关键词: Neurogenic lower urinary tract dysfunction Quality of life Reliability The SF-Qualiveen Questionnaire Validity

Mesh : Humans Quality of Life Multiple Sclerosis / complications diagnosis Cross-Cultural Comparison Reproducibility of Results Urinary Bladder, Neurogenic / diagnosis etiology Surveys and Questionnaires Psychometrics

来  源:   DOI:10.1186/s12894-024-01429-4   PDF(Pubmed)

Abstract:
BACKGROUND: The Short Form Qualiveen (SF-Qualiveen) questionnaire assesses the effect of bladder and urinary symptoms on patients\' quality of life (QoL) with urological impairment caused by neurological diseases. There is no validated SF-Qualiveen questionnaire in Arabic, so this study aims to provide a translated and validated version of the SF-Qualiveen questionnaire among Arabic-speaking patients with multiple sclerosis (MS).
METHODS: The English version of the SF-Qualiveen was translated into Arabic using an algorithm for linguistic and cultural adaptation. MS patients completed the SF-Qualiveen, and the Neurogenic Bladder Symptom Score(NBSS) questionnaire. Psychometric features such as content and construct validity, test-retest reliability, and internal consistency were analyzed. Construct validity was evaluated by contrasting the SF-Qualiveen with the NBSS questionnaire. Internal consistency was measured using Cronbach\'s alpha, whereas the intraclass correlation coefficient (ICC) was employed to assess the test-retest reliability.
RESULTS: One hundred and two patients with MS were included in this study. The internal consistency of the total SF-Qualiveen, and the domains \"Bother with limitations,\" \"Fear,\" \"Feeling,\" and \"Frequency of limitations\" showed good internal consistency (Cronbach\'s alpha of > 0.7). ICC was 0.91 for the total score 0.85 for the Bother with limitations, 0.81 for Fears, 0.86 for Feeling, and 0.81 for Frequency of limitations. The correlation analysis revealed a positive association between the total scores on the NBSS and the domains of the SF-Qualiveen, comprising bother with limitations (r = 0.473, p = 0.027), fears (r = 0.611, p = 0.031), feelings (r = 0.572, p = 0.04), and frequency of limitations (r = 0.514, p = 0.013).
CONCLUSIONS: The findings of this validation study revealed that the SF-Qualiveen is a reliable and valid instrument appropriate for Arabic-speaking patients with MS in both research and clinical practice.
摘要:
背景:简短形式Qualiveen(SF-Qualiveen)问卷评估了膀胱和泌尿症状对神经系统疾病引起的泌尿系统损害患者生活质量(QoL)的影响。没有经过验证的阿拉伯语SF-Qualiveen问卷,因此,这项研究旨在为讲阿拉伯语的多发性硬化症(MS)患者提供SF-Qualiveen问卷的翻译和验证版本。
方法:使用语言和文化适应算法将SF-Qualiveen的英文版翻译成阿拉伯语。MS患者完成了SF-Qualiveen,和神经源性膀胱症状评分(NBSS)问卷。心理测量特征,如内容和结构有效性,测试-重测可靠性,并对内部一致性进行了分析。通过将SF-Qualiveen与BSS问卷进行对比来评估结构效度。内部一致性是用克朗巴赫的阿尔法测量的,而采用组内相关系数(ICC)评估重测信度.
结果:本研究纳入了一百零二名MS患者。总SF-Qualiveen的内部一致性,和域\"有限制的烦恼,\"\"恐惧,\"\"感觉,“”和“限制频率”显示出良好的内部一致性(Cronbach的alpha>0.7)。ICC为0.91,总分为0.85,有限制的另一个,0.81的恐惧,0.86的感觉,限制频率为0.81。相关分析显示,BSS的总分与SF-Qualiveen的领域之间呈正相关。包括受到限制的打扰(r=0.473,p=0.027),恐惧(r=0.611,p=0.031),感觉(r=0.572,p=0.04),和限制频率(r=0.514,p=0.013)。
结论:这项验证研究的结果表明,SF-Qualiveen在研究和临床实践中都是适用于讲阿拉伯语的MS患者的可靠且有效的仪器。
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