centered Care using a general inductive approach.
UNASSIGNED: A total of nine interviews were conducted. Two major themes, medication management and care navigation, were identified. Though patients had a wealth of knowledge about their medications, and they were motivated to self-manage their medications to enhance their well-being, they experienced barriers with medication management. Patients further expressed challenges with navigating care and spoke of the importance of having good rapport with healthcare providers who are attentive to their needs.
UNASSIGNED: The results revealed a need for improved support for self-care and interprofessional collaboration to possibly reduce the burden of medications and care fragmentation experienced by patients and improve continuity of care for patients.
UNASSIGNED: This study aims to capture the lived experiences of patients on hemodialysis to reveal their medication management needs as they navigate ongoing care between various outpatient services.
UNASSIGNED: A qualitative methodology was used to explore the perspectives of hemodialysis patients. One-on-one, in-person, semi-structured interviews were conducted at an outpatient hemodialysis clinic located inside an urban teaching hospital. English-speaking adults 18 years and older who have been followed at the clinic for at least three months were selected through random, convenience sampling. Interviews were recorded and transcribed verbatim. Patients were recruited and data were collected iteratively and continued until data saturation was reached. Data was analyzed through the lens of the Picker Principles of Patient Centered Care using a general inductive approach.
UNASSIGNED: A total of nine interviews were conducted. Two major themes, medication management and care navigation, were identified. Though patients had a wealth of knowledge about their medications, and they were motivated to self-manage their medications to enhance their well-being, they experienced barriers with medication management. Patients further expressed challenges with navigating care and spoke of the importance of having good rapport with healthcare providers who are attentive to their needs.
UNASSIGNED: The results revealed a need for improved support for self-care and interprofessional collaboration to possibly reduce the burden of medications and care fragmentation experienced by patients and improve continuity of care for patients.
摘要：
■血液透析患者有复杂的医疗诊断和用药方案，需要获得众多的医疗服务和咨询各种医疗保健提供者。虽然跨专业合作可以优化血液透析患者之间的护理，这些患者通常会遇到与药物相关的问题,并且由于沟通失误和药物管理不善而频繁住院.
本研究旨在捕捉血液透析患者的生活经历，以揭示他们在各种门诊服务之间进行持续护理时的药物管理需求。
■采用定性方法探讨血液透析患者的观点。一对一,面对面，半结构化访谈在位于城市教学医院内的门诊血液透析诊所进行.通过随机选择在诊所接受随访至少三个月的18岁及以上的讲英语的成年人，方便采样。访谈被记录并逐字转录。招募患者并迭代地收集数据并持续直到达到数据饱和。使用一般归纳方法通过以患者为中心的护理的选取器原则的镜头分析数据。
■共进行了9次访谈。两大主题,药物管理和护理导航，已确定。尽管患者对他们的药物有丰富的知识，他们有动力自我管理药物以提高他们的幸福感，他们经历了药物管理的障碍。患者进一步表达了导航护理的挑战，并谈到了与关注他们需求的医疗保健提供者保持良好融洽的重要性。
■结果表明，需要改善对自我护理和跨专业合作的支持，以可能减轻患者的药物负担和护理分散，并改善患者护理的连续性。
本研究旨在捕捉血液透析患者的生活经历，以揭示他们在各种门诊服务之间进行持续护理时的药物管理需求。
■采用定性方法探讨血液透析患者的观点。一对一,面对面，半结构化访谈在位于城市教学医院内的门诊血液透析诊所进行.通过随机选择在诊所接受随访至少三个月的18岁及以上的讲英语的成年人，方便采样。访谈被记录并逐字转录。招募患者并迭代地收集数据并持续直到达到数据饱和。使用一般归纳方法通过以患者为中心的护理的选取器原则的镜头分析数据。
■共进行了9次访谈。两大主题,药物管理和护理导航，已确定。尽管患者对他们的药物有丰富的知识，他们有动力自我管理药物以提高他们的幸福感，他们经历了药物管理的障碍。患者进一步表达了导航护理的挑战，并谈到了与关注他们需求的医疗保健提供者保持良好融洽的重要性。
■结果表明，需要改善对自我护理和跨专业合作的支持，以可能减轻患者的药物负担和护理分散，并改善患者护理的连续性。
